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06/11/2008 12:48 PM

Finally reaching out/neeing support.

j13
 
Posts: 7
New Member

Hi Everyone,

I have been living with FM/CFS for 2 years. My Primary and Endo, have put my on a big cocktail so that I can live as "normal" as possible. The first year was tough, the second I thought "mind of matter" - yeah whatever. About 2 1/2 weeks ago I started an episode that finally knocked me down. I have to admit that I have an illness, my husband has told me that I must start opening myself up to help and knowledge/acceptance. We are starting to realistically look at what I can & cannot do. My serious flair ups never lasted more than 5 days-I could play it off as "overdid it at the gym". I am angry, I'm scarred and really need to meet other people like me so that I know I'm not alone.

Post edited by: j13, at: 06/11/2008 13:09

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06/11/2008 12:54 PM
mamanordy

Welcome j13, you have come to the right place for support and friendship! We all share the same concerns and the same pain you feel. I have had fibro for over 20 years and I have been on a lot of medications. I will admit the meds they give now are much better than 20 yrs ago. There is a lot more known about the disorder but there is still a lot for doctors to learn.

What meds do your doctors have you on? I noticed you said you see an Endo, that is interesting. Did your primary dr refer you to him?


06/11/2008 01:03 PM
j13
 
Posts: 7
New Member

I am currently taking Ultram, Dexedrine, Lyrica, Cymbalta, B-12 shot once a week and do 6 months on/6 months off of HGH. In March '06 I had a C-Section with my son, and 2 weeks later had Appendicitis. So the test that I got to take over the next year where somewhat scewed and confusing. My body was still getting over being pregnant. Their was a little 'reaching' in trying to find my diagnoses.

06/11/2008 01:46 PM
hurtallover
hurtallover  
Posts: 283
Member

Welcome j13--you have come to the right place for support. Everyone here is great and many have so much information that the rest of us can learn from! I am fairly new to FM and have had many of the same responses that you mentioned as far as mind over matter and just "plow through" everyday. I have 4 kids the oldest is 15 and the youngest 8yrs. Our youngest has Down Syndrome so he is a bit of a challenge! But I love him dearly. I think having kids at home and running all over with them is a challenge for me everyday. My Dr is still trying to find the right cocktail for me. I also take Lyrica, Celebrex, and Pamelor. Celebrex was the last one added and I do think it helps some. I look forward to getting to know you better.

Post edited by: hurtallover, at: 06/11/2008 13:49


06/11/2008 03:57 PM
cinnamon
cinnamon  
Posts: 144
Member

Hi j13, Im a new one here to. My doc has me on Celexa, nerountin, and of course my High Blood pressure meds, Im seeing a new doc now. I have seen so many over the last five years it isnt even funny, this last one is female and she was my doctor before I was DX with the fibro, I had moved to another state when I was DX about 3 years latter, so after seeing all these diffrent docs in the town I live in, I decided to see if she would take me back on as a patient shes in another city, she said Yes that she remembered me and would take me back after 12 years. None of these other doctors gave me anything but the pain meds and so now Im addicted to them,and shes not happy. so she gave me the nerountin because my insurance wont pay for the Lyrica which is what she wanted to put me on. Sorry I got crazy here for a minute. Cinnamon

06/11/2008 06:09 PM
smooch
smooch  
Posts: 15
Member

Blush Oh boy do I understand where you are. I was down four days last week and yesterday I was in tears - all I did was clean the bathroom Okay and took DOWN a load of laundry and brought one up - this mroning I was in my advanced paid specialist office in tears. I start a new part time job on ?Monday. I am afraid I'll mess this one up too. My husband pretty much told me the same thing about accepting it, pacing my self and creating a positive life despite. Yup he's right but some days I am not able to do that! Some days I cant get outta bed! take care by sweet and just know that we have to start with accepting and learning to pace ourselves-trust me its much easier than said!!!! My best to you!

06/11/2008 06:13 PM
booklady14
booklady14  
Posts: 1188
VIP Member
I'm an Advocate

Well, maybe they can get you settled down soon. Thats one of the hardest parts of this disorder is that what works for one doesn't work for another. A lot of people can't take the lyrica. And you may have been of those. I hope you find help soon. Welcome, kathy

06/12/2008 10:33 AM
sideline
sideline  
Posts: 19
Member

Welcome, come cry on our shoulders, we are here for you. I used to be on a grand mix of pills to be "normal" then I just said forget it, got off all the pills and now I just take antidepressants and over the counter pills for the pain when it is extreme and some Gravol. The mind is a powerful thing but in this case sometimes you do need to resort to medications to help, try to reduce your medications and take the bare essentials so you cna still feel like yourself.

06/12/2008 01:03 PM
tsage
tsage  
Posts: 708
Member

Welcome! I also have a special "cocktail" for my fibro symptoms...I take Mobic, Lyrica, Lexapro, Temazepam, and lots of vitamins. I've experienced severe pain and fatigue for a little over one year, but now realize that I had some symptoms as far back as high school. You've come to the right place for support. Glad you joined us! Smile

06/12/2008 05:50 PM
booklady14
booklady14  
Posts: 1188
VIP Member
I'm an Advocate

welcome to the new ones. And hello to the "old" one. HOpe we can be of help to you as well as you shareing what you find out that might be important to us. Take care and lots of hugsTongue
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