meleggs
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Just a quick update for everybody- especially all of you who have agreed to at least participate in a survey if my proposal is accepted. I did get an email today and I won't know until June whether or not they will be interested in it. (This is a national conference so they have quite a few to review and decide which ones they most want to fit into the time frame.) I don't think anyone has ever spoken about fibro so that might make it a good possibility they would be interested. I so appreciate all of you who have said you would help with the data. This forum has taught me so much- much more than doctors or books could ever teach about living with this condition. I really, really hope if it is accepted that I can educate these professionals about fibro and the massive impact it has on our lives. We are not complainer or hypochondriacs- we are people with a real condition that affects us physically, psychologically, socially and spiritually. We are FIGHTERS to deal with our condition. Most of us have found inner strength we didn't know we had. I want to change the FACE of FIBRO- at least for this group!!! thanks again everybody. We will find out in JUNE!!!! |
"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)
