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04/14/2008 04:51
bubbly
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Most of the time I just "deal" with the pain, but lately it's been a little more than I can handle. My rhummy won't give me any pain medicine. I recieved two tender point injections, and yet I still want to crawl under a rock. Being a teenager I am required to go to school. Don't get me wrong I love school and intend on going to college in three years. However, it is hard to wake up early, sit in uncomfortable seats all day, and then come home and work on homework. My parents and I discussed homeschooling, but I don't think I would be able to sacrifice the time I spend with my friends at school. Please, give me any advice you have for coping with pain in a work/school setting. I love my new family!
bubbly girl
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04/14/2008 06:03
cadburry
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Maybe you could ask your doctor to refer you to a pain clinic that deals with Fbromyalgia pain.

I had the fatigue all through high school. I loved going to school, but I couldn't go allot of the time because I was so tired. I required 13 hours of sleep a day and still never felt refreshed. I didn't have the pain back then like I have it now. My book bag would cause me allot of back pain, but at the time I thought that was normal, but I complained so much that my mom called the school and told them they wee making me bring way to many books home in my book bag. My mom even wieghed my book bag with my homework in it and it weighed half as much as I did.

I feel so sad to think of you being so young and having to deal with this. I'm 27 and I have been dealing with severe flares for a little over two years now. I used to get flares, but they would pass quickly when I was 18 and 19. I just thought it was normal to feel that way sometimes, but then it got bad and I could no longer ignore it.

I really hope that you find a doctor that get you something for the pain to help you through school.

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04/14/2008 06:17
redundant33
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I am so sorry that you are going through this a such a young age. High school is tough enough without adding another thing on top. I really don't have a lot of suggestions because i am kind of at the stage that you are in, but I am able to spend most of my time in bed. I do plan to go back to taking some college classes in the fall and am trying to figure out how I will deal with some of the same issues that you are.

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04/14/2008 10:20
dmpls
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Well exercise can lesson the symptoms for some/most people so make sure you are doing some everyday. Swimming is the best thing for your body! Even though you are tired and don't feel well, the energy will come once you start doing it.

Also taking hot baths is great for your muscles!! Try taking one before bed, or when you get up (if you can get yourself up early enough) and then another one when you get home from school to work out all the kinks from sitting in those hard chairs all day. Good luck hun!


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04/14/2008 10:49
meleggs
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Are there options for you to go to school like half a day? This way you could interact with your friends but also get more rest. I don't know how school systems are dealing with kids who have fibro. Obviously there are kids with other disabilities that the schools need to come up with creative options for learning.

If something like that could be done it would be the best of both worlds. Social interaction and connections with your friends but maybe par home school so you can rest and deal with your symptoms better.

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04/14/2008 11:06
ALCSS2008
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I agree, 1/2 school sounds like a gook option. You could get up and spend the first part of your day with your friends in class and then have lunch and then maybe a class or come home depending on how you school schedule is set up. I recommend staying for lunch only because alot of interaction occurs there. My daughter is a half day senior and leaves before lunch and I think she has missed out on peer interaction. Then a nice nap and you will feel refreshed for homework or an after school activity. I am sorry that you are dealing with this at such an early age. Perhaps journaling your days will help you doctor gain better perspective into how difficult and painful each day is for you. Who knows---It might help.
ccc

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04/14/2008 14:49
bubbly
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I am not able to get into a pain clinic due to insurance. I went half days back in middle school and it was quite difficult. If I went half days I would have to stay in high school for a couple more years in order to complete all my credits. I really want to graduate with all my friends. It can be so confusing. I am so glad I can turn to my family here, and not be told "you're to young to be in this much pain." Hopefully as the weather improves so will the pain, usually does. Keep the advice coming, pretty please. You all rock!
bubbly girl
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04/14/2008 15:00
JLCarter
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Bubbly,are you on any meds at all?
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04/14/2008 15:37
bubbly
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Oh yeah! Let's see...Celexa, Verapamil, Allegra, Zanaflex, Aleve, Melatonin, Vitamin-D, Vitamin-C, and Trileptal.
bubbly girl
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04/14/2008 16:01
Red2
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bubbly,

I know school is going to be hard for you. I can certainly understand wanting to be with your friends!! It seems the school could make some accomodations for you. I know they must make accomodations for those with other disabilities or learning problems. I would be cool if a cot or something could be set up in your classes so you could lie down while taking notes and listening. Maybe I'm just dreaming, but I'm trying to think of what I do that helps me get things done....like reading, writing, etc. I can get more done if I'm laying down. I love to read...but using your brain can tire you just as much as physical activity. (I read somewhere that your brain uses more energy than your muscles do. Can't remember where I heard that...blame it on fibro fog!! ) Do you have a laptop to type notes on in class? I can't use a pen very long, but I can type a lot longer. It would also be nice if one "free" period could be worked into your day to let you lay down somewhere (nurses room?) to rest for a bit before going to the next class. I wish I was more help!!! Just trying to think of anything!!

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