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10/18/2009 06:20 PM

I was wondering does anyone every have

Pamela1121
Pamela1121  
Posts: 206
Member

A week free of pain with this disease? Hello my name is Pamela...and I suffer everyday with this. I have it and arthritis in my spine, right hip maonly (but both) and my hands feet & knees.

I also suffer with horribel migraine because of the neck pain but on September 3rd a sugeon founf i have an in-operable tumor in my neck.

This week has been horribel & I was wonderign if anyone ever goes at least a wekk without pain. I am real lucky if I go two whole days!!!!

Thanks

Pamela

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10/18/2009 06:25 PM
Jezwik

Unfortunately, most do not usually go a whole week without ANY pain... It's a matter of doing our best to keep the pain as low as possible on a daily basis. There are times when you can go into "remission", and for some amount of time the Fibro pain seems to "go away"... You can hope for "remission"!!? AND keep hoping for a CURE Smile

10/18/2009 06:31 PM
Pamela1121
Pamela1121  
Posts: 206
Member

I have had it for years & it just keep getting wrose. But Fibro isn't all i have. I would faint I think if it went into remission, but be thrilled.

Pamela


10/18/2009 06:41 PM
Jezwik

We have several members, however, that are taking a drug called "suboxone". You should at least check out some of the threads on it here... Just typr in the search box "suboxwow" or "new medication", that should pull up the big ones. The ones that are on it are saying they are for the most part "pain free"... It's worth looking into, based on the reviews here!

10/18/2009 06:44 PM
bluefibroangel
bluefibroangel  
Posts: 774
Senior Member

Pamela when I was first DX with fibro about 17 yrs ago I would go into remission on occation but not any more sorry to say. It just keeps getting worse and I have no pain ferr days anymore. Fibro isn't all I have either but it seems to make all the other stuff hurt so much more. I'm not trying to be negative just truthful.

Hugs Lisa


10/18/2009 06:53 PM
River
River  
Posts: 3465
VIP Member
I'm an Advocate

Nope not me , I am never totally pain free. I have days where it is minimal though. So sorry. HUGS River

10/18/2009 07:01 PM
Pamela1121
Pamela1121  
Posts: 206
Member

I will try to see if the pain clinic will let me try it when i go on hte 21st. I hope it doesn't make you gain weight as i have gained 28 pounds in hte past year.

So nothing fits. That in its self is depressing.

I was todl back when i was about 20 And i never go a week without pain. this past wekk has been horrible.

To the point I would have shot myself if I woned a gun. Everybody says well you look good. Even a pain doc told me months ago she wouldn't write me a leter because i am young & look good & didn't look like ai needed disability. i was so pissed! Just becasue I can brush my hair & put on lipstick does not mean i fel good!

UGH! if someone foesn't have it they don't understand, which is so fustrating.

Pamela


10/18/2009 07:02 PM
mammy
mammy  
Posts: 7217
VIP Member

Sorry for your pain Pamela. I don't have any good news to add, I am almost never pain free and haven't been in years. I do have other stuff going on besides fibro so that could be why, wish I could have given you more positive news.

10/18/2009 07:02 PM
Pamela1121
Pamela1121  
Posts: 206
Member

I totally understand! It makes mine so much worse too. Thne there is the tumor on top of everything else.

Pamela


10/18/2009 07:05 PM
Pamela1121
Pamela1121  
Posts: 206
Member

Thanks River!

Hugs right back at you.

Ok need to jump off ere as I am really hurtign need to take soemthing for it.

Thanks everyone, will be back when i feel litlte better

Had lot of migraines this week too.

Pamela

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