Why wear a ribbon?

"My mother is dealing with chronic pain and has fibromyalgia" (worrieddaughter09)

MDJunction to me

"MDJunction to me is a life saver... when i first was diagnosed with Scheuermann's Disease i wrote a message to a page i found on google, hoping that they could help me.... you'd never know it but that weird feeling (you know that one where it feels like someone actually cares) came over me when i opened my email next day to find that someone on the other side of the world (at the American Medical Library)had read my message while i was sleeping, and there low and behold was the address to MDJunction.... well it is everything to me, i live it breathe it and love it!!!!! I have found many people who are struggling with similar issues banding together to help each other. It is the best place in the world, and i couldn't think of another place to go to meet so many lovely people....

thanks MDJunction
" (cinderella)
We comply with the HONcode standard for trustworthy health information:
verify here.
Fibromyalgia Online Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Join This Group
Group Home   Forums   Articles   Members (1755)   Diaries   Leaders   Guidelines
Related discussions:
04/08/2008 08:46
lmcclure4477
Purple Ribbon
Posts: 192
Member

Send a PM
Give a Hug
I had an MRI back in October after a month of getting these fibro symptoms. They did an MRI on my brain, thoracic, andlumbar and all came back fine. the nueroligist said that if I had MS they would have seen lesions on my brain and that all my MRI's came back fine. He also said since I am experiencing these symptoms so severely, it definitely would've showed up on my MRI. I know I should feel relieved, but it feels like anytime something new happens, I get all freaked out again. I started getting more tingling in my feet almost as though my feet are asleep. I also started getting really bad sinus headaces and dizziness that isn't going away. I guess I get scared because I didn't have these symptoms before, I just had the muscles and joing pain. I know these are all symptoms of fibro, but I always get scared that it is more than that. Please, any information would definitely be appreciated!
Reply  


04/08/2008 09:19
rkselter

Give a Hug
The Docs took many MRI's of my brain, and the short answer to you question is No. While an MRI can and will eventually aid in the diagnosis of MS, it is possible that Your MRI did not indicate that based on the lesions that they saw. But that could still lead the neurologist to a false negative. Now-Then, You should trust your neurologist, and it is unlikely that you have MS if that is what he says.

I thought that I might have had MS, but turns out it was just the fibromyalgia.

If you still have doubts you should seek the advise of another neurologist.

R.

Reply  


04/08/2008 11:09
JustAnnie
Purple Ribbon
Posts: 92
Member

Send a PM
Give a Hug
Did your neurologist suggest that you have a spinal tap done? I ask this because I had a lot of the same symptoms before my initial diagnoses of fibro and I had SEVERAL MRI's done of the brain, neck, hip, and lower lumbar spine. My last MRI was AFTER I had the spinal tap test for MS, and lupus which was sent off to the Mayo clinic and came back showing that there was some rare lymphocytes found, but was a very small percentage is what I was told by my neurologist and that I had no reason to worry.

This is what my latest MRI said which was done on 9-11-07:

There is a focal area of abnormal signal in the mid pons which is unchanged. There is a focal area of abnormal intensity within the subcortical white matter of the left parietal lobe.A STIR coronal sequence was obtained through the orbits. There is no eveidence of midline shift.These findings are considered to benon-specific and the differential diagnosis would include but is not limited to demyelination including multiple sclerosis, lyme disease,or vasculitis. Changes secondary to migraines, or small vessel iscchemic change.

I never have understood it myself. I have since moved and gotten a new neurologist. Just since this time is when I have started having seizures. I go April 22 for a Veeg.

You are your own advocate and you know your body better then anyone. If you feel that you arent getting the care you need, consult another doctor.

Best Wishes,

Annie

When the world says give up, hope whispers give it one more try... unknown
Reply  


04/08/2008 11:31
rkselter

Give a Hug
I did not know that you had those results on your MRI. It is difficult to diagnose MS. Your description makes me think that MS is a real likelihood. I am glad that you are consulting another neurologist, I know that I did, and in my case they concurred.

About your seizures. That makes one of my brows arch sharply. The Veeg is going to tell you that you have had seizures. You already know that, but it needs to be documented. Seizure is possible with MS, but it is rare.

My Doc did not do a LP, even though one of the neurologist requested it. The primary neurologist vetoed it, saying it was of no benefit. personally I would have liked to know the results of that test. Also I thought that they should have done a evoked response test, but they did not concur.

Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved