I have been asked what the FVL is on my site. I've explained it a few times, but Nicole18 just asked me as well. So......I'll try to keep it down to 10 pages I listed this on my profile and I guess that is where people are getting this thread. What is FVL better know as Factor V Leiden discovered through DNA in 1995 at the Leiden University in the Netherlands. It is a blood clotting disorder. It is genetic. I got my from mom and then my 26 year old daughter has it. What this disease does is put people with this at a very high risk for blood clots. There are all kinds of symptoms. If you know you have it there is a list of things that you MUST do and a list of things that you MUST NOT DO. Thankfully I have not had a stroke. My mom has had 5 and her entire bloodline before here all died with massive strokes. If you know of someone who had a stroke or a family that seems to have a history of it URGE them to go have the test done. It is only a blood test and not that expensive...now. When I had my blood sent in 1998 the medical world didn't have a clue what it was. But one of the professors from the Netherlands moved his practice to Muncie Indina. Now more and more hemo. docs are learning more about it. But since I was just 3 years after the findings through DNA they flew 3 vials of my blood to Muncie at $1,000. a vial. Now they do it everywhere and about 5 years ago cost 200. I'm sure it's gone down even more. That may be more than what you wanted to know but it is a life threatening disease for me. So again i URGE everyone that has had a stroke or know of someone that has encourage them to get the test. It could very well save their lives! I didn't put a lot of happy faces on this post. I have fibro as well, but as far as I know it is not life threatening. This is a deadly killer disease if you don't know that you have it. But you should get the test first. And if anyone, including fibros want anymore info. I,m loaded with information. The first hemotologist I went to back in 1998 I had to explain to him what the disease is. And it's not to much better than that now. In fact, when I had my hysterectomy 10 years ago, I had to tell my hemo the protocol so that he could give that protocol to the surgeon!! So I have lots of research on the subject, and I live with it everyday......is this the day I'm going to throw a clot? Is it just going to be a small one, a larger one that puts me in a wheelchair and of course the massive one that puts me in my grave. This is a serious matter for me......and anyone if I can help please pm or pm and ask for my email. I sure hope I didn't confuse everyone. Now the funny part is there is such a thing as "fibro fog". Those on this site know that. But there is also a "thyroid fog" and then there is the "sugar" fog with diabetes. So it gets pretty "foggy" around here sometimes. Kathy ((((HUGS))) Kathy we all need "splashes" of JOY in the cesspools of life 3:16...........real joy  |
"In the 3 months I have been with MDJunction I have developed a sense of calmness. I now friends who do not judge me because I have been a mental mess at times. It is such a good feeling to have friends I can tell my deepest thoughts and always get back to me with their support. I have never seen a therapist for long periods of time. Right or wrong, this is the best therapy possible for me. Thanks Roy for getting this up and running and making such a difference in my life. Sara" (saralaurie)
