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Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
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11/11/2008 08:49
FaeMomma
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Hi! My name is Blyss. I am 21, mother of a beautiful little girl and my doctors have been discussing fibromyalgia with me. I'm not interested in getting a diagnosis of this but having no other diagnosis anything to figure out a way to start treating my pain would be wonderful!

I have full body aches and pains that seem to centralize in my joints but go all throughout my muscles. Heat helps but hot baths or showers are EVIL for me! Temporary relief that then turns into worse pains.

I was wondering what types of relief for the pains others find helpful because even if it isn't fibromyalgia for most of the ways to relieve the pain it's probably not going to hurt to try!

Also I was hoping to learn more of what others are going through with this and any information others felt helped them when first learning about fibromyalgia!

Anything that makes the symptoms worse? Certain times when it is worse? (Times of day, month, year) Any symptoms that aren't apparent to fibromyalgia that anyone has?

I'm currently unable to get any help for my joint pains as I am going through a transfer to a new PC. (due to my original retiring) So I am just ready to break down and thought it would be nice to hear from others! Thanks for taking the time to read this!

Blyss
Anxiety, Bipolar(manic,depressive), Possible Fibromyalgia, Night terrors, Sleep Arousal Disorders, PTSD, etc...
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11/11/2008 08:54
Cori
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My hot baths are evil too but sometimes just to get out of the pain for a little while I take one with epsom salt it seems to help my legs the most. You might try that. also I relax in my most comfy place, my couch, with my favorite blankie, pillow, my dog and a HEATING PAD. I'm not sure if it's the heating pad or the relaxation that helps more. but if you can find something to relax you then you will start to feel a little bit better at least. I have requested to receive one of those molding rice pillow things for Xmas from everyone I know so hopefully I get a few of them I will bury myself in hot rice pillows


Sometimes it's hard to walk, talk, or even know what tomorrow brings. But as long as I have a smile on my face I can give a little bit of sunshine!
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11/11/2008 08:55
Cori
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Oh and welcome to the group sorry I got distracted by the dream of rice pillows.


Sometimes it's hard to walk, talk, or even know what tomorrow brings. But as long as I have a smile on my face I can give a little bit of sunshine!
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11/11/2008 09:35
Starr
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Hi Blyss, and welcome to our group.

You are in need of a lot of information, and I'll tell you how to get it in a minute.

First I want to let you know that FM affects all of us in same, similar, and different ways. There is no pat answer to anything regarding how, when, or what it affects.

I will, however, stress what Cori was getting at. Finding things and ways to relax will be vital in learning to cope with this. And I too am best friends with my heating pad. Well, okay....it's actually a long-standing love affair.

Now, for the info...the quickest way to get some answers is to type a symptom or a topic into the search box, upper RH corner. It will take you to articles or previous discussions on whatever you have typed in.

The other way, is to keep reading posts. We have a lot of members in this group, who are all on different typing schedules for varying reasons. So there's no end to the info you will gain buy posting and reading.

We're here to help, so fell at home here.

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11/11/2008 09:37
Starr
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And forgive typos. Looks like fingers aren't listening to the brain again today.
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11/11/2008 09:45
FaeMomma
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Thanks you guys! I'm in love with my heating pad too! And the rice pillows sounds like heaven! lol!

Starr thanks for letting me know that I can search! I'm gonna start doing that now and I will post if I can't find stuff I want to know!

Blyss
Anxiety, Bipolar(manic,depressive), Possible Fibromyalgia, Night terrors, Sleep Arousal Disorders, PTSD, etc...
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11/11/2008 09:53
Starr
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You're certainly welcome!
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11/11/2008 16:47
Auntie3285
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Hi Blyss, (pretty name, by the way)

Welcome to our group . We are happy to have you join us . You will find a wealth of information, lots of caring friends and much support here.

Starr and Cori said everything pretty well (and most of what I was going to tell you ...lol) but Fibro does affect different people in varying degrees and at different times.

Ask any questions you may have and someone here will have an answer for you.

If, in fact, you DO have Fibro, I m sorry that you have it at such a young age and with a little one to care for. I can t even begin to imagine how I would have coped raising little ones and fighting this disease.

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11/11/2008 20:04
FaeMomma
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Well I am certainly PRAYING I don't and that it is something much easier to treat! I would like to be able to say that it will get better some day and not bug me for the rest of my life! So for now I'll be a part of the group! Thanks for the welcome!
Blyss
Anxiety, Bipolar(manic,depressive), Possible Fibromyalgia, Night terrors, Sleep Arousal Disorders, PTSD, etc...
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11/11/2008 21:53
wendylynn
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Search, Discover, Share is the motto for my son's Cub Scout group.

I think it's a good description of what goes on here. We all are searching for answers, researching if you will by visiting so many posts. I have discovered much to try to make sense of what's going on with my fibro. We all certainly have been eager to share anything we feel may help! Welcome and I hope you feel comfortable here. Wendylynn

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