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FMS Community FMS Support Forums General & Support Tired of people saying they have Fibro
 

Tired of people saying they have Fibro



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05/08/2008 10:10
mbradford
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I am so sick of people telling me they have fibro and all they have to do is take tylenol and they go on with life. Or just exercise it will take care of all your pain. I just want to shout at them and tell them I have tried tylenol and I cant exercise because I cant even walk. And that I am not lazy I want to work, I just cant. I have never felt so useless in my life. I have a friend who says she has fibro and she works 2 jobs and tht she doesnt have the luxury of laying around and not working. Like I dont feel bad enough! I wish it was a luxury and not filled with pain every day.

Thanks for letting me vent.

Michele

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05/08/2008 10:47
Tuffy
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First thing....HAPPY BELATED BIRTHDAY Michele!!

You sound as fed up as I am. My one sister is in her 50's, she got shingles on her one leg that lasted about 2 months and through her emails...you'd think she was dying with pain!! Oh baby, walk a day in OUR shoes!!! Seems people these days don't want to be 'bothered' hearing someone grone about their pain! Like the car magnets that were made up for us stating that Fibromyalgia is an 'invisible' disease....it may not be able to be 'seen', but oh boy, we feel it!!

Almost seems we need to wear a sign with some saying on it like...Don't Touch Me...It hurts. Oh well, we are trying our darndest to educate people about Fibro and thats about all we really can do! Oh well!

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05/08/2008 11:11
lunielucy
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these days people can go to the doctor and get 10 prescripts for a headache. And we... Go through the riggor, get called lazy, and its all in your head... just to have one of them, give us a some treatments or come up with another drug to help us. Its a ignorant quick fix world out there. Keep your chin up, hold it high. Relish in your good days, and to hell with the others who doubt you, or roll their eyes. They don't matter because they don't know.

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05/08/2008 12:05
cadburry
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There is no way I can work. I think for some Fibro is worse and I also think some people get misdiagnosed.

I for one feel sick. I feel nauseated, dizzy, my legs feet and ankles hurt so bad I want to drag myself through the house.My head, neck, and shoulders hurt.My hips, and lower back, and ribs hurt. I'm literally falling apart and I know for a fact that Tylenol doesn't do one thing for this pain.

I was eating Tylenol like they were bags of M&M's and my doctor got on to me and had to test my liver and kidney function.

The people that say thses things either don't have Fibro as bad as some of us, or they were misdiagnosed which does happen.

I met a lady at my kids dentist office yesterday and she asked me if I worked last night because I looked so tired and I said no I stay in pain 24/7. I said I have Fibromyalgia and arthritis. She said oh yes that Fibro is a hard thing to deal with I had it for 6 years, but mine went into remission. I just stood there looking at her.

of course wanted to ask HOW. but by the time I got past the shock the handicap lady she was caring for go called to the back.

I think Fibro is one of the worste diagnoses to be stuck with because allot of people just don't beleive in it.

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05/08/2008 19:00
faieriemama
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I know there are different levels of fibro, but come on I mean seriously ther is no way someone with fibro is working to jobs,or in remission. We all know what we feel like and we can and cannot do, i myself would love to go back to being a nurse again but that is not going to happen. Not until I can get up and take shower without needing a nap after.
May the sun bring you new energies by day,
May the moon softly restore you by night ,
May the rain wash away any worries you may have,
And the breeze blow new strength into your being,
And then,all the days of your life,
May you walk gently through the world,and know it’s beauty and yours.
A Native American Blessing

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05/08/2008 19:07
ALCSS2008
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Happy Nurses Week. I know how you feel. I just went to a nurses day dinner and I am so tired I can hardly spell. I was in so much pain sitting there I had to take a pain pill after just 15 minutes. There are so many people that say they have fibro. I hope that they don't but if they do, why can they do so much that I can't. I want to be a nurse again. I cried at the dinner because I will never again be a part of the work that the people I was with are doing. I was out of the loop. It was almost okay tonight though, because I was in too much pain to care. Is it possible for people with fibro to work full-time jobs and live regular lives? If so I am happy for those people. The TV adds make it look like if you take a Lyrica, you can do anything.
ccc
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05/08/2008 19:22
faieriemama
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Happy Nurses week to you too ALCSS2008. I am sorry you hurt so bad,I know what you mean about crying. I cried when the first time I didn't send off to renew my license, it was a really hard day for me. I don't know of anyone who workd full time but maybe ther are some who are fortunate enough to, I agree with you I am so happy for them and wish I could be one of them.
May the sun bring you new energies by day,
May the moon softly restore you by night ,
May the rain wash away any worries you may have,
And the breeze blow new strength into your being,
And then,all the days of your life,
May you walk gently through the world,and know it’s beauty and yours.
A Native American Blessing



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05/08/2008 20:15
savedone
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HI GUYS!! I DONT KNOW HOW SOMEONE CAN WORK "TWO JOBS"I AM IN

DISCOMFORT FROM THE TIME MY EYES OPEN!!AND BEFORE!!I TRIED WORKING MORE AND COULD HARDLY WALK..I WAS DOING VISITING NURSING, MEDICAID VISIT..IN AND OUT OF CAR!! I COULD HARDLY WALK AT THE END OF THE DAY!!I FEEL BETTER WITH THE NUTRIONAL SUPPORT,BUT I HAVE MUSCLE TIERDNESS AND

EXTREME WEAKNESS..I WORK NOW IN A PHYSICAL THERAPIST OFFICE, I CAN SEE PT. ONLY CAN DO IT 2 DAYS TUE AND THUR--- 1P TILL ABOUT 6 P..I HAVE A HARD TIME GETTING GOING IN MORNING!!!CANT SIT OR STAND FOR ANY LENGTH OF TIME.. I AM JUST "TRYING" TO WORK,BUT IT TAKES ALL I CAN TO GET "OUT" OF HOUSE!!!SO BEST OF LUCK TO THOSE WHO CAN WORK,MORE..HUGS TO ALL,,LOVE LESLEY

I HAVE BEEN STUDYING UP ON FIBRO. I HAVE DECIEDED TO DO IT NUTRIONALY, AND USING AS LITTLE MEDS AS POSSIABLE!SCIENCE HAS FOUND WHAT WE HAVE BEEN WAITING FOR!NOW WE CANIMPROVE OUR HEALTHWITH WHAT GOD HAS PROVIDEDNATURAL.WITH HIM ALL THINGS ARE POSSIABLE!!!
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05/08/2008 20:57
red4photos
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I think that fibro gets worse, like it seems progressive. 13 years ago I couldn't sleep then I got headaches then TMJ and over time I hurt all over. EVERYDAY. What I thought was the worse pain imaginable turned out to be not that bad. Now what is the worse pain imaginable is way worse than it used to be. My pain threshold is a different ballpark.
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05/09/2008 20:38
Janilee
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My sister tells me to get out and walk or exercise and loosen up my muscles. She doesn't realize that I can't do as much anymore. Today I spent mostly in bed because it was the damp cold outside and I hurt everywhere except my left ear. This would have been a perfect day to pull up some weeds but It was all I could do to muster a shower this morning. My siser is in a different state so she doesn't see me or how this fibro affects me. I wish I could go out and walk like I used to. I wish I could wake up one morning and stay awake instead of having to do naps almost every day. I feel like I'm wasting my life away by sleeping.

Jan

May your troubles be less,
Your blessing be more,
And nothing but happiness come through your door!


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