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fallendown Posts: 4
New Member
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Recently diagnosed with fibro after years of being treated for so many things. Always treating the symptoms, but never looking for a cause, I feel like if I had been diagnosed ealier, I may never have gotten this bad. No longer able to work, or enjoy the simple things in life anymore. Wondering if the pain ever gets better? I was just referred to a specialist. I have to wait months to see them. I wish I knew what I could do to help me get out of bed in the morning and then get through the day.. Any tips?
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hatbox121 Posts: 10510
Group Leader
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Welcome fallen. FM is so funny(not in a haha way) because you may wake up tomorrow and feel almost like your old self. Then again it could be months before you get any relief. There's no rhyme or reason to any of it really that I've seen. It's weird. Everything I do is broken down to segments. For example, washing dishes- I'll put them in the sink, run the water, sit down, get up, do the first set, put others in to "soak" sit down, get up, do some more, sit down, put them up later whenever I feel like it. Laundry is done sitting down at a slow pace. Vaccuuming is done in sections-one room at a time. Are you on any meds right now from the dr that dxed you? Or are you having to wait until the specialist appt? Things like heating pads, a good mattress for you, tub soaks, and the like help somewhat as well. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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fallendown Posts: 4
New Member
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u know, you're the first person I've ever talked to that has fibro.. I'm really glad I found this site.. I feel so isolated and alone. Like nobody else around me could possibly understand. So.. thanks.. I started taking cymbalta two and a half weeks ago. Coming off my Effexor at the same time. My pain is no better and my anxiety is worse. So, I also have ativan and ketorolac and cyclobenzaprine... It all just seems to make me sleep.. Nothing seems to help the pain. soaking in a hot tub seems to help, but not enough. A big part of the problem right now is money too. I havn't been able to work for several months. I have unemployment for my income and no med coverage. A good mattress would be wonderful, but I can hardly even afford my meds! The Canadian health care system seems to not be very good after all. |
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MissStacey Posts: 14847
VIP Member
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 You have joined a very supportive comforting group of people that can all totally relate to what you are going through. You are not alone in this, we are all here for you so vent away, talk, laugh or even cry. I hope to learn more about you. Hugs  I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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fallendown Posts: 4
New Member
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Thanks so much Stacey, it means a lot. I looked for support groups in my city and there's no meetings until the end of sept. I didn't think I could wait that long. So glad to finally have people to talk to. |
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naddya819 Posts: 4356
VIP Member
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Hello fallen, and welcome to the family! One thing I found that helps me is adding epsom salts to my bathwater. It's really mostly magnesium and it's highly absorbable through your skin so it gets to the muscles where it's needed. Take an old tube sock and fill it with dry white rice, then tie it off. You can pop this in the microwave for a minute or so and you get an instant hot pack! Stick around, these are the best people in the world! Love,
Naddya, CPhT(R)
Gabapentin 1,200mg/day
Tramadol 400mg/day
Tizanidine 4mg/bedtime
Amitriptyline 10mg/bedtime
Meloxicam 7.5mg/day
Fioricet as needed for migraine
~~Please remember that I am not a doctor. I am a pharmacy technician, however that doesn't mean I know it all! This site should never substitute medical advice from a qualified medical professional. Check with your doctor before adding any over the counter products or herbal supplements!~~
!!My friends, this, too, shall pass!! |
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hatbox121 Posts: 10510
Group Leader
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I took cymbalta and ketalorac too. I don't now, but I did use them for a bit on my road to finding that perfect med! I'm still looking. It does help to know you aren't all alone facing this. And whatever you come across, someone on here has done it, tried it, or whatevered it at one point or another! So if you have any questions, post them and someone will answer! I think that if the anxiety is worsening, you might want to speak with your dr about it. It does take a couple of weeks for the med to kick in full force, but just be observant of your depression and anxiety levels. I'm also broke too, so I know about the stress of no money. I take it you live in Canada? If you were in the US I could give you a site to apply for free meds, but I'm not sure if it works in Canada since the health care system is different there. Oh, and I can't afford a new better mattress either right now, so I got a down mattress topper that helps some. I did go for the down, which is a little more expensive, instead of the foam kind because of something else instead of the FM. It does help some though and is much cheaper than a whole new mattress. I used a gift card someone had given me for Christmas. There are also some heated mattress toppers someone on here was taking about. That would be good if you don't get too hot at night. If I think of anything else, I'll let you know! Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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PCG Posts: 2259
Senior Member
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Hi there Fallendown, welcome to the group! I hope we can at least help you out feel more understood and give you health tips, and a shoulder and good laughs  Hugs Paula Very funny Scotty, now beam down my clothes!
http://pcgaijin.deviantart.com/
I'm not a doctor, what I say comes from personal experience only. |
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gz55
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so sorry for what you're experiencing right now. managing fibro is a learning experience and this is a great place to learn. i started with cymbalta and it definitely helped, just not all the way. neurontin was added which took the pain down some more and then baclofen helped even more. now my pain is usually low, depending on how much i do - still definitely have limits but am able to function much better. so just hang in there and keep looking for things that help - there is hope so don't give up trying. gentle hugs, gail |
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Auntie3285 Posts: 9086
VIP Member
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Hello Fallen and Welcome to our group ~~~ You have certainly come to the right group for knowledge (first hand experience), caring support and understanding in what you go thru living with Fibro. We are all in the same boat here when it comes to pain, flares, disabilities, coping with everyday life and wondering/worrying when we will end up . Please make yourself at home, ask any questions you have, vent, cry, complain, whatever bothers you at any given time and we will all be here for you . Marilyn |
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