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06/11/2008 07:28 PM

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fibromommy
fibromommy  
Posts: 192
Member

Hi. I am new to this group. I have had endometriosis and fibromyalgia. Had a hysterectomy for the endometriosis and only wish it was that easy for the fibromyalgia. I have been on chronic pain medications and have tried other therapies, such as aquatherapy and chiropractic treatment. I was on Duragesic patch 100 mcg, but took myself off it because it was peeling my skin off and went through several days of withdrawals because I went cold turkey off it. I am still on Vicodin, but I have been on that for several years now between the endometriosis and the fibro and it just doesn't work as well. I was wondering if there was a medication that worked for someone else? My family doctor is very supportive and has been with me through all of this and I see a rheumatologist. I have tried Lyrica and Cymbalta, but had reactions to both of those. Are there any medications and/or other therapies that people have tried that helps this pain? I have been in a flareup that is particularly bad and I can't seem to get over it and I am so tired and cranky.

Thanks for any suggestions.

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06/11/2008 09:37 PM
meleggs
meleggs  
Posts: 492
Member

Welcome to the group. I'm not on any heavy duty pain meds but there are people here who are so take a look around and see what advice people have. It is really hard because what helps one person may not help another so a lot of times it involves being a guinea pig for a while.

06/12/2008 02:41 AM
Fletch2ya
Fletch2ya  
Posts: 3183
VIP Member
I'm an Advocate

HI... the patch....fentanyl....... is that the drug.?????

Craig..


06/12/2008 06:09 AM
mamanordy

The patch is fentanyl or duragesic, same thing.

Fibromommy, it is hard to find the right meds to help with pain. I am not on any really heavy duty stuff daily but I do have Percocets that I rely on for "break thru" pain. I put quotations around that, because I am always in pain. Anyway, I have never tried the patch, and honestly when I have had fentanyl in the hospital, it doesnt work too well.

Sure hope you can find something that works.


06/12/2008 07:00 AM
Fletch2ya
Fletch2ya  
Posts: 3183
VIP Member
I'm an Advocate

HI..yeah I was on fentanyl....as you have probably seen ...and hated it...

Good luck... I hope you the best with them.. They gave me the fentanyl suckers... 600mcg's// I was taking about 4 of them a day...plus was on the 100mcg patchs every 2 days....

Craig


06/12/2008 10:23 AM
sideline
sideline  
Posts: 19
Member

Massage therapy has been the best relief for me, minimizes pain and reduces those horrible headaches that last for days. I go every 2 weeks and my massage therapist is amazing! Even the chats we have during the massage relax me and it's nic ehaving someone that understands pain to talk to.

06/12/2008 03:07 PM
fibromommy
fibromommy  
Posts: 192
Member

Thank you all for the support. I have been on Vicodin ES for years, but that is not working so well anymore. I can take 2 tablets every 6 hours, which is okay, but during a flareup, it doesn't work at all. The fentanyl patches were tearing my skin off and leaving scars everywhere and only made me so tired that I couldn't function without really helping the pain.

I have heard others say that Percocets work for them, but what pain medicine does it have in it? I haven't had time to look it up. I am signing back up for aquatherapy since that helped and the chiropractic treatment helped and I am also looking into a vitamin called Fibro-Ease that a friend of mine with fibro just started taking.

Thanks again. The flareup is finally starting to ease up, which makes life more bearable, but the pain is never gone, as I am sure you all know!!!

I just want you all to know that I thinking of you all and hoping for a breakthrough one day that allows us to have at least a few moments without pain in our lives.

Take care. I will post more when my kids go to bed. They are 5, 4 and 1 and don't understand why mommy can't play like daddy does and why they can't sit on mommy's lap (it hurts so bad to have them climb or sit on me!!!).


06/12/2008 11:25 PM
Leonardy
 
Posts: 60
Member

Hi and nice to met ya! I too, was on Vicodin ES for many years. I was diagnosedin 1996.As the years went on, I of course built up a tolerance.(I have a naturally high tolerance anyway)A few years ago it was changed to Lorcet,10mg 3x daily.I felt much better for a while.Lorcet,Lortab and vicodin are all hydrocodone.Percocets are roxycodone or endocet usually depending on the dosage I do believe.Some people take oxycontin 2x daily and use these others for breakthrough pain.I was on oxycontin once and hated it.Hated the way I felt,the constipation etc.Not to mention how highly addictive they are.I know we are all somewhat addicted/drug dependant in some way,but we are not recreational users, take our meds responsibly and would probably be bedridden without them.NSAID's don't do a darn thing for me.Only the narcos like Lorcet and percocet work for me, that and I take soma, a muscle relaxer with it.I just wished they lasted longer than 3 or 4 hours.My Gp says he can't give me anything stronger, that would be the role of a pain specialist.The pain specialists I saw seemed more proficient in inflicting pain than relieving it.Massage is great if you have the right therapist,and hot mineral soaks, although the results are temporary.I've used a tens unit and get a couple of trigger point injections monthly,the result is also temporary.I'd eat dirt if I thought it would work.I hope some of this helps!

Debbie


06/13/2008 04:45 AM
tsage
tsage  
Posts: 708
Member

Hello and welcome! I can't take strong narcotics since I'm an alcoholic/addict. Lyrica works for me, but it does make me feel loopy, which scared me when I first started taking it. I only take it at dinner time now. Mobic helps my pain during the day. I can't emphasize enough how much sleep impacts our pain and fatigue level. Take whatever you need to get good sleep...I break my own rules to achieve that.

06/13/2008 11:17 AM
fibromommy
fibromommy  
Posts: 192
Member

Thanks again. I see my rheumatologist Monday and I am going to ask him to take over my pain control treatment. My FP tells me that there are only 3 options for pain medication and those are Vicodin ES, Duragesic patch and morphine and morphine is too strong, the patch makes me break out with blisters and peels my skin off literally and I have scars all over my body from it and only makes me so tired that I fall asleep while doing everything and with young children at home, I can't do that, so I am back to only Vicodin ES. I think I may ask him to change up the dose some. I didn't realize there was a different dose other than the 7.5/750, but the 10 might be good. I can take 2 tablets every 6 hours and get adequate relief when not in a flareup, but I am not sure about anyone else, but when those flareups happen, nothing seems to help. I sometimes have to take 4 Vicodin ES to get enough pain relief to make it through my shift at work. I work as a medical transcriptionist right now, but I am also a nursing student waiting to see if I made clinicals for the fall. Along with that, my husband is a paramedic and works 50 to 90 hour weeks and I have the 3 young kids and so I sleep as often as I can, but it is never enough.

Thank you all so much for the ideas though. I am going to try the massage one. I got a gift certificate for my birthday a couple months ago for a spa visit and I am going to try the hot stone massage and get back into aquatherapy, plus the Fibro-Ease vitamin. I will let you know how that works. If the Fibro-Ease works, is any one else interested in finding out more about it? My friend gave me a website and I can post it if anyone is interested in finding out more. She has tried a bunch of stuff as well, but swears by this vitamin already and she is not the type to say those things lightly.

Alright, I better get to work. Thanks again and God Bless you all!!!

We are all in this fight together and we will live our lives and prove that pain is not who we are, but only a symptom of what makes us strong!

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