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naddya819 Posts: 4356
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River, I don't think we've spoken before, but still, I know that you don't deserve to be treated that way. Think about this: 30 or 40 years ago, people with arthritis may have been told that their pain was all in their heads, now they understand more. Take comfort in the fact that we are here to hold your "metaphysical" hand and give you all the love and "spoons" that we can spare! Love,
Naddya, CPhT(R)
Gabapentin 1,200mg/day
Tramadol 400mg/day
Tizanidine 4mg/bedtime
Amitriptyline 10mg/bedtime
Meloxicam 7.5mg/day
Fioricet as needed for migraine
~~Please remember that I am not a doctor. I am a pharmacy technician, however that doesn't mean I know it all! This site should never substitute medical advice from a qualified medical professional. Check with your doctor before adding any over the counter products or herbal supplements!~~
!!My friends, this, too, shall pass!!
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gratefulmj Posts: 569
Member
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River, your weight has nothing to do with you falling. These "well meaning" people see the world through the distorted lens of their prejudices. They don't have Fibro and the constellation of disorders that can go with it. So, they try to blame you for your condition. Fibromyalgia is a non-discriminatory disease. It doesn't matter what your gender, race, economic status is. True more women get it than men. But that doesn't mean that what you have isn't real. I'm so angry that people treat us with disdain and blame us for our illness. Please see a rheumatologist ASAP to see if you have osteo arthritis and also see an ENT to rule out an inner ear problem that may be affecting your balance. You are not to blame for your sickness. Don't let these people and their insensitive remarks get you done. take care, MJ |
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hatbox121 Posts: 10502
Group Leader
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River, my dear, you are apparently surrounded by morons. MO-RONS!!! Weight has nothing to do with balance issues. Cut these people completly out of your life. They are doing nothing but causing you harm. They are not nice, selfish, and just plain out hateful. You wouldn't keep on putting on a lotion that caused you to break out and be in pain would you? Don't allow them to be that lotion, constantly burning you. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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tracy6878 Posts: 574
VIP Member
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oh river, love, i wish i could reach through this computer and hug you!!! i hate the small minded, self indulgent morons who think they can tell another human being how they feel...pleas dont give up, keep going until you find a dr that doesnt have his head burried in his hind quarters...if you are falling and the dr does northing, report him to the health department in your area for neglect...it may not solve all the issues, but it might get his attention...sending you love and lots of support and hugs...~tracy  Post edited by: tracy6878, at: 08/10/2009 07:37 PM Look me up: www.facebook.com/tracys_in_love
Love, Liberty, & R[̲̅ə̲̅٨̲̅٥̲̅٦̲̅]ution to everyone!!! Ron Paul 2012!!!
Managing Chronic Pain:
Your Basic Rights:
People with chronic pain are often “people pleasers.” We find it hard to express our needs and require that others respect them. And when our needs are not met, tension is increased and our pain seems worse. But you do have the same basic rights that you grant to others.
You have the right to:
1.Act in a way that promotes dignity and self-respect.
2.Be treated with respect.
3.Make mistakes.
4.Do less than you are humanly capable of doing.
5.Change your mind.
6.Ask for what you want.
7.Take time to slow down and think before you act.
8.Ask for information.
9.Ask for help or assistance.
10.Feel good about yourself.
11.Disagree.
12.Not have to explain everything you do and think.
13.Say "no" and not feel guilty.
14.Ask why.
15.Be listened to and taken seriously when expressing your feelings.
Read and reread these rights so that you not only know them by heart, but so that they become part of your daily life.
Success is not final, failure is not fatal: it is the courage to continue that counts.
~Winston Churchill
Love and many hugs, dear friends ~tracy |
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tennsherry Posts: 28
Member
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River, I know what you are talking about. Over the past 2 years since I started having real problems due to Fibro, my Dad has driven me nuts about books that I just have to read, diets that will cure me, and just generally driving me insane. It has driven a wedge between us and I hate that it has. I really believe that it is not so much that our families don't believe us, as it is their own fear and insecurities which cause them to sometimes even lash out at us. We remind them of their own frailty and mortality. I am only able to talk with my father because I truly believe this. And, the stronger your position in your family before Fibro, the more painful and scary it is for your family to accept. I was the strongest, the mediator, the supporter, the fixer, etc., which I bet a lot of people here fall into those categories. It is who we are. We are not usually the family whiner, which is part of why it is so upsetting for everyone, including us. Embracing change and taking on a new role in one's family is hard. Just hang in there. Take care of yourself first. Find some friends that you can talk openly with about Fibro (that is where the group here comes in) and concentrate on the things you can change, which has everything to do with you and no one else. By taking care of yourself in a kind and loving manner, you will leave a greater and better impact on others Okay,that's my 2 cents worth, and then some. Hope you are feeling better. Goodnight. Sherry Post edited by: tennsherry, at: 08/10/2009 08:11 PM |
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aTinaL  Posts: 11832
VIP Member
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River, honey, they're fools and they don't know what they're talking about. Period. You need to find a way to either tune them out or put them in their place and shut them up. Please don't let this drive you back to smoking! Please! You've done something very wonderful for yourself by quitting, please don't undo it because I can promise you these people aren't worth it! Thank goodness you have a good hubby! And you've got us. I'd tell these people, whoever they are, to take a hike. how about a long walk off a short pier! Tina Tina
"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen
"All aboard the suboxone train!"
- Tina
I'm not a doctor, but I play one on tv!
-Tina |
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raynedae Posts: 8219
VIP Member
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Step away from the cigarettes!! I'm sorry River for your pain. Do you have a dx (besides fibro) for why you are falling down? Could it be related to any medications you're on? Lyrica made me incredibly dizzy. It does sound like your "younger man" is a keeper...he obviously cares and is doing his best to take good care of you. You're very lucky there! Got yourself a boytoy, huh? You go... As for the others...people are sometimes so stupid but there's really not much you can do to change their thinking. All you can do is to tell them they're wrong. Have you heard of the "Letter to Normals"? Here's one link to it and there are lots more. Some people have found it helpful: http://www.mdjunction.com/diary/my-life-37-170-170-196/a-
letter-to-normals You can always be understood here. We're on your side 'cuz it's our side too. Blessings... rayn
I am not a medical professional so please exercise common sense when it comes to my advice.
I am also NOT a lawyer so exercise common sense when it comes to my advice.
I was a bookseller so you can trust my advice regarding books :)
www.operationbeautiful.com |
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suni19 Posts: 230
Member
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Sorry I'm late responding, but I wanted you to know that you have my prayers and hugs!! I indeed think you need to get with your doctor. Falling can be caused by many things. If possible, I would see if they can get you in right away. I know the struggles that we face seem so overwhelming at times. I know that's how I feel. Hugs River!! And know that a lot of people care about you and are pulling for you!! It's so hard to not be believed. I've experienced a lot of that too. You just have to remember that the people judging you are the ones with the problem not you!!!! I hope you find some support soon!! Edited to Add~As a smoker, I know how hard it is to not smoke!! Especially with everything that is going on!! I am very proud of the effort you've made to quit smoking. Just remember you are more powerful than the cigarettes!!! Don't feel bad because you smoked, just get right back on the quitting or avoiding path again!! Hugs!! Post edited by: suni19, at: 08/10/2009 11:33 PM file:///C:/Users/Olsen/Pictures/GIFs.gif |
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naddya819 Posts: 4356
VIP Member
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River, I did not know you are an ex-smoker! Well, I am too! I quit Jan 22, 2009, and that's a day I will probably never forget! I have, since that time, smoked 2 cigarettes (yes I actually admit it!) and they were both nasty. If you ever need an ear when you have a craving, let me know. And keep this in mind: you can't change what people think about you, only you know the truth. We still love ya! Love,
Naddya, CPhT(R)
Gabapentin 1,200mg/day
Tramadol 400mg/day
Tizanidine 4mg/bedtime
Amitriptyline 10mg/bedtime
Meloxicam 7.5mg/day
Fioricet as needed for migraine
~~Please remember that I am not a doctor. I am a pharmacy technician, however that doesn't mean I know it all! This site should never substitute medical advice from a qualified medical professional. Check with your doctor before adding any over the counter products or herbal supplements!~~
!!My friends, this, too, shall pass!! |
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