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MeredithCR Posts: 6
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Hi everyone....my name is Meredith. I am 23 years old and living and working in Indiana as a teacher. I am newly married to a great guy named Matt. I was diagnosed with Fibromyalgia about three years ago after a series of painful tests and several doctors. I even went to a therapist for a while, since one of my doctors told me it was all in my head. I visit a rhuematologist regularly, but I am still developing new symptoms. The pain is almost uncontrollable. I am on heavy pain killers daily, and I'm taking Savella, a new drug out for FMS, but I see very little difference. I'm looking for people to talk with who understand what I'm going through. I also would like to find out what symptoms other people have, so I can stop wondering what is happening to my body. Thanks.
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MissStacey Posts: 14847
VIP Member
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Welcome to the Fibro Family! I hope you enjoy it here as much as we all do, you are not alone in this, we are all here for you. It is very supportive, a bunch of caring and understanding people. I hope you are able to find relief soon. There is alot of talk about Savella possibly being recalled due to some nasty side effects, a group is pushing for the recall and many drs have already stopped precribing it. It has been out for awhile but hasnt done very good for many, some have had success but it doesnt seem like for long. I hope it does well for you. Its all about trial and error so dont be discouraged if thats not the one for you, there are many more out there. If you want to read the post on the recall I can post the link for you. I look forward to learning more about you so keep posting! Stacey  http://www.mdjunction.com/forums/fibromyalgia-discussions/
medicine-treatments/1170614-recall-savella I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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mammy Posts: 7217
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Hi and welcome to our family. You have come to a great place for support and understanding. I know you will really love it here, everyone is great, so caring and compassionate. I think that we all suffer in different ways with different symptoms. For me the worse ones are the fatigue, fibro fog and on bad days, not even being able to take a shower cause I'm just so weak. If you stick around with us, you will learn alot and gain tons of support then you will find yourself lending support which can be very helpful  Connie
I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice. |
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hatbox121 Posts: 10500
Group Leader
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Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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Cinderella424 Posts: 368
Member
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Meredith, welcome to the group, Fibromyalgia symptoms can range anywhere from mild to severe. For me, I have it pretty severely to the point that I had to stop working,after 2yrs from the time of my diagnosis, even part time work. I am glad that you don't have it to the point that it impairs your ability to work. As far as symptoms go everyone is different. For me, pain in all parts of my body exist, along w/ frequent headaches, constant fatigue, TMJ, memory problems from lack of deep sleep,at times I struggle w/ dizziness,falling,numbness/tingling in arms and legs and other weird "unknown" sensations. It's an odd, bizarre disease and it's very important to read as much as possible on it. There are many books that are helpful in understanding and treating the disease. There is also a lot of great support and information in this group, so you will find answers to any questions that arise. I hav been dealing w/ this disease for 6 yrs, so feel free to ask me anything you want, as I 've heard it all(LOL). Again, welcome Kristine |
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MissStacey Posts: 14847
VIP Member
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I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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jenigood1 Posts: 3313
Senior Member
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Jeni
Lamictal
Abilify
Cymbalta
Trazodone
Vyvanse
"Remember - when you fall on your face, you're still moving forward!"
My advice is free, completely anecdotal, and comes from my own experience. Always talk to your doctor before you change anything. |
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bittersweetlife
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Welcome Meredeth. I'm sorry you are in so much pain. I'm sure you'll find some ideas here that will benefit you. You will also find friendship and support. Its great that you found this group, everyone is wonderful!! |
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