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kibbie Posts: 2
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hello to everyone. I have had fibromyalgia for a number of years , and havecoped on and off. People have little knowledge of this. And it seems only other people with fibro can understand. Even GPs dont understand. I have beencaring 24/7 for my chronically ill husband and that has made things much worsefor my health all over . We have no family. Friends have left in droves. I cannot work because of my health and his health, each day is a struggle. Any coping strategies would be appreciated. I feel so very alone  |
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MissStacey Posts: 14847
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You have come to THE perfect place! We can all relate and totally understand what you are going through, you are not alone in this at all. Please keep posting we are all here for you. Hugs, Stacey  
I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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PCG Posts: 2259
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Welcome, I'm new here as well and I can already see this place is great, you'll never be out of friends here  Hang in there, take a good look at even the tiniest things in life that give you pleasure, treasure them, those are the things to give you fuel on the darkest hours. No matter how bad things are, you always have the chance to make things better or wrose by the way you see them and face them Very funny Scotty, now beam down my clothes!
http://pcgaijin.deviantart.com/
I'm not a doctor, what I say comes from personal experience only. |
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LoriD Posts: 126
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Welcome kibbie! I'm sorry for all you are going through. We are here for you!! |
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naddya819 Posts: 4356
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Welcome to the family kibbie! So glad to meet you, but sorry you need us. You've found the best people on Earth here. Coping skills, let's see. Learn to meditate, or use relaxation tapes and set a routine, as best you can. I like to soak in a hot bath with epsom salts every night. Epsom salts are mostly magnesium in a highly-absorbable form, so they go through your skin easily and help muscle pain. Get a memory foam mattress topper (around $200 at Walmart), they are lifesavers for people suffering from pain. And learn to pace yourself. Of course, caring for your husband is an added burden, so it may be hard to relax and set a routine. Just pace yourself! Love,
Naddya, CPhT(R)
Gabapentin 1,200mg/day
Tramadol 400mg/day
Tizanidine 4mg/bedtime
Amitriptyline 10mg/bedtime
Meloxicam 7.5mg/day
Fioricet as needed for migraine
~~Please remember that I am not a doctor. I am a pharmacy technician, however that doesn't mean I know it all! This site should never substitute medical advice from a qualified medical professional. Check with your doctor before adding any over the counter products or herbal supplements!~~
!!My friends, this, too, shall pass!! |
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paige2000 Posts: 39
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Welcome. I know this may sound totally nuts, but something I have been doing that helps me not feel alone is watch and/or listen to home shopping shows. Ha, ha! I like hearing the people talk, and it is totally mindless. Reading is also a great escape if you can manage it. I know being a caregiver can be very taxing. You may want to see if there is a support group in your area. I know of organizations that provide telephone support groups for caregivers so you don't have to leave your home. Best, Paige |
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raynedae Posts: 8219
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Paige, I watch QVC or HSN if there's nothing else on I want to see...audible wallpaper LOL. Kibbie, welcome to the group. Like the others said, this is the best place on the web for kind, supportive people who have an idea how you feel. I also recommend that you find a support group for caretakers. Here's one: http://www.mdjunction.com/caregivers I doubt they're as active as we are but I'm sure you'll be welcomed. Try to do something for yourself everyday, like gentle stretches, walks, meditation etc. Fibromyalgia thrives on stress. You need to find some way to relax as often as you can, even if it's just deep breathing. Oh and welcome to this group! newbie hugs, rayn
I am not a medical professional so please exercise common sense when it comes to my advice.
I am also NOT a lawyer so exercise common sense when it comes to my advice.
I was a bookseller so you can trust my advice regarding books :)
www.operationbeautiful.com |
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kibbie Posts: 2
New Member
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thank you to everyonefor the warm welcome  I am a part of a carers support group whichhelps alot and I relax by listening to music or reading. thanks guys  |
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poppyflower Posts: 252
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Hello kibbie and a very warm welcome to you, Sound like you have lots going on to cope with, Trashy tv always works for me, something far away from real life that you can just lose yourself in, even if its for only half an hour ! Its a shame you dont have family or friends to support you, i think most of us on here know how friends can drift away... You will always have friends here Hugs x Anything i say is purely my opinion based on my own experiences, so please if you have any concerns about your health see your Dr.... |
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oregonnative Posts: 5130
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Welcome Kibbie. One thing for sure, you'll never be alone again. Not when you are a part of this wonderful huge family. I know it's not the same as having friends right there, but on the other hand, you won't have to worry if the house is neat enough.  I'm sorry about your hubby being so ill, I know it isn't easy when you are hurting and exhausted too. I too like to read, and can get lost in the story for awhile. Like taking a trip without having to get dressed! Take care of you too. Karen Shoot for the moon...if you miss it, reach out and grab a star.
Karen
I am not a medical professional. All comments are based on my own experience and/or from articles I have read. |
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"MDJunction to me is a life saver... when i first was diagnosed with Scheuermann's Disease i wrote a message to a page i found on google, hoping that they could help me.... you'd never know it but that weird feeling (you know that one where it feels like someone actually cares) came over me when i opened my email next day to find that someone on the other side of the world (at the American Medical Library)had read my message while i was sleeping, and there low and behold was the address to MDJunction.... well it is everything to me, i live it breathe it and love it!!!!! I have found many people who are struggling with similar issues banding together to help each other. It is the best place in the world, and i couldn't think of another place to go to meet so many lovely people....
