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Fibromyalgia Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
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05/07/2007 17:10
CJ
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Hi everyone and welcome to this brand new group started by our good friend Roy. For without his help and dedication to placing us on the Internet map we would not have this amazing opportunity to share vital information that could very well help the lives of us that suffer every day with a condition that is rarely treated properly.

I've suffered from Fibromyalgia since a boy, but never really understood what I was suffering from until two years ago when my first real episode sent me to the hospital. Since then I've had three lower spinal discs become ruptured and my ability to move around has been significantly reduced to the point that most of the time is spent in bed.

As many of you who suffer know, getting proper treatment, let alone assistance from the government, is a very tough subject to deal with and even getting a medical professional to acknowledge this condition is a challenge that is beyond understanding.

My hope, about six months ago, was to put together a support group in Reno, Nevada with the goal of sharing information about treatments, medical professionals, and informational materials that could benefit people who suffer from this yet are unable to find help.

I believe, do to the nature of this disease, that this might very well be the best first step in doing so and that this could be a healthy and positive avenue for all sufferers to be able to find the support they/we need.

So please feel free to contribute, absorb, and reach out. If there is anything I can do please feel free to contact me personally. I plan to provide information here that could hopefully be helpful that has been graciously given to me in the past years and has helped me greatly.

Thank you and be well.

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05/09/2007 15:33
roy
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Hi siskoray,

welcome to our community.

Thanks for your kind words, btw- Alon (my partner in this project) is the one doing all the work, while I’m just taking to everybody…

Thanks for sharing with us, I’m sure you’ll be a great asset to the group once people get to know it.

C U

Roy

AND – I deleted the email you posted in your intro. We got complaints from members that it’s being picked up by spammers (I hope that’s because we are getting popular). If someone want to contact you they can do it in this forum or by the site’s PM.

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05/09/2007 23:55
CJ
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Hi Roy,

Thanks very much for having my back with the email thing. I never considered such a thing, but I guess that's the price we pay for having a cyberworld at our exposure.

Thanks most especially to you Alon for helping make all of this happen and I plan very soon to post some helpful starters to get things rolling. It's been slightly difficult with some recent setbacks in my medical condition, but this is too important to let slip at all so you will have my full devotion and participtation.

Take care and thanks again,

Chris



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