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FMS Community FMS Support Forums General & Support Tired of people saying they have Fibro
 

Tired of people saying they have Fibro


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05/12/2008 12:53
Ksdmjd
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 Everything depends on the day. Some days I can function, some days I force myself to function, some days I cry and barely function, then I crash and can't do anything. I know I am pushing myself right now, and I probably am headed for a major crisis.

The difference between where I am and where you are is that you are still in a flare. I am sore, but not in a flare. I hurt all the time, but there is no mistaking a fibro flare, and those are what I save my vacation and sick time for.
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05/12/2008 14:08
AngelBooze
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 I use to do everything that I possibly could with or without the pain. I got to the point that I did not want this disease to define me as a person so I tried so hard to do everything that I could. Now I know that no matter how bad I fought to keep Fibro from defining me as a person,IT HAS! I am who I am because of fibro. I have been able to be a at home mom because of fibro. Even though I wanted to work, the doctor's said no so I took advantage and tried being a good mom to my daughter and in time, to my step children. My daughter and I are very close thankfully and I have some wonderful memories of my years at home with her. My BF and I have had some great Fridays, when the kids were at school (he works 10 hrs./day Mon-Thurs.) because I could not work. I now am in the worst days of my disease and what keeps me going is my family, my daughter, Jim and his kids. But the Fibro will define your life. I know that I might not of been able to work 40 hrs. a week or even 2 weeks for over 17 yrs. I know that my family and hopefully most of my friends, will know that they all have made my time on earth very enjoyable and loving.

I hope that you all know that you all are my friends and I would do anything to help any of you.

{{Soft & Gentle Hugs}} to all of my friends.

AngelBooze
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05/12/2008 15:44
cadburry
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 I'm in a constant battle with this Fibro. I want so much to be normal and beat myself up allot for not being able to do things most 27 year olds do.

I hate it that I have not been able to work for the last 17 months. I keep hoping that I will be able to return to work, but everytime I do something as simple as standing there doing the dishes I end up in a flare and it doesn't help that I get so frustrated and ask myself oftenhow did things get this bad. I feel guilty and think I must have done something directly to cause this. I even went through the "The doctors are right somehow my mind create this pain" So I tried to will this pain away and of course that didn't help, so I had to learn to accept, which I'm still working on.

Some days I give in and some days I fight like hell to have some sort of life.

Sorry for going on, I don't even remember what I was origonally going to say LOL.
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05/12/2008 16:11
Snoopy30
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 I,m glad to see everyone sharing their personal experience with fibro. I am not and was not offended by anything said earlier in this post I just wanted to show all of our experiences can be so totaly different. I know if i keep going at this pace that one day my body will crash on me and when that happens I may not bounce back. I only hope I can slow down before that happens. In the past couple of months I have made changes in my life to try and slow this process down. I hope it works the way I intend and doesn't backfire on me. We all do what we have to to get through. I was afraid when I posted what I did it might cause hurt feelings. that was not my intention. Instead everyone is posting about their experiences and supporting each other and that is what we all need. So thank you all for not judging and for listening.

Post edited by: Snoopy30, at: 05/12/2008 18:11
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05/12/2008 18:39
meleggs
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 People are all dealing or not dealing differently. I have days it doesn't bother me that much mentally but then others I am angry or depressed because of the fibro the whole day. If I am being honest- I've not reached a point to where I am ok I have fibro and I have a lot of guilt about that. I could have something else or worse etc. but it doesn't help the fact I want to feel normal- whatever that is because I don't even remember what normal feels like.

I thought about what Cadburry said- that some doctors kind of make you feel it's your fault or it's your attitude about having the condition that holds you back. I don't think most doctors have a clue as to the people we really are. If this were a mind over matter condition there probably wouldn't be a need for this support group.
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05/12/2008 18:57
Lyme2
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 Hi!

Yeast/Candida maybe?

Low Hormones?

Bad diet?

Food/other Allergies?

Drink lots of water and eat fiber to clean your body.

Robert

Post edited by: Lyme2, at: 05/14/2008 08:50

www.cafepress.com/robertslaughs
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05/13/2008 04:01
AngelBooze
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 After having Fibro for so many years I still am not OK with it. I still get down because we are having financial problems and I can't help more to pay off some of the bills. So I still want to be "normal" like everyone else. But then I think what is "normal"? Everyone is normal and that is what makes each one of us unique. But the depressed mood is always with me it just depends on how bad I am.
AngelBooze
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05/13/2008 06:24
red4photos
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 I was one of the people that did not tell anyone. I only said that I had a headache. I do a strange smile when I am in a lot of pain. My own husband really thought I was lazy. You see, I have 5 siblings and the people in my family are fakers and liars, they would be the people that would fake an asthma attack to get out of work. My sister has seizures and I have seen her fake it more than once. So, since you cannot see pain, you cannot prove pain and I never wanted to look like my relatives. I spent years trying to just live. I talk about it now but really most people don't know. It is amazing how people don't really look at you. I mean how can they not see? I also hate when my pain becomes the conversation. I have some friends, I know they are well meaning, but they ask how you feel and everyone, then talks about it instead of whatever you got together for. Then the people that were there they decide what I can and cannot do. anyway....
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05/13/2008 12:00
Sandradee
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 I really believe that many of us are type A personalities and that is possibly why we feel so guilty for not being able to do what we used to do which was way too much to begin with. I never said no to anybody and by the time I turned 34 my body just couldn't do it anymore. I hate being limited now, I feel way to young to have to slow down so much if ya know what I mean. I am 40 now.
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05/13/2008 12:23
JanfromTN
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 Some of you guys are so young and have young children and I really feel for you. My children were older when I was diagnosed and could do more for themselves and for me. I too feel depressed and feel guilty because I cannot help out with the bills and things anymore. I have worked almost all of my life at one thing or another and now to be where I can't help out when we need money so badly just makes me so mad at fibro and what it has taken away. I turned 50 in April.

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