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04/16/2008 06:07
ALCSS2008
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To my old friends and to my new ones, my new user name is ALCSS2008. I also want to let you know that I typed a lengthy rebuttal to my social security decision citing the multiple mistakes including the one that had me seeing a doctor I have never seen and waiting for reports from him. (my daughter came over to type for me and to help me write it-she is a good girl). Anyway, I wanted you to know that my husband is taking it to one of the Maryland Congressman today because he wants to see both my decision and my reasons for not thinking it was correct. My husband is also giving him this website because he wants him to read the dispair and the loss that the social security system is causing people that are sick. There are two of our friends that are facing eviction this week because of delayed SSD. It is time for us to gather what energy we can and fight for one another. The fibro awareness day is a great idea and to those who have made great efforts and gained results in this area--Yeah for you Yeah for you! Now it is time for us to E-mail do more. E-mail you congressman this website with a little note about the fact that we are losing our homes. Remnind them that we were hard working people that have paid into the system for years and cannot help it we are sick. Also tell them that when we finally get a hearing date--Fibromyalgia is not recognized as a disabiling disease (in most states) WE have to fight !!! For us and for the one to follow. We are sick and we deserve disability! I am signing off now because I have given myself a headache with all of this excitement.

I love you all and this will get better,

Sandi

ccc

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    pain meds
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04/16/2008 06:48
Tuffy
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Well good for you !!!!! Cootos all around for your great idea of taking it your congressmen!! I can't wait for your next post telling us how it went and what was his reaction. I'm really proud of you and for what you do for Fibro! You've made my day. Thanks again for doing what you do for the better of your fellow fibbies.
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04/16/2008 08:24
thomasann
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Sandi, You go girl ! Glad you are fighting so hard. We have a crummy congress here in Colorado. I have already written to ALL of them and even have one supposedly helping me. But they have done nothing. The first one was even rude that was going to help. You are right tho, Everyone should write to the congress. Something needs to change with the SSDI system. Sandi, check out SSD Coalition. Linda is trying to fight the system too and will give you tons of advice and there is a way to join her group to fight them. You can send her an email at SSDcoalition@hotmail.com !She has gotten news stations to do stories and has one coming up on CNN. Keep up the fight girl. I am right there with you. We should not be reduced to losing everything we own ( I myself have already sold everything but my bed) and we should not have to become homeless BEFORE the SS

System helps us. Try to take a look at the ssdcoalition website.

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04/16/2008 19:34
PDW
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Sandi, you are an awesome Woman, you don't let anyone keep you down. I'm very proud of what your doing. You have given me insparation to work harder. THANK YOU.

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04/16/2008 20:08
ALCSS2008
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My husband met with the congressmans secretary and showed her what I had written. They actually talked in fromt of him for a short time about what is going on, so he is aware of the situation. My husband told them that there are people that have been approved for SSD based on fibromyalgia and other associated diseases. They are interested to know ---WHAT STATES ARE RECOGNIZING FIBROMYALGIA AS A DISABILITATING DISEASE and IN WHAT STATES ARE PEOPLE HAVING A HARD TIME GETTING THE SSD TO RECOGNIZE FIBRO AS A DISEASE THAT IS DIBILITATING. I truely believe that he is behind me and is willing to help us get the word out. If you have any information you would like me to forward PM me and I will help you get that info to me. I am trying anything I can. I feel I was penalized for my medical background and I am sure I am not the only one this has happened to. It is time to shape up this system. I am to tired to shape up my body so I am shaping up social secutity.
ccc

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    pain meds
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04/17/2008 12:20
Tuffy
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I have also had to change my screen name. I went from a yellow ducky to a 'race car'. Ha, if only my body would move like a race car. To all my friends out there, Zakaroo is now retired and onto hopefully better things and times. Keep those hugs coming..I sure need them right now.
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04/17/2008 12:22
thomasann
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They are coming your way " Tuffy"

Tami

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04/17/2008 13:25
Tuffy
Posts: 233
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Cool...I need them today. thank you everybody for being my 'friend'

Hugs back to all of you!!

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