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04/06/2008 23:16
ALCSS2008
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I just wanted to sign on for a minute and let you know that I got my unfavorable decision on Friday. I was a liitle surprised. I had my hearing in Maryland. Hear are a few things it said: I complain about my facial pain and pain with talking and eating, but I have gained weight and I do not look malnourished (in other words I am fat--not from meds or steriods or lack of exercise or anything), secondly---I can feed my cats and dogs ( no not kidding really) thirdly--I do not visit the emergency room and the clinics enough complaining of headaches and I have not been admitted to the mental hospital therefore I cannot be suffering from migraines or depression too bad to go to work. forthly-----I bath myself and take my meds and communicate with others therefore I can work. fifthly---My admission where the ED doctor wanted to do the spinal tap because he thought I was having a stroke was a non-acute admission. sixthly----they discounted my new primary physcian, my psychologist, my pshchyatrist both whom I have been seeing for 18 months and my pain doctors opinions. They counted my old primary who knew nothing, and hasn't seen me in one year, and a doctor I saw for 15 min as a second opinion that told me it was a psychosomatic. They twisted every report of every doctor to suit themseves, so be very careful what you say. For instance I told them in the hearing that I cannot life my grandson and the decision says I am inconsistant because I told my psychologist I cannot lift him like I would like to. Which means I can only transfer him from lap to lap and not lift him out of his play pen or his bed. Then they said I had myofascial syndrome vs fibromyalgia. I just got back from John hopkins telling me I had fibro and any way what difference does it make. He accused me of overmedicating myself for the hearing. I took regular meds and gave him a list. Then he has all through the paperwork about me taking a med I have been told not to take that I have a presciption for. It is crazy. It is like they make up there own story. I got punished for taking my kids to school, going to church and taking a bath. If you fill out papers or go to hearings make sure you stink and say you never go to church and that you hate everyone. Also, I was told although he could

understand my fears at not being a nurse anymore because I may forget, I was appoved to be a night office cleaner, a plastice applicator, machine folder operator and something esle. I am just signing on and off as I learn something new. Too upset to talk right now. I love you all and miss you terribly. I will be back, I promise.

(I hope this information helps someone)

Your fellow fighting fibromite,

Sandi

ccc

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04/06/2008 23:34
hipmama42
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Sandi, my heart breaks for you. No one should have to endure what you had to put up with from that callous ignorant power-tripping judge. If I had a voo doo doll likeness of him I would stick him so full pins he'd be screaming out for Morphine and I'd just leave him there to feel the pain we have to deal with every single day.

The whold SSD system stinks and is so backlogged and corrupt, not to mention arbitrary and capricious in their decisions. Some people with the exact same symptoms as you, or even fewer, get approved right away....

or at least after the first denial at their first hearing with a judge.

well that is rare, hardly anyone gets approved right away even if they are quadraplegic, and I'll bet that judge you had would tell a quadraplegic they could work and make a living designing and drawing greeting cards using their mouth...or have their trained helper Capuchin monkeys design the cards for them! Some of those things in his decision are just as outrageous! I think that some of these judges must pick people from time to time to make an example of to scare off other people from appealing their first denial from SS. They seem to want everyone to just give up and go away. That judge is a horse's a**! I am angry just reading about what he put you through and his arrogant attitude about fibro and disability.

I hope you'll appeal his decision and keep fighting. I forget, did you use a lawyer this time? I hope you never have to go through an ordeal like this alone.

please keep the faith and be kind to yourself. In NO way is this your fault and I don't believe anything that you did or didn't do or say was going to change this judge's mind! Probably he had his mind made up when he first saw you, or maybe he was just in a lousy mood and having a bad day and taking it out on you. So not fair...when it's just a matter of luck getting a "good" SS judge or a loser like this guy.

you will be in my thoughts and prayers. I hope you can get some sleep...

-Sherry

Post edited by: hipmama42, at: 04/07/2008 01:37

Post edited by: hipmama42, at: 04/07/2008 01:39

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04/07/2008 05:08
cadburry
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I can't beleive this judge. I really wish he had to feel the way we do everyday and then I want him to quit his job as judge and I want him to start cleaning in the night.He's a friggin idiot!

I'm so sorry that you had to get such a lousy judge. I don't know how feeding cats and dogs compares to a job? I'll keep you in my prayers.

gentle HUGS

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04/07/2008 05:21
JustAnnie
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I wanted to stick my two cents in to this and say that the judge in your case is a total and complete idiot. I have five kids that need to be fed everyday, so does this mean they starve, because IF I CAN FEED THEM, I must be able to work? I also am awaiting disability, and like most I am prepraid to be turned down the first time. I've also contacted allsup, which have a 97% approval rating in getting people their disability.I am going to use them in the appeal that I am almost sure will happen.Although I was told I had a good case, with my fibro and seizures and hearing loss, five kids and living on my husbands income alone. I dont want to get my hopes up for a huge dissapointment. Hang in there hun. Karma is real and I hope it hits that judge full force! Your day will come and what a beautiful day it will be and hopefully pain free.

Gentle Hugs,

Annie

When the world says give up, hope whispers give it one more try... unknown
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04/07/2008 05:56
mamanordy
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Oh gosh Sandi I am so sorry. That judge is an idiot. I do know that they want a person not to be able to do ANYTHING. When I filled out my forms for daily living, I put didnt do housework, dh did, didnt cook, dh did, didnt take my dogs out, dh did, needed help with bathing, needed help to remember my meds, dont drive anymore, etc etc. In other words I can play their game.

I too wish I had a voodoo doll of him, I would stick those needles in so far, he would be WISHING and PRAYING that he would have been nice to you.

Walk a day in our shoes is what I always say. You are going to appeal, right?

Love ya and miss ya

Debbi

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04/07/2008 06:38
thomasann
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Sandi,

I am so very sorry and that judge needs a swift kick in the ****. This SSDI system is so screwed up. I was also told at my first denial that since I still have some movement. I should be able to work. I agree that I hope Karma comes around and attacks one or more of these judges with this fibro and some of these other diseases we fight everyday. I did hire an attorney when I appealed in Dec. 26 and am still waiting for a hearing. I will keep you in my prayers. Find a good attorney and KEEP FIGHTING>

Your friend,Tami

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04/07/2008 06:52
rkselter

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That sucks. Going to court is a crap shoot, I get it. It shouldn't be that way. I think that some judges think that their job is to single handedly solve the social security problem.

Don't give up.

I have resolved that I am never going to give up, so long as air moves in and out of my lungs.

This is really an up hill battle.

You are in my prayers...

R.

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04/07/2008 07:26
Tuffy
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Sitting here this morning, drinking my coffee and typing a reply to you, OH WAIT...I'm not suppose to be typing on a PC..that means I can type therefor I can work. Yeah right Judgy POO! I feel so bad for U Sandy, and everyone else going thru the SSDI process. Been There...Done that!!! First off, I finally won my case about 7+ yrs ago. What a bloody fight it was too. First off, U might as well know (But DON'T get discouraged by it) you will almost "always" get turned down/denied your first 3 times!! It was my 4th time that I then sat in front of a federal judge. But the hitch was I had to develop a few more diseases to get approved. Did U know they actually have a "list" of diseases which R on the 'approval' list? Yeah, I had to aquire 'Addisons Disease'...not something I had planned for. I have a file about 8 inches thick of paperwork, depos from doctors, etc, and you really really have to fill out that paperwork just right. If I can find my file, I'll be glad to help anyone filling out that crap. It sucks that a lawyer will take 1/4 of your upright settlement (yeah, you get backpay ) but their fee is worth it. Ah, I could go on for hrs, but will spare U. I'll keep U all in my prayers.
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04/07/2008 08:03
LibraJo
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Sandi,

You must be going through hell right now, I'm so sorry.

Please don't give up, is your lawyer going to appeal for you? And did your judge have a vocational expert at the hearing?

I understand you are so upset & flustered right now, when you are up to it, write back please & let us know how you are doing.

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04/07/2008 08:16
Mydragonfly
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Sandy, I am so sorry you did not get your ssd. The even turned down my mother-in-law. She had a stroke and has limited use of one side of her body.

You just have to keep trying. You just have to learn how to play the game better then they do. I will keep you in my prayers. Please dont give up.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
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