Why wear a ribbon?

"My mom has Alzheimer's and was diagnosed at only 62 years old. She is my everyth..." (Arcticfox)

MDJunction to me

"As someone with Bipolar II, it is not easy finding people who understand. Here at MD Junction, EVERYONE understands. What an incredible feeling it is knowing that I don't have to deal with this disorder alone. MD Junction is the best resource I have found on the internet as support for just about any mental or physical condition." (Colleenj)
We comply with the HONcode standard for trustworthy health information:
verify here.
Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Join This Group
Group Home   Forums   Articles   Members (1755)   Diaries   Leaders   Guidelines
Related discussions:
<< Start < Prev 1 2 Next > End >>
04/09/2008 10:57
thomasann
Purple Ribbon
Posts: 661
Member

Send a PM
Give a Hug
My fog is soooo bad today. Is there no help for this? I can't read because I can't concentrate, I tried figuring my checking account and realized I messed up and have less than I thought. I can't remember if I took my anti depressant this morning. Awful feeling that your mind is going. Scary because my Mom had Alzheimer's. I feel like I am fighting a losing battle. I feel like I will be spending the rest of my life alone because of what this fibro is doing to me.
Reply  


04/09/2008 11:06
mamanordy
Pink Ribbon
Posts: 2218
Senior Member

Send a PM
Give a Hug
I am a bit foggy myself today. I feel like I am looking at the world through saran wrap.... I worry about Alzheimers too, thomasann, both my maternal grandparents have it and my mom is getting it.
Reply  


04/09/2008 11:51
mcbeth
Purple Ribbon
Posts: 1412
Group Leader

Send a PM
Give a Hug
Some days I think the fog is worse than the pain. At least when I hurt I know I can't do some things. But this blasted fog is terrible. I lose things all the time and never find them, can't remember what I am saying or who I'm talking to. If you say "I have fibro fog" they look at you like you have sprouted another head.

I hope tomorrow is a better day for you.

Be wise and dignified like the swan: he maintains his composure, staying unruffled on the surface, while always paddling like crazy underneath.

*♥´¨)
¸.•♥ ´¸.•*♥´¨ ♥•*¨)
(¸.•´ ; (¸ ;.♥•Mary Beth♥


Fibromyalgia is not an invisible diease, I'm right here!


Reply  


04/09/2008 12:07
cadburry
Purple Ribbon
Posts: 543
Member

Send a PM
Give a Hug
I hate the Fibro fog. I was suppose to take my daughter to sale cookies for her girl scouts one Sunday and was to call if we couldn't make it.I totally forgot about it and didn't even remember until three days later. I was so emberassed and didn't know what to say to the girl scout leader.

I also worru about Alzheimers, but no one in my family has lived long enough for me to know if it runs on my moms side or not and I don't know much about my dads side other than my grandma barley has a wrinkle at 60 lol.

It truelly is scary. I used to be so on top of everything and now my mind just isn't always with the program.

Reply  


04/09/2008 12:45
hipmama42
Purple Ribbon
Posts: 597
Member

Send a PM
Give a Hug
The fibro fog is frustrating and sometimes very embarrassing. I joke about it often because you might as well laugh as cry, but deep down I struggle with it daily and it depresses me.

I just started taking Adderall XR 20mg a day a few week ago

and it is helping a lot with the concentration and focus. Unlike you, Cadburry, my mind was NEVER with the program! People would tease me -- "you'd lose your head if it wasn't attached" and I would laugh it off, but deep down their comments hurt a lot. It wasn't that I didn't try to stay focused, but I had the attention span of a gnat unless it was something that I really loved and was really interested in.

I have had ADD symptoms (my son also has it) for most of my life, but once I hit my forties, the perimenopause, or "mental pause" as they call it, and the fibro fog set in. Then I became completely Lost in Space! My memory is still not great, but I find that I can recall names and appts. etc better and I don't have as many of those "senior moments" when my mind just goes blank and I stare off into space wondering what on earth I was talking about or about to say. I am amazed at what a difference this has made in my quality of life, because it has helped so much with the chronic fatigue and energy level too! I know this isn't the answer for everyone, but if others in your family have ADD, you may have it too. Many women are not diagnosed until they are adults. Our symptoms may present differently than the boys and men...we may have been known as "daydreamers" or "absent minded" or "spacey." I was never hyperactive or had any aggressive or disruptive behavior, I just was always losing things, forgetting things, chronically distracted and disorganized,

and not being able to concentrate on more than one thing at a time. Multi-tasking? Forget it! Women with ADD often have anxiety and depression along with the ADD because of the toll it takes on their lives in their struggle to hold down jobs and carry out difficult or boring tasks to completion.

I'm just passing this information along in case anyone here thinks they may have adult ADD and haven't yet been diagnosed.

here are a couple of links if anyone wants to do more reading or do a self screening preliminary test for symptoms:

http://www.baltimorepsych.com/Girl's_ADHD.htm

http://counsellingresource.com/quizzes/adhd/index.html

Reply  


04/09/2008 12:55
hipmama42
Purple Ribbon
Posts: 597
Member

Send a PM
Give a Hug
I forgot to mention that around 75% of ALL FMS/CFS patients both male and female exhibit ADD-like symptoms and may be helped by the medications used to treat ADD if their psychologist/psychiatrist or doctor believe that it is warranted and will supervise the medication, how effective it is, dosage adjustment, monitor side effects etc.

here's another one of those tests:

http://www.add.org/pdf/who_screening.pdf

I tried several of these online tests and had high scores on ALL of them!

Reply  


04/09/2008 23:06
summer
Purple Ribbon
Posts: 146
Member

Send a PM
Give a Hug
I don't like it when people play games with you because they know you might not remember it anyway and try to get away with crap. My husband are going through a bad time because I have been stuck in bed for a few months and he just cant take it. He is a very caring person, but today, he got mad at me for using a piece of duct tape and we fought for an hour about it. Last week it was about bananas. The price of bananas is going up and he doesn't want anyone eating more than 1 at a time, but it's ok if the kids eat a box of cookies? What? I don't want to be told what to eat and when. I had that in my last marriage. So when we fight, he uses the excuse that I can't remember and I don't remember what I'm talking about. I started making notes last year, because he asked me when did I say that? So, Maybe I'll start again. I dont want it to come to this, but I don't know what else to do.

Popular posts by summer
    MI Fibro Items
    Amrix?
    Venting
Reply  


04/10/2008 01:23
ALCSS2008
Purple Ribbon
Posts: 820
Member

Send a PM
Give a Hug
What make me really mad is when my husband does or says something and then refuses to admit that he said or did it. I bought a mini taperecorder and put it between the matresses. When he was changing the beds he found it and asked what I had it for and I told him the truth. I got it to record how mean and cruel you are to me sometimes with words and then how you say you didn't say it and I am all mixed up. He was shocked. I haven't had the opportunity to use it, but I am going to. Sometimes he says terrible things to me that really hurt me. I think it is because I am fat and he doesn't find me attractive anymore.

I forget everything. I can ask a question and then forget the answer and have to ask it again. This makes my kids crazy. I also forget to show up places so I have to write everything down. I live by my book.

Sandi

ccc

Popular posts by Sandi
    Muscle spasms
    pain meds
Reply  


04/10/2008 03:04
malaluka
Yellow Ribbon
Posts: 352
Member

Send a PM
Give a Hug
I'm sorry that you are going through all of this,I really wish that those who

do this sort of thing,could see what it's like to constantly have to go through the frustration,of trying to remember where,what,when and who you are. Sadley they have no idea and because of that they lack any understanding at all,because

this complaint can't be seen in their eyes it makes it unreal we all live with the pain and frustration daily and as you all know it's very real,I will just add that just this morning I went outside to hang the washing out only to come back inside 10 minutes later to find that I had left the hot tap running,and the water was allover the floor,Sorry if I went on a little but some people are just clueless. Love Malaluka

Reply  


04/10/2008 05:12
mesafoxx
Green-Orange Ribbon
Posts: 268
Member

Send a PM
Give a Hug
Sure does sound familar! I cant remember anything from one second to the next. oh well thats just the way it is.
***If God brings you to it, He will bring you through it.*** {{GENTLE HUGS}}.
Reply  


<< Start < Prev 1 2 Next > End >>

Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved