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"In the 3 months I have been with MDJunction I have developed a sense of calmness. I now friends who do not judge me because I have been a mental mess at times. It is such a good feeling to have friends I can tell my deepest thoughts and always get back to me with their support. I have never seen a therapist for long periods of time. Right or wrong, this is the best therapy possible for me. Thanks Roy for getting this up and running and making such a difference in my life. Sara" (saralaurie)
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10/02/2007 21:41
kychick
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I'm just wondering how many out there are suffering from depression because of being sick and not being able to do "normal" stuff that used to be easy. I almost feel as if I've been grieving this past year. I had to quit a job I really liked(I was in billing in my family doctors office) and was really good at. I had friends there that cared and made me laugh everyday. But I never hear from them anymore. Alot of it is because they're busy and we don't have anything in common anymore since I don't work there anymore. On the "good days" I try to do too much, and on the "bad days" I sometimes feel like it hurts too move. Just getting up to go to the bathroom hurts so bad I'll put it off till the last possible moment. I have also had a hysterectomy so I'm still trying to get my hormone replacement meds adjusted right.

I feel like I'm constantly fighting with my husband. I know he cares, but I feel like I'm such a disappointment to him. He keeps telling me he misses the old me. I feel like I've died and he's grieving for this old me and he can't see or understand who I am now. He keeps telling me how hard this is for him, but it's hard to feel sorry for him when I'm the one in pain. We've been married for 20 years and it's always been up and down for us. Is anyone out there going through the same things. I feel so sad and so lonely that I cry all the time. I've tried counseling, but I think it's easier to talk to people who are going through the same things. If your out there please let me know how you deal with it.

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10/03/2007 07:41
trickiwoo
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Hi, sorry to hear that your not feeling well, we all go thru this, hang in there. Things will get better, how long have you had your symptoms? Is it from the fibrom......? I have my days as well. Take care and remember there is a bright side just look around and give thanks that you have a husband. I'll see if I get any response later, ok. Dr's appt at 10am, Calif time. Take care ..... Trickiwoo
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10/03/2007 07:56
HAMPTON7026
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i understand, just went thru this with my husband of 13 years. he also wanted to have his old wife back. so after a long talk we have finally come to the conclusion that he won't ever get his old wife back. he was blaming himself for not fixing me. he was always able to fix everything and this is something he can't fix, so he became angry. he even made the statement that this was all in my head. which totally ticked me off. i decided to go to a therapist to see if this was all in my head just to prove to him that it wasn't. i did find though that talking to a therapist help me be able to talk to him better. we can't place blame on or even suggest that there at fault or they become defensive. my therapist also teached me ETF which has improved my symtoms you might should look at it. it's free at emofree.com, i also had my dr put me back on flexiril 3 times a day to help not only with the pain but also with the depression i was having. it seems to be working for me. just remember you will never be the wife you once was, but you can be a better one. he loves you but men have a hard time not being able to fix things. hope this helps.
Live one day a time, Never give up the fight!!
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10/03/2007 08:16
kychick
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Thanks for the understanding. I know I should be grateful that I have a husband who stays when others would probably bale out. I just wish I could make him understand me better. It doesn't help that he's never sick. He's very accident prone, but never sick. I'm also grateful that I have great kids who are understanding and helpful and a wonderful doctor that is very knowledgable and sympathetic. But as you know. it's hard to feel grateful during a bad flare-up when your in that horrific pain that won't let up no matter what you do or what you take for it. I had major neck surgery 6 years ago and was diagnosed with fibro 2 years ago. It's hard enough to have one thing wrong but here's my list: degenerative disc disease, bulging discs in my thoracic and lumbar area, tendonitis, bursitis, plantar facitis, carpal tunnel, hypertension,depression,panic attacks and a hormone imbalance plus I'm seeing a rumatologist next month for a possible auto-immune illness because I had a speckled ana on my last two blood tests. When I get really bad days I can't hardly eat and I hsve lost 50 lbs.(which I needed to lose, just not that way}. I was in the hospital 3 times for dehydration and that really made my husband mad. I now make myself eat something so I don't end up back in there. Sorry this was so long, I just needed to make sure I'm getting my whole story out. I'm not looking for pity, just understanding and help in how I can get my husband to understand it also before I lose my marriage as well as my health. Any and all advice is greatly welcome.
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10/03/2007 08:36
bshapiro
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Have you tried an SSRI for depression? Personally I can't tolerate SSRI's( last time I took them I lost 27lbs from nausea) but then again the fibro has made me sensitive to many drugs. Just a thought.

Not to be a nag but I think Flexeril is a bad choice to treat depression although 10-20mg a night before betime does help with alpha sleep. I think taking it during the day would just make you discombobulated (it does me) as it's a muscle relaxent. Who need's more Fibrofog?

Effexor & Prozac are in the moderately useful category for treating fibro so you could end up with a twofur.

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10/03/2007 10:07
skeedawg50
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Hang in there! It's not you!!!!! You're right, this is not you! As superior beings we have a real problem with thinking that it's all in our heads, to a great extent due to the fact that medical science is no where near as good as they say they are. Even the best surgeon is just a well-trained mechanic in truth. This is physical - not mental. We are made of tissue and blood, which is in a mechanical paradigm. You are being affected by the physical, out of whack hormones, natural chemicals and chemically abnormal responses to this condition. It is far more pervasive than society or the medical community is willing to admit. Yes, it is in your head, but its chemicals - not your rational mind going irrational. The fact that you still can communicate that something is not right with you indicates that doesn't it? Hang in there. If I am right, this has been around for a long time. Doctors are not particularly brave as a class of people. In our "modern" society they have too much too lose. Lawyers are alwys on their tails. Rarely will they go out on a limb for you, so use your own mind. Obviously it still is working prety well.
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10/03/2007 12:08
bshapiro
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Just to let you all know I cry all the time too. I say that because there doesn't seem to be a lot of testosterone here & I wanted to make sure that you all didn't think crying over the pain is a chick thing. Mostly I just kinda weep silently & My family is instructed to just ignore the tears when the roll down my face.

I can't imagine anyone who is faced with our problems that wouldn't be totally sad over the whole thing.

I've lost my career, sexual ability, partial use of my hands & feet (this means that there was no driving myself all summer & it's day by day on that now) & probably my marriage because of my physical problems & then there's always the pain.

It's been almost seven years ago that I blew my back out & I stopped pretending to work in real estate 15 months ago when I finally gave up & applied for SSDI. When I think about having to do another 20 years of this I just get very very sad. I'm better off than most financially my wife works & even if she didn't we have enough money to live on. Still I worry that I'm not the one earning & providing - I used to earn $130-50,000 a year & now even if I could work a little I'm not allowed to work at all while I wait for Social Security to approve me. I even had to instruct my broker to give my last Brokerage commission to charity because the deal closed two months after I filed my claim; never mind that it had started two years ago.

I know that I'm pushing my family away but feel so wounded I can't help it. My wife is very kind & supportive & would do anything to help me but she just can't can't deal with my pain emotionally (she says that if she had to embrace it on that level she'd breakdown & become totally nonfunctional) I can't deal with it any other way. & we are growing apart mostly due to me pushing her away but also because she & also has walled herself off from me & my sickness.

Frankly my life feels like that moment in a car crash when you know your going to hit & theres just nothing you can do about it but you still have time to think: "Oh No !"

Post edited by: bshapiro, at: 10/03/2007 14:11

Post edited by: bshapiro, at: 10/03/2007 14:12

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10/03/2007 12:49
Snoopy30
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hang in there. I don't know about you but when i'm at my worse I don't know if I'm more depressed because of things in general or more depressed because I feel I'm loosing the battle of control. Everytime I "have " to take a pain pill I feel like a failure because for so long I was able to hang on the edge without taking them on a regular basis. Sometimes the big question is what's worse the pain or the depression? The last time I was at the doctor we talked about changing my depression med. but I'm intolerant to alot of them and am on the highest dose of my current one. I am planning to go back to counsling just for the added support of an impartial ear. By the way Crying is just as theraputic for men as it is for women. I give you alot of credit for showing your emotions to your family.
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10/03/2007 13:59
kychick
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Thanks for everything, I'll check out that website.
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10/06/2007 10:40
bajaraquel
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I love all of you! Snoopy30, I've had knock down drag out battles with my doctor about taking pain meds. He feels I am hurting myself more by not taking them and I can't stand them. Talk about a mental war. If I take medication I'm losing to the disease and if I don't I'm hurting myself more. The stress of walking a tightrope every minute of the day is exhausting. The suicidal pain and depression is frightening. Our families don't understand. Every heartbeat we survive needs to be celebrated. When you have to break your life down to heartbeats to survive, it is something the "outsiders" can't understand.

I have been studying the law of attraction. It has made me flip the world around and be grateful for that one heartbeat without pain. That brings me two heartbeats without pain and so on. In my decade with this disease it has been the most effective self treatment I have found. It is hard to find anything to be grateful for with this disease but working on micro-units of time is what keeps me going.

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