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05/07/2008 08:29
Nina80
Purple Ribbon
Posts: 35
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I've only had this condition since July of last year...coming close to my 1 year anniversary in a few months. The past 6 months however have been Dante's Inferno X 12. I'm not really feeling this "work" thing anymore. However I don't think I have many options at this point in time.

I'm almost ready to throw in the towel and order a pine box to sleep in. Does anyone else here work outside their home, and if so how do you deal with ALL that goes with managing this condition. I'm getting fed up, and so are the people around me.

"For if the readiness is there first, it is especially acceptable according to what a person has, not according to what a person does not have." - 2 Cor. 8:12
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05/07/2008 08:39
hurtallover
Yellow Ribbon
Posts: 273
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I work--I am a High School teacher. Some days are better, never great or the way I was before I started to have these awful symptoms. I really want to stay in bed most of the days, but I get up and start my day anyway. I really don't know how we would make it otherwise. I have 4 kids one with special needs so I don't have much of a break a home either. I was just recently diagnosed, so you probably have some great advice for me on working outside of the home. I believe that staying home is a full time job! As far as any suggestions--I guess I really don't know, just keep putting one foot in front of the other. I also know what you mean about the people around you at work getting fed up. I have only told 2 people that I work with about my diagnosis. I don't want to become "the one" that all the other teachers talk about in the lounge! Hope you are having a good day!
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05/07/2008 09:34
mcbeth
Purple Ribbon
Posts: 1412
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I work full time for a large accounting firm. I do the secretarial stuff, plus the data entry and some of the accounting work. No tax returns thank goodness but I do process them. We are winding down from our busy time. From Jan 1 until May, we work over 40 hours a week, every Saturday plus some Sundays.

Quiting work is not an option for me. There is no way hubby and I could make it on his salary. Besides our house we are continually having to help our youngest daughter who is a single mother with 4 boys. Hubby has already told me that to even make it in retirement that I will have to work until I'm at least 70.

Many days I do not feel like going to work and it is an effort everyday. Some days I feel better orther days worse. I try really hard not to take it out on the ones around me, sometimes I do succeed.

Going to work in my top priority basically. I HAVE to do that every day, I have no choice but to just get up and do it. Like hurtallover said, we just have to put one foot in front of the other.

Sending you gentle hugs today

Be wise and dignified like the swan: he maintains his composure, staying unruffled on the surface, while always paddling like crazy underneath.

*♥´¨)
¸.•♥ ´¸.•*♥´¨ ♥•*¨)
(¸.•´ ; (¸ ;.♥•Mary Beth♥


Fibromyalgia is not an invisible diease, I'm right here!


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05/07/2008 09:47
hellojenny
Purple Ribbon
Posts: 27
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wow.... just today not even five mins ago i went to my human resource department and got paper work for FMLA which is family medical leave of absence. Your entitled to miss X amount of days per year and it can't be held against you at all. Sometimes im bearable other days i cant even get out of bed. Ive always been the type to show up for work and school but lately i see myself calling off of work alot. you can see if your job has that option if so then you have to have your dr sign it but im sure that won't be a problem. I am in california so im not sure if its a state wide thing but you can try.
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05/07/2008 10:10
jillianerin
Purple Ribbon
Posts: 33
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Im a cosmetologist and it is very hard on your body standing twisting bending all day long my body just cant take it and everyone looks at me like Im crazy cause Im only 22 I should be perfectly healthy right. WRONG.....
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05/07/2008 10:44
foxyroxy1
Purple Ribbon
Posts: 449
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Im starting to feel like the answer to that is NO!
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