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04/22/2008 08:33
ngoodeco
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I don't know if I am doing this right but I need help. my son and his wife have abandoned me ten months ago because of my impatience and critical attitudes. I was not diagnosed at the time but have apparently had fma for at least five years. Have others had family problems interacting with others because of chronic pain? I am a nurse and know the answer but I need to know if anyone else understands? thanks Ngoode
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04/22/2008 08:36
thomasann
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I get irritable at times too. I think it's just the living with chronic pain that no one understands.I have also developed severe depression as a result of the fibro and that can cause you to become irritable too. If you are depressed, seek help from your doctor and then try to explain to your family.
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04/22/2008 08:48
cadburry
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I'm very irritable and sometimes have absolutely no patience for people, even the ones I love.

My mom says I stress her out when I'm in my mode. I think it's very common for us to fell this way since we are in allot of pain. Anyone in pain is going to be grumpy.Beleive my son had his tonsils removed and I know when he's hurting because he will start getting mean lol. I just run and grab him his Tylenol with codiene and he usually is like a totally different person in about 15 to 20 minutes.

I of course don't have pain meds so I get irritable and have to figure out a way to not put stress on those around me.

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04/22/2008 09:12
ngoodeco
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Mine is frustration and I take it out on everyone. I can do very little and I snap at the people whom I get to help me I know I do it but between getting so tired and watching someone do something that I could do so much better I can't seem to help myself. I used to be such a nice person and now I hate myself. I can't allow myself to get depressed as I hate to take meds so I get projects orgami crosswords pencil drawing photography conquering the computer learning a new word every day to keep my mind in better shape than my body and trying new receipes at least three times a week also read two to three books a week it really helps doesn't make any difference what you do as long as you are doing something I moved across country three years ago to a very closed community that does not welcome outsiders so I'm on my own when it comes to amusement
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04/22/2008 09:19
ngoodeco
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you hit it on the nail I have no patience with people I whine I need help and when they do I criticize everything they do I never sat in my life and now I can't do anything but sit on my butt and nurse a good case of fanny fatigue now I feel better I cried for two days when this awful tired achy hurting condition finally had a name I swear it has gotten better just knowing I am not dying of some rare tropical disease drs have never seen before
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04/22/2008 09:28
bumpkin99
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Many family members do not believe the pain is real. it is frustrating when ur hurting and all they want to do is nag. its going to make anyone snap. Have ur son read the fibro. for dummies book. i have found it is the best book for ur family members to read so they understand you and know when to just back off. that is what is important to just say hey i'm cranky today so just let me be. you have to learn that saying that is ok, and in the end you are preventing a major battle with someone which is just going to make yourself feel worse. Make sure you do something for yourself at least once a day. something u enjoy. i have found taking a long hot bath with my music on helps me. and when ur relaxing try not to think about anything just relax i know its hard but it helps. Hopefully this helps.
karen

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04/22/2008 09:31
JustAnnie
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I guess my question is when does the depression go away? Because lets face it, we all are in pain, therefore we all can be moody. Some of us hae less support then others and that causes us to be moody to as well.

Everyone says we have to accept this illness. Okay, we have accepted that we have it, but that doesnt mean we approve of it, or adapt so well to the fact that we cant do many of the things that we once did before.

Maybe it is a bit of jealosuy and frustration.

Ive been told many of times that my husband is tired of hearing day in and day out that I have fibro. He even told me the other day when he stubbed his toe, he said ouch I have fibro in my toe. Yeah I was mad and said enough choice words for everyone in this group but fact is, I still have fibro and nothing is gonna change that or how I feel.

When the world says give up, hope whispers give it one more try... unknown
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04/22/2008 09:36
bumpkin99
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i don't think so much that it is us who have to accept the fact that we have fibro. it is our friends, families, and society. with a good support system you can overcome anything. Husbands and boyfriends should be the first line of support. they should be the first person to say honey you have had a bad day why don't you sit down and let me take care of this. not make fun of you. make sure your friends and family knows that you have fibro. if they don't understand what fibro is have them go to the doc with you or read a book. once they understand things will get better
karen

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04/22/2008 09:52
AngelBooze
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You know ladies, I have found that the depression never goes away. But the frustration and the feeling that because we have fibro we can not do anything can go away. I have had Fibro for so long and when my daughter was born my doc. said that I would be in a wheelchair by the time my daughter was 7. I was a single parent living on my own and my mother, who is 20 yrs. older, had to come and clean my house. That made me feel like dirt, something that people would scrap off of their shoes. Finally, one day I told my parents not to come I was going to do my own housework. And I did. I hurt oh god did I hurt and I refused pain pills, because alot of them makes you sleepy or high and I was alone with my baby. I kept doing my work around the house. I had to come up with easier ways to do stuff and I took alot of breaks. I would clean one room one day and then another the next. But I felt better about myself. I am still doing my own housework with the same practice as before and with help from my daughter, we have a bigger house now. But I felt ok through those years and yea I had 3/4 of my family not believe that I was in pain but I finally got to the point that if they could not believe me and if they did not know that I would not comploain about things that was not there then they did not need to be around. And when they were and they would ask how I am doing at first I would say Why, you do not believe me anyway. In time they did start to believe.

Ladies, I found out that if I would of given up on my life and just let everyone else do my housework then I would be in a wheelchair by now. I know how bad that pain is that everyone is going through but I also know that you are all very strong ladies and you can do anything that you set your mind to doing.

I hope that I have not upset anyone with my opinion and feelings.

{{Soft & Gentle Hugs}}

Rita

AngelBooze
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04/22/2008 10:00
bumpkin99
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i am so glad you have not given up. I have three children and each do their own part. they are still to young to understand that mom has problems but they do understand that i have bad days and hurt. My children are what keep me fighting. i have learned too to do a little at a time, even on good days. I am also a single mother, the problem with this is if your having muscle spasms there is no one around to rush the children away. i hate the fact that they have to see me like that. i have made sure my oldest, who is 7, knows how to call a friend to help me in this time of need. have you done the same
karen

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    waking up stiff
    CALLING ALL SPAZIES
    hello
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