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11/28/2008 22:02
Acioppe
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I just want to introduce myself and vent a bit about the last month or so of my life. I was Finally diagnosed with fibro after 5 years of pain and doctors telling me the pain is in my head and that my back pain is just a minor scoliosis and that my joints must just be sensative to weather and pressure changes, they ignored my other symptoms of fatigue, tremors, IBS, and insomnia as just a combination of lazyness and being a highschool kid who cant sleep isn't that abnormal.

Last month I had to withdraw from Clemson University when the pain and fibrofog got so bad i couldn't remember what day it was let alone try to go to my classes. I went home to New Jersey and see a better doctor that actually cares, I got diagnosed and put on cymbalta which gives me nausea, stomach pains, moodyness, and an almost complete lack of apetite. But it makes me able to function a bit although i want to find a medication i can handle better. it took me 3 weeks to get back down south to see my friends/girlfriend and take care of stuff to re-enroll in college. The day i get down there i find out my girlfriend has cheated on me with my roommate and she is going to break up with me and date him. She tells me its because im apathetic, don't have any energy, and basically im too much work to put up with anymore....all of which are caused by my fibro and i can't help. So that caused a flare up because of all the drama/stress to the point where i stopped eating entirely for 3 days yet somehow didn't lose any weight and i basically tried to become one with my bed for 2 weeks, so i came back for thanksgiving and find out my parents are having real financial problems and are stressing out (4 kids still in college 2 grad students 2 undergrad) they don't understand what im going through with all of this, they just expect me to be better and carry on, its like they don't have any empathy for me, i don't want much just enough for me to go i feel like crap today please leave me alone. So in the past month i lost the support of my 7 month girlfriend who i loved deeply, my parents, my education is up in the air depending on if my parents can keep paying the bills, im in constant pain, but im doing my best to stay upbeat. Im not normally the kind of person who will let the simple problem that my body sucks keep me from enjoying everything i can while i can so im just trying to stay as mentally stable as i can.

The cymbalta im on doesn't do much for the pain and i just don't like the altered state i feel like im in while on it. Frankly i wish i lived in a place where medical marijuana is legal, just a little bit a 3-4 times a day makes me a normal productive member of society, i don't even get stoned i just smoke enough for the pain to go away so i can live, actually live not just sink slowly deeper into the couch each day. does anyone know anything about the legal forms of MJ that are out there? like Cesamet and marinol etc.

thanks for letting me vent sorry its a bit long but i feel better now,

Alex

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11/28/2008 22:34
Starr
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Hi Acioppe, and welcome to our group. I'm glad you came here to vent, and I hope you feel better because of it.

I am so sorry for all that you have gone through just in the last month! I feel your pain. You should not have to be under all that pressure and be betrayed by those you love. You're right...it's your disease, not your fault.

Have you told your doctor that the Cymbalta is not working for you? There are other meds out there. Don't think you have to be stuck on that one just because he prescribed it. If he doesn't do anything about it, then find a new doctor who will listen to you.

If you have any choice in the matter, a rheumatologist would be the best one to see, both for prescriptions and general pain management.

We do have at least a couple of members who use MM. They don't post often, but hopefully they will see your post and respond.

Another thing you can do is to use our search bow, upper right corner, to get more info on that or anything else.

Feel free to vent here anytime you like. We understand and you can tell us anything.

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11/28/2008 22:35
Starr
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And sorry...I just saw your name as was hitting submit. Welcome, Alex.
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11/28/2008 22:49
HAMPTON7026
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First of all welcome to the group Alex!! Sounds like you've been dealt a real bad deck of cards lately. All of that has got to be alot to take at such a young age. Hate to say it but you will come to realize that you are better off without the girlfriend you spoke of. I know it hurts right now but you need a girlfriend that is willing to accept your condition and love you, for you.

I cant even imagine trying to go to college with fibro fog!! Its hard enough just to remember the simple things.

I think everyone is having a hard time financially right now and with your parents having 4 in college it must be hard for them right now. With that being said, they might be to stressed out to take the time to understand your condition. Money problems sometimes cause people to do and act differently than they should. I'm in no way taking their side, they as parents should be more caring and help you as much as they can. That is what parents are suppose to do. Talk with them if you can and try to get them to open their eyes for a moment and realize that you are in need of some extra emotional support right now.

As far as legal forms of MJ, well as far as I know marinol is only be prescribed for conditions such as cancer. Its hard enough to get pain meds such as Vicoden let along marinol. There is post here about Medical Marijuana that has alot of information about it. There is a search box at the top right corner of the page where you can type in what your looking for and it will bring up previous posts about anything you want.

Have you made your dr aware of the fact that your in need of more than Cymbalta to help control your pain?

Sorry things are so bad for you right now and hopeful that things will change for you real soon. Feel free to vent anytime there will always be someone here. You have found a great place to be, this forum is very supportive and helpful and it sounds like that is what your in need of right now. We will be here whenever you need us!!

Live one day a time, Never give up the fight!!
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11/29/2008 06:30
shortstuff116
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Alex Welcome to our family. It's Ok for you to vent, scream(no ones going to hear you) but it's OK if it makes you feel better. I to am on Cymbalta, It has helped me and I don't have that dopey feeling. The dose I'm on is 60mg. What dose are you taking if you feel drugged? I was just recently diagnosised with Fibro but I have had this disease since 1988. I WAS married to a guy in the Air Force, I kept my medical records and I was reading them, I kept going to the doctors and all these tests were done and 3 to 5 exploratory surgery, not to mention all the colonscope, CT's amd MRI's that were done and they all came back normal. One test that they did say that I have Acute Pancreatitis. This was done in 1989, I was 30 years old. So you see how things happen? Hang in there, You have come to the right place to vent. We do Not JUDGE. We support You, because we are going through the samething, We understand. Again, WELCOME! and sorry so long. shortstuff
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11/29/2008 06:58
jenn36
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Hi Alwx,

I am glad you found us. We are a very tight knit family here, and there is ALWAYS room for more. As Hampton said, even though it hurts your heart, you're better off without the girlfriend. Having this disease is hard enough. We all feel guilty for not being the person and needing help. Someday you will find your best friend, one who will love you for you. I say best friend because I feel that is one of the most important part of a relationship.

As for your folks, yes they should be there for you know matter what. But I also know that financial problems consumes your life. Are you going back to school? If yes, is there any financial aid you can apply for? If not then at least it takes a little stress of your folks.

I was on Cymbalta before. Unfortunatelyit did not work. Just like the Lyrics,it is wonderful for some and not for others. Sorry this is so long.

Hugs,

Jenn

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11/29/2008 06:58
Janilee
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Hi Alex and welcome to our fibro family. It's a shame that you have this disease at such a young age. Stress plays a big part in Fibro flares so try to keep it down. The g/f and your room mate, forget about them, if the g/f left you after that short time, then she isn't worth frettin over. Besides you're are still young and you can find someone who loves you for who you are. It's not madatory that you have a g/f at 21 anyhow. Dang don't I sound just like a mother LOL. As for your mum and dad, tell them that you are going thru a really tough period in your life trying to adjust to things happening with you. Everyone is in a financial bind now a days because of the economy so they are stressed out too. After the holidays, see if you can talk to them and explain what fibro is. Someone posted a really nice letter here not long ago, I think it was Starr. It was about fibro and it seems to make people understand a bit more about the disease.

Starr if you are out there can you re post the letter or tell Alex how to get to it so he can read it?

In the meantime Alex (I love that name) keep a good head about you, don't stress out, tell the Dr your meds aren't helping much, and do what the Dr tells you. He'll eventually come up with a combination of drugs that will help you.

Jan

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!
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11/29/2008 07:09
Acioppe
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thanks everyone, the fibrofog i hate the most, it makes me feel stupid at points but i get times of extreme mental clarity that i treasure and try to use as best i can. I'm on 40mg of cymbalta which ive been told isn't a very high dose but ive always been very susceptable to medications side effects, the cymbalta makes my head sweat randomly, there are sexual side effects that are just odd, i have abdominal pain from it, i feel complacent with everything while im on it so i just tend to sit on the couch and watch time go by i'm going to talk to my Rheumy as soon as i can to try to get a different medication. thankfully i haven't had to have a colonoscopy yet and for a 21 yr old college student that tends to be an odd subject that you try to avoid. Most of the time i just joke around to keep myself in a good mood so i guess people think that since i can joke about it i must be ok or something
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11/29/2008 07:15
mcbeth
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Welcome to the group Alex.

You sure have had a lot to deal with here lately. It's hard enough on us that are older, I can't even begin to imagine how tough it is on someone so young.

I take Cymbalta for the terrible charlie horses and it has helped those. I haven't had any problems taking it. So many of us have had to try several different things to find something that helps and many have been through a string of doctors to find one that helps also. I would go back to your doctor and tell him that the Cymbalta just isn't helping you and that you don't like the feeling that it gives you. They can't help you unless you tell them what is going on.

Oh and the g/f, I know it's hard right now but like others have said, she isn't worth it. If she truly cared about you, she would stick by you through thick and thin. I know that for a fact, I've been married for 34 years....through thick and thin!!

Be wise and dignified like the swan: he maintains his composure, staying unruffled on the surface, while always paddling like crazy underneath.

*♥´¨)
¸.•♥ ´¸.•*♥´¨ ♥•*¨)
(¸.•´ ; (¸ ;.♥•Mary Beth♥


Fibromyalgia is not an invisible diease, I'm right here!


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11/29/2008 09:27
Tabby
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Hi Alex and welcome to the group! We are so glad you found us.

I am so sorry to hear about your g/f and roomate! You are still very young though, and even though I know it hurts now, you deserve much better than that!

Your mom and dad will figure things out financially. It is not your responsibility to worry about their money issues. You don't need the stress of that especially now!

I am on Cymbalta also, and it seems to help somewhat, however I am also on pain medication and Lyrica. Starr is right though, you do need to see a rheumy, and/or a pain specialist to get the right combination of meds for you.

I love your name! My oldest son is named Alex

Please keep us updated, and feel free to vent any time as we all do!

Again, welcome!

Tabby

Tabby

Everyday is a gift, thats why they call it the present

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