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FMS ForumsGeneral & Supportmed question:
08/14/2009 08:24 PM
Stella77
Stella77
 
Posts: 700
Member

Spart, I'm on the Guai protocol. I have been for 2 years. It has saved me from being bedridden and suicidal. I can tell you about the protocol and give you info. I'm not cured, but I'm up and about and actually have ok days and able to work part-time. Right now my hands hurt, and I need to gather some info for you but I will get it to you, ok? I read some of your diary. You write insanely well. You are all of our voices.

Stella

stella

Insanity is doing the same thing over and over and expecting a different result.
Reply

08/14/2009 08:37 PM  Top
Stella77
Stella77
 
Posts: 700
Member

Ohhh. Ok. Thanks.
stella

Insanity is doing the same thing over and over and expecting a different result.

08/14/2009 09:07 PM  Top
naddya819
naddya819
 
Posts: 4356
VIP Member
I'm an Advocate

Tina, if the suboxone causes that much weight loss, then it probably would not be the best option for me. I am 6 foot tall and only just now (on the Lyrica) reached my "good" weight of 145 pounds. It's been too hard for me to put on that weight for me to mess around with it right now.

That discount card...is there a way to get it if you don't have a printer? Mine is out of ink and I don't really have the money to get another one right now. If not, I think I have a friend I could have print me off one.

Love,
Naddya, CPhT(R)

Gabapentin 1,200mg/day
Tramadol 400mg/day
Tizanidine 4mg/bedtime
Amitriptyline 10mg/bedtime
Meloxicam 7.5mg/day
Fioricet as needed for migraine

~~Please remember that I am not a doctor. I am a pharmacy technician, however that doesn't mean I know it all! This site should never substitute medical advice from a qualified medical professional. Check with your doctor before adding any over the counter products or herbal supplements!~~

!!My friends, this, too, shall pass!!

08/14/2009 09:33 PM  Top
crimsonshedemon
crimsonshedemon
 
Posts: 148
Member

Naddya819

Have you ever had your adrenals tested?

Adrenal fatigue, Addison's, etc has similar symptoms to fibro. Just a thought.


08/14/2009 09:52 PM  Top
ldsucs
ldsucs
 
Posts: 290
Member

I have Addison's, POTS al due the infection call Lyme and babesia m. CDC positve and finally got SSDI it took seven months to win....

hmmmmmmmmmm


Previous discussions I participated in:
Go Holistic!!!
Cardiac Problems??
Colloidal Silver ?

08/15/2009 10:52 AM  Top
arretta
arretta
 
Posts: 141
Member

Okay I have read one of the books (the fibro fatigue one) and I am somewhat confused so when you send him info can you cc it to me?

My questions go into like what types of shampoo, deodorant, and other everyday topicals you can use on it. And how to research if the ones you are using will work. Is it expensive to follow?

Please Stella.

Post edited by: arretta, at: 08/15/2009 10:57 AM


01/28/2010 06:40 PM  Top
Frenchie
Frenchie
 
Posts: 1872
VIP Member

My besy riend and I both traveled 60 miles to see this pain speciaist an yes Guai was added to our Soma and Lortab and we were given a book that tells what products you can and can't us as well as foods, mints, etc. But though we no longer go because he moved even further away, Guai played a wonderful part in pain relieve and even reversing to a point...fibro! His name is Dr.John Gatell, you can see his site at:

http//www.drgatell.com if you can't get it, PM me and I will find the other address!!!!

{{{{{{ hugz to all}}}}}

Life is a mystery. It is a gift.
Don't dare miss even a moment of it.
Yesterday was a lesson, today is a prayer,
Tomorrow would mean nothing,
If I can't find you there !
**********************************************
I AM NOT CERTIFIED TO GIVE ADVICE ON PERSCRIPTION MEDICATION OR TO TELL A PATIENT WHAT TO DO FOR THEIR AILMENTS. HOWEVER AS A CAREGIVER AND YOUR FRIEND...I MAY TELL YOU WHAT MEDS I TAKE AND/OR WHAT I DO FOR THIS OR THAT AILMENT. IT'S ALWAYS BEST TO ASK YOUR DOCTOR, OR PHARMACIST FOR THE BEST AND SAFEST ADVICE!~be well~ and know that somebody cares! (( and in alot of cases: "been there-done that" )) My love, Frenchie

MEDICATIONS I TAKE FOR FIBROMYALGIA, BIPOLAR, ANXIETY, GERD, ADD, NARCOLEPSY and HIGH BP

LYRICA / 3 A DAY
GEODONE/ 2 A DAY
SEROQUEL XR / 1 AT BEDTIME
NUVIGIL / 2 A DAY
NEXIUM 1 A DAY
BUSPAR 15 MG / 4 A DAY
ZOLOFT / 1 A DAY
VERAPAMIL ( Calan ) / 240 / 1 A DAY

( by the way...for those dragging their wagon and beat on their feet...lost in a Fibro-Fog....
TRY " FOG-LIFTER" coffee by Millstone! *grin*)

01/29/2010 06:46 AM  Top
spartacus1976
spartacus1976
 
Posts: 55
Senior Member
I'm an Advocate

Yeah, I've had my adrenals checked. The docs have done more tests than I can remember...poking in places that I can't discuss in mixed company. (Ewww)

LOL

Anyway...they're all stumped. According to every test, I'm healthier than anyone they've ever seen. And yet, they all agree I'm in real pain.

It's frustrating...but my wife and I are still searching...


Previous discussions I participated in:
fibro triggers?
intros
Marijuana

02/01/2010 09:17 PM  Top
ldsucs
ldsucs
 
Posts: 290
Member

check for Lyme, babesia and bartenlla.

Previous discussions I participated in:
Go Holistic!!!
Cardiac Problems??
Colloidal Silver ?
Reply

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