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04/16/2008 20:45
meleggs
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ALCS- sorry but I'd be pretty offended if my therapist "laughed" at my situation- and I do have a good sense of humor. There's nothing about what you are going thru that a therapist should say "You make me laugh".

When you are at the lowest point in your life- it's a little hard to laugh. I've been there. I can only say this....

We are so used to valuing ourselves for "what we do" instead of "who we are" it's hard to feel valuable or worth much at times. We suffer with a lot of guilt. What I've tried to do is think "I can't do the stuff the same way I used to BUT I can do something". It might sound trivial but if you had some energy or drive to bring in your mail- ya did something. More importantly is there something you can do that brings you some pleasure? -even if it's watching TV. I know it sounds stupid but moving from I'm valued for what I do to I'm valued for just being a person takes a while.

My heart goes out to you. I am really sorry fibro did this to your life. Maybe it sounds corny but we value you being here.

And Nicolelm18- I just got married and I'm 42. I got fibro at 29. I found a good husband so don't put yourself off the market yet!

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04/17/2008 01:30
ALCSS2008
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Thank you for saying those things to me. I am sad fibro did this to my life too. They say everything happens for a reason. I am waiting to see what that reason is.
ccc

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04/17/2008 10:00
Nicolelm18

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thanks, that dooes help a little. Its just that sometimes when i have way too much time on my hands, i let my mind wonder to the bad things, but i'm working on that. I decided to tell my parents how they made me feel when they said those things, and they now understand.
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04/17/2008 10:43
meleggs
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We all do.... I think it is all part of the Fibro- personality. Most of us are type A's- hard workers, driven, directed and then BAMB- can't do what we either like to do or want to do. It's good you told your parents how you feel. I'm sure a lot of my family doesn't get it but they know before I got more impaired with my fibro I was very busy and very hardworking so at least they KNOW I'm not pretending to feel this way.
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04/17/2008 12:25
cadburry
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Before I had this I worked 56 hours a week in a factory, sweating my butt off and literally working until my fingers bled. I didn't mind though because the money was wondeful and not to mention the big tax refunds working this many hours brings in! Finally thought the fatigue became to much so I got a different job that only required me to work 40 hours and thats when the pain started getting so bad. I would have my mom bring me sandwhich bags full of tyleno, and advil and leave them in my car for work. I was eating enough tylenol to kill someone and mentioned one day to my doctor that I eat allot of tylenol and how I had to eat some about every two hours. She got on to me and told me stop eating the tylenol. Then finally my right foot swelled up so big I couldn't put a shoe on and when I didn't go into work because of my foot I got fired for not having a limp when I went into work.

So when people tell me that I should work I get angry and think I WISH.

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04/17/2008 12:41
meleggs
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Right on Cadburry!!!!
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04/17/2008 12:50
ChristinaCorley
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SOMEONE MENTIONED THAT TEARS BREAK MEN DOWN AND IF WE COULD CRY EVERYTIME WE HURT TO GET SOME UNDERSTANDING..WELL I CRY AND MY HUSBAND DOESN'T BUDGE. I'M HOPING THAT SOON HE'LL COME TO. TIME WILL TELL I GUESS.

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04/21/2008 11:00
rockmygypsysoul
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people....

my sister got mad at me last week for not calling her daily after she broke up with her boyfriend (for literally the 7th time) when after i was *finally* diagnosed with fibro, i told her about it and we talked in the two months since has never once asked how im doing, feeling, etc.

anyway....

i get tired of the 'well, when you feel better, call me and we'll do something!' - like im ever going to feel better and hey! i might like to do something now, just not go clubbing. if you genuinely wanted to see me, you'd come over for lunch or even call once in awhile

my very least favorite though is when people make remarks about 'working even when youre sick' and that people who really care just 'work through it.' im only able to work full-time because the lyrica has helped SO much, but i still struggle. and i know that one day itll stop working and im going to feel useless again.

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