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04/17/2008 22:49
meleggs
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I get headaches too but mostly sinus. Sometimes sinus migranes and then I'll throw up. I usually can feel them coming on especially when the weather changes so if I take a sinus pill it will subside. I'll go for weeks and not have them then have a headache 3 days in a row. I can't live without sinus pills.
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04/17/2008 22:49
ALCSS2008
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I don't know why but some people do get nauseous with migraines. Some even throw up. I have had them where I feel better if I throw up.

I am surprised your neck didn't relax with the muscle relaxer. Mine usually does, but my headache doesn't always go away.

ccc

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04/17/2008 23:00
cadburry
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I was hoping it would relax. I have a bunch of knots in my upper back and neck.It is so painful.They put me on effexor 10mg which I heard is pretty good, but it didn't do anything.

I do try to avoid headaches by making sure I keep my facial muscles relaxed. Since I'm in allot of pain I always tend to express this in my eye brows without realizing it and I keep my jaw tight.

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04/18/2008 05:20
Nanaof4
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When I found out I had Fibro, I had pretty much already figured out myself that I had it. My sister has it really bad so I knew about the symptoms and such.

I live a healthier life style then my sister so I have to admit that I was surprized! But I decided right then and there that unlike my sister... I was NOT going to just roll over and give into this disease without one hell of a fight! I watched her go through point injections and be so doped up on pain meds all the time! She can't have a normal life! I decided NO WAY! Not for me! I WILL find a better way!!!

I learned long ago because of my sister and what she goes through that DR.s (most) really don't give a crap about patients with Fibro, they medicate them to shut them up from crying about the pain all the time.

Here is what I've done to FIGHT this;

1. change my eating habits..no white flour, pasta, rice, bread, etc...

2. NO SUGAR! I only use raw honey, stevia, or xylitol

3. No SODA

4.Good PURE WATER, I drink Distilled now!

5. Eat LESS meat! and then only Organic and grass fed

6. Very limited DAIRY and then only organic

7. Organic free range eggs

8. LOTS organic veggies and fruits

My pain got better just by these changes alone. Then I started reading about ALL NATURAL herbs and such for pain and inflamation. Tried many. Finally found one that has actually put my Fibro into remission! (It's listed on my profile page) IT's a botanical fruit extracts of ALL the magic juices. This has had an incredible effect on my life as it also took away my insomnia and osteoarthritis pain in my knees and over active bladder symptoms.

Then I started doing some all natural cleanses, colon, and candida so far! Again VERY helpful!!!

I make sure I get some type of DAILY exercise...walking, stretching nothing drastic...just movement.

I'm living proof that Fibro can be beat for the most part! Does it take alot of work and effort on MY part? YOU bet it does! But, being in remission from the pain is worth every bit of my work!

I have a motto for my life now;

"BE PRO-ACTIVE...NOT RE-ACTIVE WITH MY HEALTH"

I am reaping the benefits from this everyday!

If I depended on Dr.s, I know for a fact that I would still be in active pain today.

Do I have good days and bad days...sure - if I overdue it. Do I still get flare ups...sure, but, that's much better then being in pain ALL the time!

I encourage everyone to take your own "self" journey....read, study, try different things and find what works for YOU!


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04/18/2008 11:13
spruce1
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LOL! We sure did open up a can of worms about HA's!!

I found for me right after my surgical menop. that I had the migraines with nauesa. It could come on at a drop of a hat! Then a year later I was hit with the fibro and CFDS. I started having 3 different types of HA's and it was a nightmare for years.

Thanks for mentioning the TMJ and trigeminal neuralgia ALCSS! I'm definitly will look into that. These cheekbones ha's are killing me !!

About the natural way.....well, in my personal experiences I found that it may help few but not the majority. My sister also suffers from our illnesses and she is very Natural and eats well and takes all sort of herbs and products from a very good company. She's tried for years and spent thousands and it made maybe a minute difference in her...at least not worth all the money she has spent on it! IMO, and this is just me, not Gods, lol, I feel that for those that it may help have another underlying problem that can bring on similiar symptoms of Fibro and CFDS. That's why EVERYTHING else needs to be ruled out first! There are things like Candida, Hypoclycemia and probably many more that can respond to the natural way. This is just me folks, ok? If you have the money and energy and strentgh to be very diligent in every thing you take and cook, more power to ya!!

So, with this I'll say take care and hope you all can find some pain free moments!

Spruce

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04/18/2008 16:55
faieriemama
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When I found out I had fibro at first I was relieved it wasn't one of the other more horrible diseases I was tested for. THen I thought since it wasn't one of those how bad could it be? I found out it can be really really bad,but I don't let it rule my life anymore than I have to. The hardest part for me was giving up my career,but then I found a way to stay in the same field just not as active a job. We all have to learn to accept it and deal with it our own way,having the people on here has been my saving grace many times. As for the HA I have a permanent headache everday. SOme days I get a migraine so bad it causes me to blackout,and get nauseous. No meds that really take care of it yet,still workin gon finding one that I am no allergic to. We all walk our own path,but it sure is nice to have company along the way.
May the sun bring you new energies by day,
May the moon softly restore you by night ,
May the rain wash away any worries you may have,
And the breeze blow new strength into your being,
And then,all the days of your life,
May you walk gently through the world,and know it’s beauty and yours.
A Native American Blessing
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04/18/2008 19:56
spruce1
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Kesslmama, I really sympatize with you about those HA's! I to have suffered everyday of one type or another with them! Sometimes the strongest medicine doesn't touch them others although extremely painful just a couple of Foiricetts did the job. It can bring you down for a long time. I hope you get some help with them!

Your right about all of us have to choose their own way of doing things. Somethings work for some and not others. However, I've unfortunately experienced people who were trying to help me (but in the wrong way)would suggest things and if I didn't follow their ideas then I wasn't in that much pain or I just don't want to help myself. That's why we have to respect each and everyones way of doing things.

So enough said....these are my expereinces.

I hope you and everyone have a pretty nice weekend!

Spruce

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04/18/2008 22:59
PDW
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Cadburry,

I found out it will be 2 years this August, And I still don't understand. And it was hard for me as well. I use to very active person. Hiking and working two jobs. At first I didn't know what to think even after my doctor told me I was like. But everyday I try to clean up the house and cook and dishes and laundry although over half the time I don't get it done I try. That's all you can do. And be proud of what you do accomplish.

Trisha.


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04/19/2008 06:38
Nanaof4
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For headaches a good all natural remedy is CURAMIN.

www.curamin.com

Also, liquid cayenne pepper...it opens up the blood vessels. You can get this at most any health food store.

Add a couple drops to a cup of hot water with lemon and drink it. Start with just one dop and then move up from there as needed.

Just a couple ideas to try if you're intersted

I too used to get MIGRAINES all the time and they are horrible pain to deal with, especially when you're already dealing with Fibro pain.


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04/19/2008 19:05
JanfromTN
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Cadberry, I was diagnosed with rheumatoid arthritis first and the fibro later. I get alot more support from people if I say it is the arthritis hurting than I do for fibro. My dr. gave me all kinds of meds for RA and when he figured out most of the pain was from the fibro he now gives me a lecture on getting addicted to pain meds. But he does give me stuff for the pain.

I too have suffered from HAs but I had had surgery 3 years ago on my neck and I thought the headaches were from the problems I had with my neck. After reading about other's headaches I can see they are from fibro. because the pain goes up from my neck into the back of my head on both sides.

I have also found that when I am in pain I tighten up my muscles especailly in my neck and shoulders and this makes the muscles hurt. I take muscle relaxers everyday and they do help some, I can't imagine going through this with nothing to give me relief.

When you go to the pain clinic take information about fibro with you. My dr. diagnosed me but didn't have a lot of information about, he told me once he had even got on the internet to read more about it. He has other patients now that he has diagnosed and seems to be more up on the latest news and information about it.

I take darvocet, muscle relaxers, an anti-depressant and have taken hydrocodone for the pain. I have also tried some other pain meds. that didn't work very well but I can't remember all of them. I tried the neurontin and that didn't help me but has helped others.

How old are your kids? Mine were older when I was diagnosed and so could understand better what was going on especially when I had bad flares. I have laid on the bed and told them to not even touch me because the pain was so bad. I know how bad it is when you can't even take care of your own children. Just hang in there and when you go to the clinic don't tell them you are doing ok or whatever, tell them like it is. I have read on here that when some of the people have gone to the dr. and had a smile for him that they didn't think they were in much pain because they were smiling and not acting like they hurt. I hope this helps you some on your journey of accepting the diagnosis.

I don't say this is my disease or yours because I know neither one of us wants it and I don't want to claim it as mine. I know of a few people I would like to give it to for a few days though, mostly social security disability determination people. I know that was mean but they need to hurt a few days like us to know what we are going through every day.

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