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Fibromyalgia Online Support Group

Fibromyalgia Support Group

A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
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FMS Forums › Introductions & Personal Stories › New to the group
09/19/2010 05:28 PM
agrant725
Posts: 1
New Member
I was recently diagnosed with FMS on top of disc issues in neck & back (ruptured disc and deteriorated). Just started Savella but have come to find out that my migraine meds may have "moderate" interacations with it. Now trying to find a balance between pain, sleep, work and family life.
Reply

09/19/2010 06:59 PM  Top
shamarie6
shamarie6
 
Posts: 2805
VIP Member
I'm an Advocate
Hi, agrant & welcome to our family! Nice to meet you! You've found the best place to be for support. Were glad you found us, but so sorry you need us. Feel free to jump in whenever you want to. Smile
My views & suggestions are from my own experience or from research that I have conducted on my own. They ARE NOT to be used as a replacement for a professional opinion, so please take them as just that.
FAITH:
Faith is seeing light with your heart
when your eyes see only darkness.

You never know how STRONG you are...
Until being strong is the ONLY choice you have.

You can't have patience with others until you can have patience with yourself.

Previous discussions I participated in:
Hi my name is kickapree
Just got Home.
Fibromyalgia

09/19/2010 07:23 PM  Top
annamarie180
annamarie180
 
Posts: 1697
Senior Member
Hi there! Welcome!

I'm sorry you're having a rough time - fibro can certainly take a lot out of you! You sound as though you have a good attitude though, which is so important. This group is wonderful, and I know you'll love it here as much as i do!

Love,

Annamarie

Post edited by: annamarie180, at: 09/19/2010 07:24 PM

*i believe in the good*
*Learn from yesterday, live for today, hope for tomorrow*

I am not a doctor, lawyer, or psychiatric professional, so any advice I give is from personal experience. It's issued with a good heart, but should not be mistaken for a professional opinion.

09/19/2010 08:29 PM  Top
lovebug2003
lovebug2003
 
Posts: 53
Member
Welcome! Smile

I agree with AnnaMarie...good attitude is important...and there are some days where you'll feel like you can't deal with it anymore - it happens, but try to keep your head up.

You'll also find that it'll be difficult for you to do some activities and everyday things, but you are not alone. I really hope you find this site useful, helpful. We're here for you!


Previous discussions I participated in:
Hi my name is kickapree
Introduction
Cymbalta taper

09/19/2010 11:03 PM  Top
MissStacey
MissStacey
 
Posts: 14847
VIP Member
I'm an Advocate

Your dr or pharmacist should tell you for certain of known interaction, in the meantime you can also go on www.drugdigest.com enter your meds even suppliments and it will show you drug and any known food allergies. Great site! Good luck keep posting Wink

I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.

"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."

I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey

09/20/2010 12:51 AM  Top
hedap
 
Posts: 2009
Senior Member
Hi and welcome,

Sorry to hear about the Savella. This is the beginning of my 2nd month on it. I had already tried lyrica and cymbalta and was very disappointed. I have had absolutely astonishing results w/the savella--- about a 40% reduction in pain. I am a cynic, my doctor practically had to beg me to try it. So I hope it's not an interaction and you get to give it a chance. Hope you feel better. heather

Post edited by: hedap, at: 09/20/2010 12:52 AM

Savella 50 mg 2x daily
Lortab 10's 4x day
Tramadol 50 mg 4x day
Nuvigil 123 mg day
Klonopin o.5 mg 4 doses daily
Aplenzin 348 mg 2x day
Abilify 5 mg day
Lamictal 50 mg 2x day

Misc.
Levothyroxine 150 mcg 1x day
Vitamin D 50000 IU's 1x weekly
Pravastatin 10 mg day

09/20/2010 03:01 PM  Top
mammy
mammy
 
Posts: 7217
VIP Member
Welcome to the family, it's nice to meet you. I'm sorry you are suffering and the med is not working...or making something else worse Sad lots of trial and error fighting this thing they call fibro. With the great people here, the support, caring and understanding, together we can share ideas, success and failures and we will win this fight!!!!!

We're here for you if you need anything at all.

Connie

I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice.

09/20/2010 05:58 PM  Top
niecey
niecey
 
Posts: 155
Member
I'm an Advocate
Welcome to the fibrofamily! So sorry for all you are going through, but am glad that you have found us!
"We can not all do great things in life, but we can all do small things with great love"~Mother Teresa

09/20/2010 10:34 PM  Top
bc1028
bc1028
 
Posts: 3377
Senior Member
I am sorry the meds may not work for you. I was unable to take the savella but I am sure they can find something else to help you along? What do you take for the miagraines? I take midrin and it really helps mine. I can tell you first hand that back pain is in a whole different realm of pain and I hope you feel better soon.

09/21/2010 11:02 AM  Top
RedGirl
 
Posts: 1594
Senior Member
Welcome to the group. I hope you enjoy the group as much as I do. I'm sorry Savella isn't agreeing with you. Try to keep a journal about the meds you try and the side effects you have with each. It can be very helpful when you need to explain things to your doc(s). It seems that when I need to explain things like that is when The Fog hits me the most.

Red

I am not a doctor or a lawyer. Any comments, posts, or responses I might make are made solely from my life experiences and are not intended in any way to be medical or legal advice so please do not take it as such.

"Nothing but heaven itself is better than a friend who is really a friend."
Plautus

"The language of friendship is not words but meanings."
Henry David Thoreau

"Life is hard. After all, it kills you."
Katharine Hepburn
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