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Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
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08/28/2008 06:49
Auntie3285
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Posts: 1070
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Hi kdashley ...

Welcome (again) to our group ... this is a wonderful place to be for support, information etc.

I am a 62 yr old ""grammie"" to 1 terrific 6 1/2 yr old grandson. He is the light of my life !!! I have been married almost 43 yrs and we have 2 beautiful daughters (both divorced at this point but ...) ...

I still work full-time for a major retailer ...

I love spending time with family and friends as well as enjoy rare times alone from time to time.

I collect teddy bears of all sorts (also anything teddy bear-related ...dishes, candles, pictures etc.). I love to read . I enjoy x-stitching, crafting odds and ends ...I like camping and campfires/chats are a MUST !!!

Anyway, WELCOME to our group and I am one you may also PM anytime you have a question you prefer not to ask on the forum.

{{{HUGS}}} Marilyn

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08/28/2008 10:35
koranistar
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Welcome to the group, Kdashley. I am 35 yrs old and while I don't have fibro, I suffer the pain and fogs that the fibromites do. I have dystonia. It is a life of pain every day like fibro is. This is a wonderful group and they have welcomed me with warmth and encouragement. Sometimes, I just read the posts and my spirits are lifted. I know that you will find the same support here. {{{hugs}}} Blessings of light and love and healing to you.
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08/28/2008 10:46
Jeerie
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Welcome. I'm rather new too...only been here since sometime in June I think. I was told by an OB last Dec that my symptoms seemed to be fibro but it took until a few weeks ago and 7-8 different drs to get a firm diagnosis. I was an 8th grade teacher when I went out on early maternity leave due to pregnancy issues and I've not returned. Not sure yet if I'll be able to. I have a beautiful 7 mos old daughter and a wonderful husband who most of the time tries his best to be supportive. Poor guys has had a tremendous increase in stress watching me go through all of this and worrying about what it also might do to our future (me getting worse, finances, etc.) I'm also "mommy" to 2 cute bichons and 3 very loving cats.

I know you'll find lots of wonderful support here! I don't always get on because of the baby and my husband's addiction to online gaming (he won't admit it, but he's hooked). When I wasn't on for some time, I actually got an email checking in on me to make sure I was OK. There's caring for you!!

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08/28/2008 10:51
tsage
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Hello and welcome to the group!!

You've come to the right place. I searched for a good fibro group for quite a while and this is truly the best on the web. We are blessed to have each other.

You don't have to talk; you can just read the posts and jump in when you're ready.

<<gentle hugs>>

Traci

tsage

May God heal your body and soul.
May your pain cease,
May your strength increase,
May your fears be released,
May blessings, love, and joy surround you.

www.fmaware.org
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08/28/2008 11:10
kdashley
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I would like to thank everyone that has welcomed me into this cyber fibro world. I have read up on a lot of advice here about depression weight gain and pain in general. At this point I am on 7 different meds and don't feel any better. Sometimes I wish I could just crawl up in a closet and just cry till I dry up, but I know I can't do that (I'm severely claustrophobic). Maybe I will eventually find peace from you guys that really know what it feels like. My husband don't have a clue. He is pretty supportive, but he doesn't know why. He just knows I'm hurting. We have only been married a year and a half, I hope these health issues I have don't interfer with what we have. Well, till next time, God Bless! I'm going to go paint and rest my mind.
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08/28/2008 11:34
Debi
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I want to welcome you too!! You will find that it is really helpful to know that there a people in the world who know how you feel, and you found a great bunch!

I am 42 y/o. I was dx last year in august, but probably have had it for longer. I've been married for 22 years to a very supportive husband. I have 2 great boys 17 & 19. I have a very supportive church family. I am an RN, but I haven't been able to work since Feb. I'm scared about what the future has in store, so I just try to take it one day at a time. (sometimes that all I can do!)

I understand about all the meds. I have been on so many, I can't remember all of them. Unfortunately there is no one cure. What works for me, might not work for you. Sometimes it's very frustrating.

As for you husband, there is a "spoon method" somewhere here on the forum. It's a way of explaining what it's like having fibro to other people. Some have had real success with it.

Well, welcome and I hope you find comfort here.


Popular posts by Debi
    the best bed for fibromyalgia
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08/28/2008 15:11
Jeerie
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Kdashley, I can totally relate. My symptoms started two months into my pregnancy, and I found out I was pregnant a week after my wedding. I'd been with my husband for over 5 years before we were pregnant, but it became really hard when the symptoms started on a daily basis last Nov.

He's gone to a bunch of appts with me, both during the pregnancy and after the baby was born. He tries so hard to be supportive, but he is a total worrier so all of this has taken a toll on him. I too worry at times about our marriage. I feel so bad that he feels it's necessary to tell me that he isn't going anywhere, but it's good to hear. I also worry when I read about the people who are worse than me...the ones that are bedridden, etc. and it makes me scared. I have some days when I really have a hard time being the wife and mother I want to be. Sometimes I just want to run away and hide.

I have found that sharing info with him helps keep him in the loop. I've emailed him things I've seen online, along with my parents and sister (my brother, no, because while he's supportive he doesn't understand yet what all this entails. Over vacation he gave me a hug. He hugs hard. When I winced, he replied,"it's just a hug." Not being mean, but just doesn't get it.)That and going to my appts helps my husband know what's going on. It doesn't always help because this is something that even the drs sometimes can't help with, and men always want to fix things.

If you keep him informed, maybe that will help.

Let me know if you need anything. It sounds like our situations are very, very similar. Hopefully just knowing someone else is fighting the same battles as you will help immensely,

Jean Marie

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08/28/2008 15:47
mysticwolf43
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Welcome kdashley! You have entered the most wonderful place on cyber space!! Everyone here is honest, loving, caring, and has either been what you're going thru or is going thru it now. It's a great place to make new friends (and you will make many!!)It's a wonderful place for moral support etc. I was diagnosed with fibro about5-6 yrs. ago. I also have chronic back pain,& depression. I am 44 yrs old, married for 20 yrs. I have 2 children, my son is 18 and my daughter is 10. I live in a small town in Northern Michigan, and I just absolutely love this site because there are no support groups anywhere near to where I live. It's just so nice to be able to open up and vent, cry, or in my case just ramble on, and nothave anyone judge you, or roll their eyes at you because they are "so tired of hearing you complain all the time". So my friend, welcome aboard, and just remember that we are all here for eachother! So glad you decided to join the site!

Feel free to pm me anytime~

~Many soft, gentle hugs~

Peace and harmony

~Deanna~


Popular posts by mysticwolf43
    newly diagnosed
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08/28/2008 21:13
kdashley
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I am glad that I found those that live a similar life to mine. I have had to go thru so much pain since I was 17. I have had ovarian cysts one after the other, I have had them burst, I had a wreck in 93 (never was seen by a doctor, but went thru pain), during both of my pregnancys I had chronic pain in my hips. I had my tubes tied after my 2nd child and have had nothing but problems since. Finally my gyn suggested a hysterectomy. That was in 2003. I have since moved and had no insurance for 4 years. In March 2007 I got married to a wonderful man. I think that was the only good thing that happened in 2007.

My List of Events of 2007

February--My husband was diagnosed with type 2 diabetes

March---Got married and went to Vegas for Honeymoon

May--My 38 year old sister passed away from a heart attack brought on from to much alcohol. (she was an alcoholic)I tried to return to work.....lost my job due to my emotions.

July--Had my hysterectomy (still had pain for months that was not normal)

Sept--*My stepfather of the past 15 years past away from cancer.

*My husbands great uncle passed away.

*Had surgery again, one ovary had been left the first time, he had to take it out this time.

Later in the year my husbands company started talking about layoffs. Then the holidays were really hard.

In March of 2008, my husbands grandfather passed away.

It has been one thing after another for me and my family. To top it off, I get diagnosed with fibro. I thought the pain would eventually go away....now I know there is no cure. I know I can't die from it, but sometimes I feel like I'm dying.

I spend my days now trying to take care of our 4 children (7, 9, 13 and 15). They are all involved in sports so I run here and there. Also trying to take care of home, 2 dogs and a cat. I do all this while living with chronic pain, chronic depression, a bulging disk in my neck, pelvic floor dysfunction and migraine/stress headaches.

Well, I know its a very long message, but thats my story. Thanks for listening.

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08/29/2008 06:46
Jeerie
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Posts: 696
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kdashley,

You have truly been having a very difficult time these! I pray that you find some relief soon. We are truly lucky to have found caring, compassionate men to help us along this journey. Someone was looking down on us when they made sure our paths crossed.

I can only tell you that I admire your strength! What a wonderfully strong love you have for your family to be able to push yourself to be so active for your kids despite the pain. When you are feeling at your lowest, remind yourself of all you've overcome! And if you can't bring yourself to do that, come back to this thread and reread this message so I can do it for you!

I love the Fibro emblem that you have at the end of your post! What a beautiful way to promote awareness!

Jean Marie

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