The best advice I can give is live one day at a time.

About being progressive....ummmmm, I don't know which came first the progression or having it so long you can't deal with your life as it once was.

Personally, I've never heard it was progressive. I've had Fibro and CFIDS for 22 yrs. It hit me hard and fast. Trauma, illness or things that can overload the body can bring it on. It was all those things for me. I've seen others who think their getting better to only turn around a feel like they got hit from a truck!! It really is hard to know about this illness. Some can have a mild case others go into remission and can work and take good of their family.

I've dealt with this so long that as Sweetsuze said I beleive "we don't remember what's normal anymore"!

I can't stand for long and about the pelvic area someone mentioned....OH YES!! I can be in such pain you can't sit, move or walk for awhile.

About the part of the "back locking up" description, that's a excellant way to put it. When I was first hit my back and neck spasmed so much I ended in the hospital. I could'nt move!!!!!

Wow, so much info and problems......it's tough isn't it? Well, at least now we have the forum that can support us. Also, now adays Fibro at least is being mentioned more...which is a good thing. Still needs to do better!

Well folks, did I put you all to sleep ? I'll say so-long for now and wish everyone a decent nite and day!!

Spruce

The only thing you can do is try to take care of yourself the best you can however we can only control so much in our lives. Everybody is different but just like with MS some people struggle with it for years and are still walking while some get it and in a year are in a wheelchair.

None of us knows our future but if you know things that make you fibro feel worse like over stressing, physically over doing it, not taking care of yourself if you have a cold or flu- you could be putting yourself at risk.

Spruce

Have a good day.

Tami

I never had seizures before in my life and now I am. It scares me so bad because I am 34 years old and my worst fear is is that Im going to die and leave my children without a mom. I too much of a chicken to commit suicide but I have never been so depressed in my entire life.

It is really hard because even if YOU accept that you have fibro, many people around you do not. I have pushed my body beyond its limitation the past few weeks, trying to tell myself I really dont have this disease and that I can lift heavy stuff and work in the yard and do the farm work we have to do here at home. It is impossible.

I broke down and cried in the dog kennel the other day as I was feeding our dogs. I fell and had three dogs crawling all over me, biting at my hair, and trampling all over my body. I couldnt move or get up. I cried and cried, noone else was home to help me and of course my phone was in the house. I had become disorieanted when I fell.

Needless to say I prayed and asked God, please help me get up and get out of here and THEN have the strength to clean myself up.

I didnt dare tell my husband because I would just be "b*tching" to him inhis own words. He didnt even ask how I got the bruises on my arms and face, or the scrathes on my forehead.

So in a sense if the fibro doesnt kill you, I think the depression and the lack of self worth will.