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FMS Community FMS Support Forums General & Support Tired of people saying they have Fibro
Tired of people saying they have Fibro
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05/11/2008 18:20
ilovegnocchi
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 I am sorry that you are feeling frustrated. I know what it feels like to crave just a day or two where the pain is not nagging at your body. How long have you been diagnosed with fibro.? I think more needs to be done to raise awareness of the disease. I never even knew it existed until it was mentioned as a possible cause of my pain.
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05/11/2008 18:47
JanfromTN
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 I am sorry my post hurt the feelings of other people on this site. That was never my intention. This makes the second time I have said something on here to offend someone and I am sorry for that. From now on I will try to keep my mouth shut more and only post when I know no one is going to be offended by what I say.

With the pain I have I know I could not work the way this woman has to work at the jobs she has.

I do not know her circumstances as I don't know the circumstances of others on here and if you are still able to work then that is great and I hope you can continue on as long as you want to.
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05/11/2008 19:18
cadburry
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 My heart goes out to everyone that suffers from Fibro. Whether they work or not.We all hurt.

I don't think less of us who are unable to work and I don't think more of those who can work.

What I do think is that we are all suffering from a terrible illness and we all have a common dream. Our dream is for a cure!
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05/11/2008 20:26
Janilee
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 Jan, you have the right to say anything you want to just as much as anyone else in the forums does. We all have our days when we need to vent so never be ashamed at what you say. If anyones feelings gets hurt just remember we all have our good days and bad days. Just give the person a hug and let them know that we are here for eachother no matter what.

Love and gentle hugs for all my fibro friends. It's great being part of a group that helps eachother thru our difficult times.

The other Jan only from Ohio.

May your troubles be less, Your blessings be more. And nothing but happiness come through your door!
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05/11/2008 21:43
meleggs
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 In my opinion there are definately different levels of fibro. I've said before mine was very mild for about 8 years until one big flareup that I never got totally better from. I would bet most people with mild fibro aren't seeking support because they are managing it because it is manageable for them. I never felt I needed support when mine was mild. I worked like a dog and if I over worked it I spent most of a weekend relaxing and usually within a week the pain and fatigue was back to being mild.

I guess although it is hard- for those who are mildly affected- they in a way are no different from "normals" because their symptoms aren't that bad. I think mine even went into periods of somewhat of a remission- I could go a few weeks and not even know I had it.

The down side to those mildly affected it if they continue to overdo it they are at risk for it getting worse. They may not even know that. I never would have thought after 8 years it would get so bad.

If someone who is mildly affected says something that can be considered offensive I guess either ignore it because they really don't know what you PERSONALLY are feeling or it wouldn't be wrong to say there are different levels of this condition and feel lucky yours isn't as bad as mine.

I've learned to be more selective as to who I tell I have fibro. I'm easily stressed and I can't let someone elses ignorance irritate me enough based on something they don't understand.

Hope that makes sense!-m
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05/11/2008 23:10
angelblossom1963
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 Well i was diagnosed like 3 yrs now. but i found out i had to of had it longer than that.i am so tired of people putting each other down.beating each other up over this it is not gonna make it go away.it is only gonna upset ya and then you wqill see you just fed the beast.god bless everyone of ya stay strong.
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05/12/2008 00:18
Ksdmjd
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 I'm not offended. I do think I'm PMSing though. I think Fibro, for *me* has been a blessing in some ways. It has made me think differently.My kids need a teacher that thinks outside the box. I am so far outside the box that from where I am standing I can't see it. Anyways, I understand your frustrations. I had a girl I work with fake a asthma attack so she could go home early. (I know she faked it, she called me on my cell after she had left because I was so worried about her, and she told me she wanted to go out.) I was so mad. I didn't say anything to anyone though because, I figure if she has that kind of attitude she will bury herself soon enough. And she did, she ended up getting fired for something else.

I had a point at one time. Oh, yes, I accept everyone's word that they have it until they say they don't. Just because someone doesn't share thier pain doesn't mean they don't have pain. Some just suffer in silence. Not me mind you, I can't shut up if my life depended on it.

Like I said, I had a point at one time, not sure if I made it...going to bed to see if I left it there.
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05/12/2008 03:59
AngelBooze
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 WAZYDJ & JanfromTN, along with anyone else,

I was and am not mad at you I am sorry if I came off as being mad. I know that everyone does take the pain differently. I was trying to point across how maybe we sound to someone new if, God be lucky, they are able to do more then someone else. Then they might think that they are not able to even discuss their feelings with us if we say that they can not have Fibro if they can work or do this/that. I am so sorry if I came off b*#*hy! That is the last thing that I want to do.

Please except my apologiezes. {{Soft & Gentle Hugs}} to all of you

Rita

Post edited by: AngelBooze, at: 05/12/2008 06:02

AngelBooze
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05/12/2008 08:26
bearsjewel
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 we all handle the pain differently and yes sometimes we get upset by something someone says. there are days when i can actually fold my cloths or help with something in the house but then like for the last 2 weeks i have not been able to do anything except maybe make it to my computer. For almost 10 years i was able to do my own housework ect then wham one bad period and that was taken from me and never given back. I think that those who are able to work even with the pain are very very strong people and i try to learn from them. what bothers me is the ones who dont know fibro who says they cant figure out why we cant do the simple things. they have pain and are still able to work etc. or the ones who think just because they have a little pain that they should be able to get disability because if we can why cant they since we cant be hurting as bad as we say. Never apologize for what you are feeling at the time you post as meleggs says give hugs to the ones you think you hurt as we all know what you are going thru and how you feel as we have all been there and done that at one time or another. Love and Gentle Hugs to All here on this site and those who have fibro, bearsjewel
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05/12/2008 09:07
Sandradee
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 I have had comments from my massage therapist at the chiro's office that I couldnt have fibro because people with fibro can't be touched. I told my doctor, the third one that agrees with the diagnosis, and he said we all suffer in different ways. As I sit here, having worked 4 hours today and now going to my chemistry class to sit for 2 hours, I am in pain. I took vicodin this morning and 800 mg of advil a couple hours later. I am trying to hold off on taking another pain pill until I can't take it any more and I am about there. I only get 2 vicodins per day and it does NOT cover me from 5:30 a.m. till 10:00 p.m.. I only get about 2-4 hours of slight relief per day. I wish there were something that could be done. My insurance won't let me have lyrica until I have been on numerous antidepressants, which I was 5 years ago but they don't count that. Antidepressants make me useless. I will sleep my life away if i have to do that again.

Just venting but thanks for listening.

Sandra Dee
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