Aunt Rinn
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I mean I agree that Fibro is terrible. I suppose that there is a certain amount of suffering that goes a bit further with Fibro b/c we are so misunderstood, miscalculated, and overlooked like we don't have a serious issue. I don't argue with that. My point is more that I'm not going to take the wind out of a person with MS's sails like I have the same problems as them. There is a huge difference in our situations, they can be diagnosed more easily and I cannot be, therefore, I'm persecuted for complaining of pain when uneducated physicians don't see and "positive" signs in my medical records. I know there are different levels of Fibro suffering, as I have gone through them personally. There are times where functioning is not a problem, then others where I just can't even get out of bed. On those days, when I do get out of bed, even though it takes every ounce of energy to do it, I run into walls on the way to the bathroom. I nearly split my eyebrow open the other morning because I ran my head straight into the door jam molding on accident. I'm sensitive to light more than usual in flare, which i'm in right now, and I can't keep my balance well when I wake up feeling like a drunken sailor free of a clarifying thought. I'm not trying to slight anyone with any form of Fibro, rather I think that MS survivors need credit where credit is due and I have honestly seen more suffering in MS patients than I would have liked to. I've taken care of many, through my worst days in pain, who have lost all motor function, including speaking, so they can't even tell you in their last days of life the pain they are in. There are some days that I wake up wondering "why me" wishing that I could just end it all b/c I don't want to suffer another misunderstood day of being treated like a faker. My miserable existence has only proceeded to get worse over the past month b/c Fall is kicking me right in the you know where. I'm sick and tired of being sick and tired and treated like I should be normal. My doc, that I thought understood me, told me today that Fibro patients shouldn't be treated with narcotic pain killers and if I read up, then I would know that I should be on anti-depressants to help with the anxiousness and stress. If it were that easy, then I guess we would all be cured, now wouldn't we be. I completely agree that I have this diagnosis because my doc ran out of patience with getting back negative results on every test I take, but she would like to believe that I'm just faking every pain that I have or that I really can put on my shoes in the morning, but I like pain medication so much that I'd make it up. I believe that we do suffer more than those that can actually get a clear diagnosis of a disease or condition that is either cancer, a broken leg, or an infection. They just don't understand that I feel like I have an infection running through my blood that affects every single muscle and joint in my body. I think it causes us more pain to go through this than those who are actively dying. I just don't want people that are diagnosed with cancer or MS to think that we, as sufferers of Fibro, don't appreciate their struggle, like they are "lucky" to have that diagnosis and we are "unlucky" to have ours. I think that we are all in a bad spot with any condition that inhibits a normal happy life. |
