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11/24/2008 18:47
jane246
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Hi, my name is Jane. I was just told last week that I have fibromyalgia I don't know much about it. I've been sick for awhile now and I'm in constant pain day and night. I'm no longer working because of the fibromyalgia and I have other medical issues. Is there anyone out there that could help me understand any of this? Thank you
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11/24/2008 18:51
Fletch2ya
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HI Jastogdill....Would love to know whats behind the name....lol

Any way ..just wanted to say hi ....and welcome to the group....

I think you will find that there are lot of wonderful people here that are more than willing to help you, and the info here is awesome....

Please POST>.. post any questions you have and answer any post your feel like... and if you just feel like it ...VENT... tell us about your day and how you are feeling....

Any way.... WELCOME to the Group....

Craig..

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11/24/2008 19:08
jane246
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Thanks for the reply, I just wondered if anyone was out there. I was told to take neurontin starting at a dose of 300mg to start with then increasing it in two weeks. I haven't noticed anything yet, wishful thinking. The rheumatologist thought that water therapy might help that is if I can get out of bed. I'm not even sure what kind of a doct. I should be seeing.
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11/24/2008 19:15
Auntie3285
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Hello Jane,

Welcome to our group ...we are happy to have you join us.

There are many of us here that can answer your questions or you can research many places online.

You will find this is a very caring and supportive group here so don t be afraid to jump right in and post regularly with us.

I am sorry you are in pain but I can relate. Mine has become almost constant anymore, just worse some days than others. There is no such thing as a good day for me anymore.

I am still working full-time at this point (and hope to for another 3 years) but don t know how long this will be possible.

Hi Craig ...what are you up to tonight ? Happy Thanksgiving to you and yours !!!

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11/24/2008 19:47
Cori
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Hi Jastogdill and welcome to the group. It is very devasting to first hear the diagnosis trust me I can relate. but this group is wonderful and you will find out so much information and ideas on how to cope with day to day pain. I am sorry that you have Fibro but am very happy to meet you and that you found us and welcome.


Sometimes it's hard to walk, talk, or even know what tomorrow brings. But as long as I have a smile on my face I can give a little bit of sunshine!
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11/24/2008 19:56
Starr
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Hi Jane, and welcome to our group.

If you are seeing a rheumatologist, that's good. That's usually the first thing I recommend. Just be sure to keep open lines of communication with him. Don't hide the fact that you're hurting. When he prescribes something for you, give it a fair chance, but if it is not working for you, let him know.

Aqua (water) therapy is very helpful to a lot of people. I would be interested in trying it myself, but there are no convenient places in which to do it. The reason it is so helpful, is that it allows you to move without feeling your own body weight. This in turn, strengthens your body so that you are able to move more easily and function better on dry land.

A lot of the meds generally prescribed for Fibro come with a lot of bad side effects. Your doctor is probably starting you off on a low dosage first to see if you are affected by any of the side effects before he increases your dosage. This is where communication is so vital.

I hope you will make yourself at home here. This is a very caring and supportive group, and you will find a wealth of information here. If we can be of any help to you, you just let us know. We'll be there for you.

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11/24/2008 20:45
ALCSS2008
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Welcome Jane,

The only advice I can add is to give the meds a chance to work. Many of the fibro meds have to be in your system or reach a certain level before they will work. Neurontin is a common drug most of us have tried or are currently taking. Keep you chin up and try to find the doctors that best work with you and help you with your pain. I wish you the best in controlling your pain level and speedy relief.

Have a Happy Thanksgiving. And once again, Welcome

Sandi

ccc

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11/25/2008 15:16
Barbkubacki
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Hello Jane,

How long has it been that you are on neurontin? Most medicines they say give it a couple of weeks before you will feel anything.


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11/25/2008 15:46
jane246
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I've only been on the medicine since last Thursday. I dont know if its a side affect but sometimes I feel like im not all there. And I also get very flushed and my cheeks get bright red and warm to the touch.
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11/25/2008 15:53
jane246
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Hi there thanks for the message. I'm still getting use to the news, Im still not sure what It all means. I think Im having some side affects to the medicine. I feel like Im not all there and Im flushed alot of the time and my cheeks are red and warm to the touch. Ive only been on the neurontin since last Thursday.
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