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hawkeye
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I am new to this site, but it is like one I was on a few years ago. All I am looking for is I guess is a miracle. I hate my life, if you can call it that. I hate the pain, I hate not having a life because of the pain. Antidepressants and huge amounts of pain killers don't help. |
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sweetheartsuzee
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Hi Hawkeye...I know the pain that we have to live with well...it sucks! But we can make our lives better! And we can all help each other do it! Ya know...quite a few years ago...I was saying to my doc, exactly what your post above says. He looked at me (knowing all the pain and 'head' meds I was on) and asked me what I like to do? I said, "Not a thing." Then he asked me what I liked to do BEFORE the fibro. I told him "Sing and Dance, but doc...I can't dance...it hurts too bad". He said, "Listen...you CAN dance...go home, turn on your music and crank it up. Find your favorite song and dance ONLY to that song...then tomorrow or the next day, try TWO songs and TWO dances." I thought he was crazy...but he was right! I took it "one dance at a time". And that was his ending sentence...ONE DANCE AT A TIME!! I guess what I'm trying to say is that I totally understand exactly how you feel...we all do. And things will get better...they have to and you have to make it happen and we are here to help!!!  May I ask...have you talked to your doctor about your medications not working?? I would strongly suggest that. If your doctor won't listen...FIND A NEW ONE THAT WILL!!! Please remember why you came here...it's a SUPPORT group and we are ALL here for you...on your good days and bad. I hope you get to feeling better soon! Rememeber...post your thoughts, post your feelings, post your life! We're here for you...let's get you feeling better hun!! {{{{Fibro Hugs}}}}
~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!! |
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ponderingreality
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suzee, again you brilliance astounds me! that music thing deserves a post! pondering, and dancing! or at least tapping! haha... i will start this, really! pondering |
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hawkeye
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Ususally Suzee, I agree with wha you say, but, that sounds like to me a bunch a bolonga! Sorry. It is my opinion. Dance! Sitting here typing is is pure agony! If it were not for Morphine I probably would have done it in long ago. How can you have a meaningful life when pain visits everyday, and you never know what time it will arrive. Case in point... Christmas day, I allowed my daughter to talk me into coming over for awhil to see my grandbaby, Lilly 11 months, her open her presents. She loves to sit in grandmas lap and show me everything. Well, you guessed it, Pained hit hard. My daughter took Lilly screaming off my because she didn't want to leave nana, and my son in law drove me home as I cried in pain all the way. Yes, some are going to say, well, at least you got to play awhile with Lilly. But to me it is not that way. To see her with outstretched arms not knowing why Nana wants her off, broke my heart. And I wished I had not gone. So you see, dancing,I just don't get it.(Although I should note that I just don't have fibro. Arthritis and a connective tissue problem also are present.) Thanks for letting me vent. I guess I am negative, but I have lived with this for 13 years and I am tired and so want it to be over. Some days I just want to go home to be with my husband and son who I am sure are yelling at me to tough it up! |
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CJ
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Hey Hawkeye. I think Suzee's words are well intended, but you have the point that I think we all need to be aware of in here, that I believe most of us respect most of the time. That being not stating anything people can or cannot do as a whole. As individuals we each have individual challenges and individual thresholds of pain. It isn't that you got to hold her for a minute, it's that you didn't get to hold her for an hour or two hours or however long you wanted to hold her for. It's the fact that life changes have made it so that the things you used to love to do aren't even close to being each to do anymore. It's not a matter of changing your mindset or attitude, it's a matter of understanding and listening to people like Hawkeye vent and tell us her story so that we can get a better idea of what life is like for her. Certainly if we're able to do this and become a source of support then perhaps the rest will work its way on its own. That's just me 2 cents. |
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hawkeye
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I certainly didn't mean to cause a stir, I just wanted to make a point that there are people who are unable to "dance" at this stage in their life. As in mine, I have so much going on medically,that I am at the end of my rope. I am though, very happy for those who can still have great days, weeks or even months with mild pain or "tolerting" it. My hat goes off to you. And for a new year. |
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kychick
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I agree with cj on this on and I know where you are coming from hawkeye and I dont feel you have created a stir.We all get negative and have to vent,and this is the best place to do that.But we need people like suzee because she tries to be upbeat and positive and I know she had days that hurt so bad to even say the word dance hurts. Right now I can't find a whole lot to be positive about either. See post on marriage seperation for details. None of us just have fibro,we all are dealing with other health issues also,some worse than others. So far being sick and in pain has cost me alot of friends,my job,my marriage and maybe even the love and respect of one of my daughters(or that's my fear)So I don't feel like dancing either. All I seem to do is cry,and even that hurts. But I have to admit,it makes me feel better to know I have friends that understand what I'm going through because they are going through it too in some way or another.So I hope you get some relief of some kind. You may not want to dance but you do want to hold Lilly. Even a little of what you want is better than none at all. |
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hawkeye
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To all who are going to respond... I know suzee and have talked to her many times. I think she is a great person, and it is her lot in life I guess to be here to cheer us all on. I didn't mean to say anything against her personally. Just aainst the whole upbeat message today just put me over the top. I'm soory to Suzee and all the Suzze fans out there that might have misunderstood my negative mood., Sincerely, Joyce |
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battyburnett
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Hi Hawkeye, It is my humble opinion that what the doc meant is that you need to set goals. But what I think is that the goals have to be attainable. Nobody knows what anyone else is capable of doing. But then again, you can't just sit and stare at the wall. When I am having a really bad day, I sometimes just lie here and make up funny situtaions. You'd be surprised at what you can think up. Well that is my 1/2 cent worth. lol |
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Aquarian211
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Some days I make jewelry, some days I color in a coloring book, some days I just laugh at my kids... I just try to bring some type of joy in my life. Just try to smile every day. Things turn out best for the people who make the best of the way things turn out. |
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