 I'll start by repeating my "About Me" stuff: I have fibromyalgia, myofacial pain of the lumbar and thorasic and in 1998 had GBS; which has left me with drop foot of the left foot, a weak knee amongst other problems like sensitivity to extreme weather conditions.I have seen somewhere in the area of 20 or so doctors over the last 3 years and have not found ONE that has given me enough relief to even live a normal life for more than 1 week out of every month. Just like many others I have read about; I had to leave my job a couple years ago and ever since my life gets less and less "functional". My wife is my biggest support and I wouldn't be.... well let's just say she's a great support. I have so many comments and questions and will get to them over time in this group but for now wanted to just introduce myself and get on "the same page" as a few others maybe. I guess I should address the Subject I titled: "I'm about to smack a pain doctor!" I am livid in general about doctor's THINKING they know more about my pain than I do. If they could feel my pain for 5 minutes they would change thier freakin tune real fast though I'll tell you that! I feel like I can't even be honest about how much medicine I need being 250 pounds and having taken pain meds for over 3 years (not counting my GBS from 1998). The doctors simply say "You shouldn't need more than 2 of this every 8 hours... you can't be in that much pain." etc... At this point I would exchange 5-10 more years of minimal pain on this earth as opposed to another 60 or so years with the pain I live with now. I hope to make some friends as well as attacking these and other problems so please comment, question or even tell me off! |
"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
I know what you mean about them telling us how much pain we "should" be in instead of listening to how much we are in. Well that's why we have this place to come to so we can vent about them.
