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laserbeam Posts: 15
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Hi Everybody, I just found your group and am so pleased you exist. I am newly-diagnosed with fibro though the doctors suspect I've had it for years (as do I). I also have COPD, herniated discs in my neck, and several inoperable bone spurs in my neck. I'm only 46 but have been feeling that my life is over because I can't seem to do much of anything any more. The worst part is I have a 16 year old who doesn't understand at all. She is constantly yelling at me, slamming doors, running out the house because she can't seem to understand how this affects me physically. I feel terribly guilty yet I know I can't help it. I guess I just wanted to introduce myself to you all and ask if anyone else has been dealing with this, and what advice if any you have? Just sharing your stories with me will help me, I think. Again, and most importantly, THANK YOU FOR BEING HERE and for allowing me to join your group. Wishing you only the best, Laserbeam |
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Pixie1960 Posts: 1743
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Hello and welcome to the group! I was just diagnosed with fibromyalgia on Dec 8th so I'm kinda new at this as well. I also have various medical issues including high blood pressure, undersctive thyroid, bi-polar disorder, diabetes and parkinsons disease. Though I deal with the pain of fibro everyday it is the parkinsons that scares me the most. Lately I have been having freezing episodes so my neurologist put me symadine 100mgs twice a day to go along with my other parkinson meds and told me I cannot drive for now. That was a great loss to me. I just try to take it day by day...step by step. Since it bothers me the most I'm usually on the parkinsons disease support group discussion forum. I'm sorry to hear about your daughter...I am very fortunate in that my family & friends are so understanding, interested (they ask me questions & such) and supportive. Still it is difficult for them to really KNOW what it's all about so I'm blessed to have found MDJunction. Because of my various medical issues I am on several support group sites, and everyone has just been so great! If you're looking for others who know how you feel...if you're looking for others who understand; who are encouraging, supportive and share a little bit of advice you've come to the right place. I've only been a member of MDJunction since November 17, 2009 and it has already made such a big difference in my life. Best of luck to you! Look forward to getting to know you! Many soft hugs! Kathleen Post edited by: Pixie1960, at: 12/26/2009 07:37 AM I am not a DOCTOR! You should consult a physician in all matters relating to your health, particularly in respect to any symptoms that may require medical attention. If you have a medical emergency please contact your doctor, go to your local emergency room or call 911.
I am not a LAWYER. The information that I share is from personal experiences and is to be considered as friendly advice only.
Hypothyroidism, hypertension, bi-polar II, Diabetes II, fibromyalgia and Parkinson's disease as well as IBS.
Group Leader for Diabetes II and Irritable Bowel Syndrome group.
Life doesn't have to be perfect to be wonderful! |
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laserbeam Posts: 15
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Thanks, Pixie, and many soft hugs back 'atcha! I just read in a recent issue of Neurology Now that researchers think Parkinson's may be linked to fibro. They speculated that research on Parkinson's will eventually help those of us with fibro, though in your case it sounds like you are dealing with a double (or triple or quadruple) whammy. I'm so glad you have people who are supportive of you. I think if I had that my life would be immensely better. Thanks again for your kind reply. I think I will be here a lot! Hugs to you, Pixie! |
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LockMan  Posts: 788
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Gee, sounds like a typical teenager to me... I doubt it has much to do with you or your situation. They just get that way. Best to just lock them in their room and feed them under the door for a few years. If you dont think that will work threaten to embarass them in public frequently. They REALLY hate that. Tell her to straiten up or you will go to her school, duck your head into her clssroom in front of all her freinds and call her your little baby and remind her that you love her. I'll bet she'd rather DIE than have that happen. I plan to save that one for my son when he really pisses me off. I'm very well aquainted with the seven deadly sins
I keep a busy schedule trying to fit them in
I'm proud to be a glutton, and I don't have time for sloth
I'm greedy, and I'm angry, and I don't care who I cross
I'm Mr. Bad Example, intruder in the dirt
I like to have a good time, and I don't care who gets hurt
I'm Mr. Bad Example, take a look at me
I'll live to be a hundred, and go down in infamy
Mr. Bad Example - Warren Zevon |
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laserbeam Posts: 15
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LOL! Thanks for the much-needed laugh, LockMan! I'll bet you're right about her hating that more than much of anything else....I may just do that. However, I have been known to sing off-key (not intentional)and dance in the grocery store to embarrass her. |
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janquito Posts: 1023
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Wonderful suggestions, Lockman! I like that you dance in the grocery store, Laserbeam. I'll have to do some of these when I go places with my sons. Problem is is they'll probably do something back to embarrass me even more! LOL They are pretty good at doing stuff like that. Janet Janet
I am not a doctor and whatever I post is my opinion, nothing else.
I have many ailments: fibromyalgia, IBS, Prurigo Nodularis, Morgellons, Arthritis, Degenerative Disc disease, Collagenous Colitis, dry eyes and mouth, Essential Tremors, possible Sjogren's |
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LockMan Posts: 788
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Embarasing our children is a Gawd given right of parenthood. I'm very well aquainted with the seven deadly sins
I keep a busy schedule trying to fit them in
I'm proud to be a glutton, and I don't have time for sloth
I'm greedy, and I'm angry, and I don't care who I cross
I'm Mr. Bad Example, intruder in the dirt
I like to have a good time, and I don't care who gets hurt
I'm Mr. Bad Example, take a look at me
I'll live to be a hundred, and go down in infamy
Mr. Bad Example - Warren Zevon |
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MissStacey Posts: 14843
VIP Member
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Welcome to the family, we are so glad to have you here! You will find this to be a super supportive group filled with many wonderful people who will soon be called your friends. I hope you love it here as much as we all do! Gentle Hugs, Stacey  I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.
"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."
I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey |
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raynedae Posts: 8219
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Welcome Laserbeam, I'm glad you found us. I remember when my daughter turned 16...it's like a switch had been flipped somewhere inside her and my sweet, polite darling daughter turned into a raging monster. I couldn't do anything right and she seemed to hate my guts. She wouldn't talk to me except to complain for a year. Eventually she outgrew it and now she's back to being the same sweet kid I thought I'd raised. She's 28 now. But if her Dad had been alive when she was 16, she would have been sent to live with him! I love Lockman's suggestions too...I used to threaten my daughter with a new wardrobe. Some sweet little Laura Ashley dresses with sashes to tie in neat little bows... Good luck. They DO outgrow it. Eventually. Welcome again, blessings, rayn
I am not a medical professional so please exercise common sense when it comes to my advice.
I am also NOT a lawyer so exercise common sense when it comes to my advice.
I was a bookseller so you can trust my advice regarding books :)
www.operationbeautiful.com |
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hatbox121 Posts: 10646
Group Leader
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Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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