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Is fibro hereditary?



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05/02/2008 12:55
cherryhdmom
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All four of my children display fibromyalgia symptoms, my aunt has fibro, and my uncle has CFIDS, my oldest sister has RA as well as my oldest daughter. I went to a doctor last week for my numbness issue, and he says fibro is not hereditary, but, I have read in fibro books that it is. Does anyone else have children that have fibro? I am finding it hard to find a knowledgable fibro doc that is close to me, and I have no insurance, I really don't know what steps to take, anyone have advice? Oh yeah, I pretty much had to diagnose myself, although my family doctor ruled out RA several years ago with blood tests. I have done alot of research, internet and books, and talking to people with fibro. My chiropractor agrees with me, but, I am more concerned about my kids' future. Thanks for any help! cherryhdmom
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05/02/2008 13:12
cadburry
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Everything I have ever read suggests that it is hereditary.

Both of my children disply symptoms also. My son wakes up crying in the night with his legs hurting him, which I'm going to get this checked out because I have arthritis and he might have juvenile arthritis.

My daughter has headaches almost everyday and cries sometimes about her back hurting. We were told she has scoliosis when she was a baby when she had an X-Ray done and then her doctor said that she out grew it with out ever getting another X-Ray. I know she's always begging me for tylenol and I will only let her have so much because I worry about her kidneys and liver. I have never seen a seven year old cry for tylenol the way my daughter does. I just took her to the doctor the other day and he said it's allergies, but she has these headaches all the time no matter the season.My daughter hurt so bad that I broke down one night and took her to the hospital and told them to give her some pain medicine. I know at seven she shouldn't be having these problems and I will keep fighting these doctors to take my babys pain seriously. I don't tell the doctors that I have Fibro though because I don't want them to automatically assume my kids have it and then my kid might not get the proper tests done and it could turn out to be something else.

I really hope and pray that my daughter doesn't have something wrong with her, but she's basically been like this from day one so I'm really starting to wonder. She even had colic for the first four months of her life. She was hospitalized when she was one because she would throw herself back and scream in pain and no one ever found anything wrong with her.

After writing this I realize it might time for to tell her doctor that I have Fibro. I hope she doesn't and I hope your kids don't have it either.

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05/02/2008 14:04
2pat54
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I am also having a hard time finding a knowledgeable doctor. I know it must be so difficult for you not having insurance. Might try researching government programs. You hang in there. I've also been told that fibro was not hereditary but who knows. Many soft hugs to you.
2pat54



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05/02/2008 14:29
bumpkin99
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It is not certian if fibro is hereditary but doctors have seen that it does runs in familys, not in all cases but in alot. My grandmother had fibro, md, and lupus. My mother has been diagnosed with fibro and doc says she may have md. I have been diagnosed with fibro but nothing else. I have not seen any signs of fibro in my children yet, thank goodness. Hope all goes well for you.
karen

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05/02/2008 19:37
Bkwrm398
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Fibro runs in my family. Like you, we also have RA in the family. Fibro can have multiple points of origin (trauma, nerve malfunction, etc.). I have read that one theory is some people may have fibro that is triggered by an autoimmune response. That theory seems to fit my family...RA is definitely autoimmune, as is psoriasis.

Two of my mom's sisters have been diagnosed with fibro & arthritis. The third sister has been dx with psoriasis and gastroparesis. The fourth sister has thyroid problems and a heart condition. My mom also has five brothers and they all are dealing various physical conditions.

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05/02/2008 21:25
cherryhdmom
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Thanks for the input everyone.

My oldest daughter, who is 22 now, was diagnosed with RA when she was 9. She had stiff joints as a five year old, but our family doctor didn't have a clue! It wasn't until she broke her collarbone at age 9, that I asked him to x-ray her hands also. He did blood tests and x-rays, neither he or the lab doctor caught it, they said everything was normal. We wanted to pursue it further, so he sent us to a specialist. The specialist said something was definitly wrong and sent us to the rhumatoligist. She looked at the blood tests and xrays and diagnosed her with RA, she showed me what they missed. That's why I want a knowledgable doctor! This same daughter was very colicy the first few months, she never did sleep very well as a baby or a toddler. She was always very active, she was a finicky eater also. When she was diagnosed with RA, she was on all kinds of anti imflamitory medicines. But, she also had symptoms that the doctor could not explain, or ever said we should explore further. She had headaches almost every day, and she would complain about her muscles more than she would complain about her joints! I had never even heard of fibro, and evidently neither had her doctor! The doctor never had a good explaination for these other symptoms. All my children had bad leg pains at night, and all of them have suffered from headaches, and back issues, knots in their shoulder muscles, sleep issues,etc. Another thing we found out last year was that all of us are gluten intolerant. Being on a gluten free diet has cut back on headaches and IBS issues, but it is not a cure all. We have other issues also, like fatigue. Anyway, I don't want to assume that they have fibromyalgia, they don't either! I just want to help them feel better, and have a good future! I think they see me being miserable alot, and they don't want to even think about living like that! Actually, I hope I'm wrong! Just gotta keep praying!

Margaret

gentle hugs to everyone!

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05/06/2008 08:43
Ksdmjd
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My sisters have fibro, some of my neices and nephews and my kids show signs. If it isn't hereditary it is quite a coincidence.

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05/06/2008 09:16
ilovepetey1
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Yes, it is definately hereditary. My daughter was just diagnosed with it and my son shows definate signs of it.

Leslie

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