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06/11/2008 15:33
martyj4
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I have just been told back in Feb. that I have FM (still can't spell it write maybe don't want to learn yet) but I really am having a very hard time emotionally with this. Has anyone else ever gotten so depressed that you just want to cry non-stop? Guess I have really had this alot longer then I really knew. Been going to docs now for the past 8yrs with different pains and what not but only thing ever came up was disc degenerative disease. I had a fusion in lower back last year. Then in august (5 months after surgery) had lower back pain again and it scared me since I just had surgery. So have been back and forth to docs since then and now have an answere which I am really having a hard time dealing with. Now at a point where it really hurts when I wake up. Takes longer to get moving in morning and I work full time. Plus have two kids yet at home. Now they are great and so is my husband with doing things but it is just so frustrating not being able to do what I am use to doing. I was a single mom for awhile and just re-married last year. My poor husband now has to deal with me and my emotional roller coaster. Not fair to my family. Any ideas, suggestions, anything cause I really don't want to deal with this but I do know I will for the rest of my life.
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06/11/2008 19:00
smooch
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Welcome!! you are in the right place. I criend yesterday and today. I have had the nerves in my back caterized. no help. My husband to told me I need to find a happy place with this. Last night on OPRAH - this woman had stage 4 and she was so AWESOME - so inspiring. She found her "happy place" despite tumors on her liver and lungs. it is hard to get started in the morning. I am trying different minds to finally find the right combination. Smile sweetie - tomorrow is another day. the next is another moment!!!!
Peace & Blessings
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06/11/2008 19:53
mib516
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Welcome!

I wanted to give you a big hug. I was diagnosed 4 years ago, and although the research says Fibro is not progressive, I say that is a bunch of Balogna! Mine is getting worse everyday. I did nothing but cry yesterday, so I know your pain. The depression is horrible too. Today was ok. I had to take my meds, and pray. Things that help (somewhat, I still haven't had a foolproof solution) are staying calm when all hell breaks lose, praying, light exercising, relaxing. Pain meds when it gets to be too much, support groups like this one, and friends and family. I hope this helps a bit. If you need to chat just send me a message.



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06/12/2008 02:30
martyj4
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Thank you to smooch and mib516. I just started a new med cymbalta and man did that knock me out last night. I am up for work but can't figure out how going to do it right now just still way too tired and I did fall asleep around 8:30 - 9 got up at 5:15...but soooooo exhausted..this happened with Lyrica and another med he tried me on....what kinds of meds can they try for this cause this is the sixth medicine I am on!? I have to work. There is no not working for me right now and I don't know how with the pain then trying meds and having the feeling of being so tired all day from them. This is just so hard. And yes it progresses... I know .... I feel it daily getting worse....stress I know doesn't help....the only way for me not to have stress is not work and go hide out by myself. I worry about bills, my granddaughter, my kids, my health....how is it possible to stay stress free? I know depression cause I have had that for years and have been med free from depression for a long time and now on meds for that because I can't take it! I have yet to find a pain med that works or even touches this slightly. Been on too many cause of recent back surgery. I cried at the doctors and he really isn't a specialist with this so not sure if can deal with a patient just having a crying fit cause I was in and out yesterday. I try to exercise just simple like walking but after when I sit to rest the pain is so intense and next day even worse. I have no idea what to do. And I was always so use to doing everything on my own.
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06/12/2008 02:38
Fletch2ya
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HI... martyj4.. I hate that when you have slept and get up feeling more tired than you were before you went to bed..........

I don't know how you and your doctor get along.....

But just one suggestion....... It is a med that works really well for me...and its "Provigil"

It has a lot of uses... but mostly it is to help you feel awake..... not like a "speed" like med... but just makes your mind awake...... no jitters, or nerves feelings..... I just feel like I can think..... not so sleepy, croggy feeling..... If I know I have a day with a lot to do... I take on..... and what a difference it makes........

It may not be for you..... but if you have not tried it........ what do you have to lose.... and like I always say...please ...Google it and research it before you take it.... and make sure it does not work badly with any of your other meds.......

I do you are doing ok today.....

Hope you have a GREAT DAY and BE as PAIN FREE AS POSSIBLE...

Craig

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06/12/2008 03:03
martyj4
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I will check into that one I need something to make me alert. I do remember after being on the Lyrica I drove to work the one day and sat at my desk trying to figure out how I got there. Told my boss needed to go home and I went home and slept the rest of the day into the next. Something I never want to experience again.
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06/12/2008 03:30
Fletch2ya
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hi again..... I hope that it helps.... there are other meds out there that do about the same thing..... but with this one...no jittier feeling or nervous feeling....

Let me know ....

May you have a great day today..... and be as PAIN FREE as possible...

Craig



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06/12/2008 09:19
Shebrat
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Hi Martyj4,

I was told I had fibro shortly after I got married also. I was a single mom and use to doing everything myself too, and then this thing crept up slowly (I knew something had been going on though) and then tried so many different meds (still am) and yes, it is horrible to get up in the morning! There have been times my husband had to button my pants for me because I couldn't. So embarrassed, but he is really a sweet guy and has been great about it all. It really makes me mad because I don't like to not even be able to go for a walk without feeling horrible later. I have gained 30 pounds in 3 years of marriage, because of meds. Has this happened to you too? I like being active and when the dr says to exercise and the fibro won't be as bad I feel like hitting him. (I have tried different drs too) I didn't want to believe it was true at first and tried to be in denial. So I understand your frustration. Very depressed at times.

I can really relate to the feeling of hurting so much you can't get out of bed. My shoulders are the worst and I literally have a hard time rolling out of bed. But I have managed. Just know that you have to take everything at a slower pace and don't overwork yourself. I have really had to slow down. When I get to my stopping point each day I just say "That's it!" and I go sit down and rest. The house can stay dirty!!

Please feel free to write to me anytime! I am new here too.

Sheila

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06/12/2008 13:17
tsage
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Hello. We understand the terrible symptoms you're experiencing...Try to keep your chin up, as there are lots of meds that will help relieve your pain, fatigue and depression. I take Mobic 15 mgs, Lyrica 150 mgs, Lexapro 10 mgs, Temazepam 30 mgs (for sleep), and lots of vitamins and supplements. Each person responds differently to medications, so it will take trial and error to find the right "cocktail" for you. Also, try to exercise as much as possible each day. I've tried everything, including meditation, which seems to help. I hope you find some relief soon.
tsage

May God heal your body and soul.
May your pain cease,
May your strength increase,
May your fears be released,
May blessings, love, and joy surround you.

www.fmaware.org

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    Fibro Retreat?
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06/12/2008 17:08
martyj4
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Thank you to all who responded this is really hard for me. As I said before I am use to doing so much on my own and now have to rely on help. Cutting food like steak I can't do! I hate it. As to cocktails I can not take lyrica was on that three days at the lowest dosage just once a day and I was more or less comatosed by it. Couldn't remember how I drove to work the next day and couldn't function at work..had to leave went home and after sleeping well over 12 hrs the night before slept when I got home at 11am till basically the next day. Just now am only on cymbalta really just started yesterday but it is the 6th med for me. Exercise makes me want to cry cause I was an avid walker with my dogs and just a short walk I am in terrible pain after. If I sit to relax after doing something you might as well forget it I can not get up or move. I have been being tested for well over 5 yrs for MS well I now know that it is this. I am so very much trying my hardest to keep my chin up. There are times I just break and cry non-stop till I am exhausted and fall asleep. I am having a hard time just putting car into gear to drive. Looking over my shoulders to park..I just can't believe all the simple things people take for granted that I can not do. It is just weird as to how it can just creep up on you and then get soooooo bad. I laugh when the doctor tells me to stay away from stress...yeah ok...that doesn't happen in my life. Not with teenagers, young adults, dogs, granddaughter and a daughter who insists on being with a druggie with her baby....Stress ok....no stress well guess I would need to go hide out for a bit alone to have no stress. I don't want to sound like a whiner I really don't want to complain I have dealt with alot in my life and this just really takes the prize. My kids that live at home are great and so is my husband....other then that the rest of my family knows but no one cares to ask how I am doing. Or can they do anything. Actually no one in my family except my parents have mentioned anything...funny how a family can be raised Christian (father is a minister) and yet abandon their own flesh and blood when we need them the most. I do have some very close friends but no one has experienced this to vent with....so I found you guys...and am truly blessed for this.....again lots of thanks to all ....I will one day feel better emotionally but right now I know I am pretty far down....the why mes keep coming at me....I have to remember that God only gives us what he knows we can handle.....
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