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04/19/2008 15:33
Cathy0402
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YA KNOW YOUR RIGHT the drugs are the only things that are keeping me sain and having any where close to a normal life my doctor better not give me a hard time any more with the pain drugs when i go in in too weeks i better get waht i want or i am gonna lose it with him i am so done being afaird of not getting my pills that help me to stay sain and out of pain so the doctor better not mess with me cause i am not going to be mess with this time
cathryn
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04/19/2008 17:11
cadburry
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Angelbooze, I can't beleive they want to take you off of your meds.Seems to me they are tryin to take you back to square one.Can't you explain to them what you will go through without them.Not that they would be garuanteed to listen.I don't understand how or why they want to take a persons meds away when the person lives in chronic pain.If I get put on pain meds and someone tries to make me stop taking them I will say you don't know what I had to go through before I had these and you don;t understand how hard it was for me to get what I need so I can function. I hate doctors.I just can't say that enough.They always seem to forget that we are the authors of our pain, not them.
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04/20/2008 15:46
AngelBooze
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The reason they want to talk about taking me off all of my meds so because they say that sometimes the meds are what is causing the most pain. I do not think that they know what we go through. Like I am going to be able to sit and answer over 500 questions for 4 hours Yea Right that will never happen.

But I will try just like everyone keeps saying that I have to. I wish just once we could make everyone who don't believe us or say that we don't need pain meds. Let them go a week in the pain we go through and see if they will keep going without pain meds.

They would go crazy!!

AngelBooze
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04/20/2008 22:09
Mydragonfly
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I dont know what is out there that will take the pain away. Right now I am taking Lortab10 and it does not help. I took 1 lortab,1flexerell, 1klonopen. That was at about 10:30pm. it is not 1:04am and I am still awake. I would love something that will take the pain away.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
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04/20/2008 22:19
cadburry
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I have read people build up a tolerance to pain meds. Maybe you need something stronger?

I know when I had a UTI I took Hydrocodone 7.5 and it helped my Fibro pain allot.It didn't take it away but I was able to live normally for the short time I had pain meds. I'm sure in time though if I had that regularly I would have to go up a dose.

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04/20/2008 22:50
Matafleur
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True enough, people do build up tolerances to pain meds. In addition to that, if you take an opioid pain killer which includes Vicodin, eventually the body forgets how to make it's own pain killers. I did a lot of research on this when I took care of my friend, who had, had a number of back surgeries. Every time she had to have another surgery, the docs would wean her off her pain meds a week or so before so that the anesthesia and IV pain meds would work. Her pain levels would increase to the point that a hospital identification band felt like a red hot poker to her. It took a couple nights in the hospital with her to realize she was detoxing and I quickly alerted the nursing staff who gave her something to take the edge off.

Her pain management doctors would change her meds every few months as well. This was to limit her addiction to them and continue their effective pain relief.

Recently, a friend of a friend, who has FM, weaned herself off all pain meds. She has found that after a couple months, while the pain she has is still there, it has taken on a different dynamic without heavy pain meds. I mean, it still hurts, but it's not a mind numbing, bounce your head off a wall pain. She said she's happy she got off the meds. At the very least, she said that she can think a bit more clearly and has more energy.

I have another reason for not wanting to take prescription pain meds and that is the children. I cannot be an effective parent when all I want to do is sleep, am dizzy, etc. I also cannot risk not being able to wake up at night should the children need me. I do let the docs prescribe the meds to me because SS doesn't seem to think anything is wrong with you unless you have a lot of prescriptions.

Now I'm NOT saying that we all can and should, live without pain meds. I am just saying that in our efforts to find some relief, we often forget the double edged sword of prescription pain medication.

If a the docs want to take you off meds, ask them why. They may have some logical reason behind it.

Post edited by: Matafleur, at: 04/21/2008 00:51

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04/20/2008 22:56
cadburry
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I have also read that if a person is left in untreated pain for a long time that they basically become immune to their own pain fighting mechinism.

Post edited by: cadburry, at: 04/21/2008 01:03

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04/21/2008 05:37
AngelBooze
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I did not start taking anything for pain until a year ago. I never wanted to take the chance of getting addicted to pain meds. See my older brother is an addict so I dealt with the pain on my own. But now the pain is so bad that I do not want to handle it on my own anymore. I am tired of the pain and my life with pain. I finally decided that I went 16 years dealing with the pain and if I may say so did a d%%m good job of it, but I did not want to live the last few years in pain. But this Doc is trying to say that the meds that I am on could be causing the pain so he wants me to try it without for awhile and if that does not take most of the pain away then start all over again on meds that I have already taken and does not work for me. I got hydrocodone about a month ago and I did not really use it until this last week. Now I am on it 4x's daily it is 500/5 it does not take the pain away but it takes some of the sting away to the point that I am not laid up in bed. So I guess that is good. I do not think that anyone should take more then they are willing to take but I know that me myself is tired of the pain and I am ready to live some part of my life without pain and without my neck and shoulder muscles pulling every 2 minutes.

{{Soft & Gentle Hugs}} to you all.

Rita

AngelBooze
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04/21/2008 06:31
JanfromTN
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I also thought I never wanted to be on pain meds. but the alternative is to be in constant pain, irritable, and not doing anything because I hurt so bad I can't move. The pain meds. have helped me alot. I have taken different things and now I am on darvocet and flexiril and that combination seems to work for me. I am not on a high dose but itis enough to take the edge off. If I don't want to be knocked out or where I am not thinking too clearly I just take half a dose of the pain meds. and don't take the muscle relaxer. The muscle relaxer makes me drowsy (spelling?) so I don't take it during the day unless I have to. I think we all have to find our way through this and what works for us. I used to take a tylenol and get relief from headaches and such, but fibro pain for me is different and I hurt all the time if I don't take something. Everybody seems to worry about us getting addicted but for myself, I don't take pain meds unless I need them because if I have a flare or just a bad pain day I don't want to be out of them and have to get the dr. to give me more which could take a few days.

Cadburry, I don't see how you are going through this without something for the pain. I will be so glad when you get into the pain clinic and get something because I really feel bad for you and what you are going through.

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04/22/2008 05:18
AngelBooze
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I am to the point that I do want pain meds after all these years. I have used walkers when I was pregnant and canes and I never worried about the pain meds because of the way I am being treated now by the doc.'s. What I think is weird is that last night my bf told me that when I was taken to the emergency room a couple of weeks ago he did not like the way our doc acted and treated me. I do not remember to much but if bf feels that way then something happened. But it is like I do not go to the er every month or every other week so I do not need pain pills, I can walk so I do not need to park in the handicap parking and I did not take pain pills until now so I do not have it that bad (not from you guys but from people around here) But until they are in my body and have my brain then no one can tell me how I feel. I think going to this psychtherapist is stupid and I am going to tell my doctor today. I also think that I am going to find another doctor in this field. I have also thought about going to the Mayo clinic in Rochester, MN to see their specialist in fibro. I have to discuss it with my family and see what they think. But we will see.
AngelBooze
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