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FMS ForumsGeneral & SupportFrustrated yet coping...
08/23/2009 01:02 PM
Holz
Holz
 
Posts: 2
Member

Hello everyone! I am recently diagnosed w/ Fibro. Dr's office called to give me the news and than proceeded to say "have a nice weekend!"

I proceeded to tell my husband that night and he just shook his head and went on Facebook to chat w/ friends and play cards.

I read some things about Fibro but still can not figure how to move forward.

I feel lost but not alone after seeing this great site and forum. So if anyone has any help they would like to pass on I am all ears and have nothing to lose Smile

Thank you for you Hugs already sent and future help!

Kelly

Reply

08/23/2009 01:27 PM  Top
hatbox121
hatbox121
 
Posts: 10500
Group Leader

Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

08/23/2009 01:32 PM  Top
homesickgranny
homesickgranny
 
Posts: 596
Member

Hello and welcome to our family. Unfortunatly, there is a long and hard road ahead of you. I think the hardest part is getting your family to understand that this is not their fault and you need them to understand that things are going to be very differant now. Teach them everything that you learn and let them ask questions no matter how difficult it is for you to explain. There will be bad days and yes there will be some good ones.

All of us have differant symptoms,differant responses to meds and we just have to hang together until a cause and cure are found.

The first and most important thing that YOU will need to do is realize what you are able to do each day. Don' t be affraid to say that you are not able to do things that you once did.

Start your own journal NOW. Put all your feelings in there, all your pains , all the things that are hard for you to do and get back on here for all the things we have learned to do that helps. WE are your new FAMILY and WE WILL BE HERE Gentle hugs and much love


08/23/2009 01:57 PM  Top
naddya819
naddya819
 
Posts: 4356
VIP Member
I'm an Advocate

Welcome to the world of fibro! I am sorry that you have been given this diagnosis as I wouldn't wish our condition on my greatest enemy. However, you have found a wonderful family here to support you and offer advice. Please, be careful with yourself and realize that you need to pace yourself now. I started a blog to help me get my feelings and frustrations out, and also hopefully to help the family members of people with fibro to better understand this condition, and those who suffer with it to know that they are not alone. It's on my profile page, the web address. Even though it's going to be tough, know that we are here as shoulders to cry on, best friends, and family!

Love,
Naddya, CPhT(R)

Gabapentin 1,200mg/day
Tramadol 400mg/day
Tizanidine 4mg/bedtime
Amitriptyline 10mg/bedtime
Meloxicam 7.5mg/day
Fioricet as needed for migraine

~~Please remember that I am not a doctor. I am a pharmacy technician, however that doesn't mean I know it all! This site should never substitute medical advice from a qualified medical professional. Check with your doctor before adding any over the counter products or herbal supplements!~~

!!My friends, this, too, shall pass!!

08/23/2009 02:40 PM  Top
mammy
mammy
 
Posts: 7217
VIP Member

Welcome to our family. You are not alone anymore!! This is the best group of people you will find anywhere, I promise. I know it can be scary and overwhelming but it doesn't mean you will never have a good life again.

You need a good doctor, should be a rheumy, some good meds (different for everyone and usually takes several attempts) and as much support as possible. A positive attitude helps a great deal. Feel free to ask us as many questions as you want to or just go through the posts and do some reading. There is almost always someone around to help, lend an ear, a shoulder or anything you may need. Also feel free to PM me or one of the other group leaders if you would like to discuss anything privately. Looking forward to getting to know you better Smile

Connie

Connie

I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice.

08/23/2009 03:46 PM  Top
michann
michann
 
Posts: 210
Member

welcome to our group. It is hard to hear that you are diagnosed with Fibro. The best thing that ever happened to me is when my hubby logged on to our email and followed the link to here. I've seen him on here a few times reading just to find things out. When I can't explain something, sometimes someone else has put it in words he understands.
Michelle

08/23/2009 04:09 PM  Top
stillhopeful
stillhopeful
 
Posts: 4722
VIP Member
I'm an Advocate

Kelly,

Welcome to our wonderful group. You will find a wealth of support here at our website. I think Michelle has a wonderful (possible) solution to people that don't understand what we are going through. I think I am going to ask my husband to read thing on this site so he can better understand. He is a wonderful guy and I love him dearly. He would do anthing physical for me, cook, clean, but the emotional support is not there. Maybe putting him on here would help him understand. Thanks for sharing that bit of into with us Michelle.

My advice would be to start looking for a good rheumatologist that treat fibro.

Gotta run, a neighbor just stopped in. Stick with us, we will be there for you all the way.

Hugs~

Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Christine

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
I am not a doctor, but I sure do make a lot of visits to them. Any information discussed with you, is just my personal experience or information givn to me. I am not your doctor, please call him/her if you are having problems.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
When you get to the end of your rope, tie a knot in iit and hold on tightly. You will get through your problems, because we are all here for you.

Previous discussions I participated in:
talking with my hubby.
Having FUN
Exercise a Catch-22

08/23/2009 04:11 PM  Top
River
River
 
Posts: 3465
VIP Member
I'm an Advocate

I am so sorry your hubby was not more responsive when you told him. Welcome to our group now your group. HUGS
Life, Love, Laughter
What I say here is in no way intended to be medical advice. Please see your doctor.

God put me on earth to do a certain number of things...right now I am so far behind I will never die

Previous discussions I participated in:
Having FUN
False Hopes
Sunday

08/23/2009 04:19 PM  Top
KB2inIndy
 
Posts: 39
Member

Kelly-

My husband is also reacting in a way that I find hard to process. The first thing he said was - "Oh, I have some of those symptoms maybe I have it too". Knowing full well he doesn't. Then, after telling him I wanted to buy a good mattress to hopefully help with my sleep, he bought a guitar. And, our money is tight.

I think they all just deal with it in their own ways. I know it's frustrating, but keep your head up. We are all here for you!

Best Regards,

KB2


08/23/2009 04:54 PM  Top
aTinaL
aTinaLPosts: 11832
VIP Member
I'm an Advocate

Kelly, welcome to the wonderful world of mighty fibromites! I may seem scary and intimidating at first, but don't worry. We're all here for you. We'll walk you through it as much as we can.

Maybe your hubby just didn't understand the scope of what this means to you. Or even what it means to him. Men process things much differently than we do.

Unfortunately the doctor's office wasn't much help, either! Do you have a follow up scheduled? Have they talked to you at all about medications? That's the first thing that probably needs to be addressed.

How are you feeling physically? Is it very bad? Are you still able to work? How long have you had the symptoms? These are all factors that are going to play into what kind of treatment you and your doctor decide on.

Thankfully you found us! The absolute best support group in the world for fibro! Yay! So make yourself comfortable. Ask as many questions as you like. We'll do our best to give you as many answers as we can.

Newbie hugs! Come in and make yourself comfy!

Tina

"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen


"All aboard the suboxone train!"
- Tina


I'm not a doctor, but I play one on tv!
-Tina

Previous discussions I participated in:
weather or not?
rashes
talking with my hubby.
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