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When are you doing this presentation? I might be doing one myself at a national conference but I won't know if my proposal was accepted until next month. A big focus will be on the current traditonal and non-traditional approaches to treating it. I also will be conducting a survey with members from this group so other healthcare professionals know what people with fibro are struggling with. I think most of us have found that it is hard to find a good doctor to treat you. Doctors know this condition isn't easy to manage so it's hard for us to get appropriate support. None of us MEAN to belly ache. None of us want a free ride in life. Most of us had careers and life goals and all that before we had fibro. We aren't hypochondriacs we feel sick eveyday but we look normal. It's like waking up in the middle of a nightmere you can't get out of. Most of us need meds- often harder pain meds which doctors don't like to give out. Believe me if we could find some nature approach and didn't need stronger drugs most of us would do that at the drop of a hat. Chronic illness often causes depression and anxiety. I put it in that order because many of us didn't have major emotional problems until fibro got worse. If we had some money- I fall into this catagory- we spent lots of money seeing all kinds of alternative doctors trying to get help. We are sometimes called doctor hopper when in reality we are relief seekers. Many people consider suicide BECAUSE they have fibro and can't get enough relief. Most of us have gone thru periods of being ashamed or uncomfortable asking for other medication. Many of us use antidepressants. At first I was so ashamed of this I would only go through the pharmacy drive thru to get mine. I want to feel better and so do most people. I think doctors see us as a pain in the butt because sometimes we know more about the condition then they do- that's for sure- because we do so much research trying to find things to help us. Please tell them we only want help and the pain and fatigue we feel leaves us on certain days with very little quality of life and that isn't an over statement. Some folks here had to quit working and because of that may lose their homes. It is very scary not knowing what the future holds. Even if this isn't KILLING us physically it does take an emotional toll. I for one don't enjoy feeling fatigued and achy EVERYDAY like I have the flu. How well could someone function in their life and job if that is how they felt everyday. Well I've gone on enough. I hope this is helpful!!1 |
"MDJunction to me has been the helping friends of understanding that I have needed. I feel now as if someone else it the world understands the things that I am going through. I feel less alone and happier. Here I can let out all my emotions and get support from many people who have been in similar situations. It really has been a life saver for me!" (Amanda78)
