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04/06/2008 22:48
cadburry
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This made my blood boil

http://highlytrainedmonkey.blogspot.com/2007/05/happy- fibromyalgia-awareness-day.html

Post edited by: cadburry, at: 04/07/2008 00:49

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04/07/2008 00:14
hipmama42
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Cadburry, this girl's blog, this "compassionate" E.R. nurse who has a superiority complex and is a legend in her own mind and most of the smug, clueless idiots who commented and supported her opinions made me so angry I had an asthma attack. I rarely have asthma attacks any more!

But hey, when I was in junior high, asthma was one of those "emotional" "psychological" conditions students "made up" "pretended" or "faked" so I could be lazy and get out of gym class. It was a stigma just as a fibro diagnosis is now.

Today if anyone told an asthma patient "this is all in your head, snap out of it, relax, and pull yourself together and quit whining and trying to get out of doing work!" this person would be under attack immediately by the entire medical community.

Note that this "humorous" woman who enjoys "making fun of dumb people" has someone's comment on her her blog with the top 10 "money making non-existent diseases" and they include depression and bi-polar disorder and bypass open heart surgery.

I know I should not get this worked up over ignorant, stubborn, self-important, uncaring medical "professionals" , but unfortunately their attitudes are common place in the E.R. Anyone NOT dying of a heart attack is "faking it" or, if they are elderly a "GOMER" -Get Out of My Emergency Room" who sould croak instead of waste their precious time because they are SO important and only want to deal with adrenalin pumping life and death situations....not common, ordinary everyday suffering like most ER patients have. Patients who are drug addicts, alcoholics, have any mental condition requiring meds, and anyone with an "invisible" disorder like fibro or asthma are said to be "drug seekers" or "drama junkies" just seeking attention.

They shun the poor who are on Medicaid, the weak, the elderly, the mentally infirm, and judge anyone guilty of alcoholism and addictions of any kind....their attitudes are often "these people deserve to suffer."

I know this through vast past personal experience, and incompetence in more than one area E.R., not being taken seriously and treated rudely, nearly resulted in my death from status asthmaticus....a severe asthma attack that is often fatal. Finally I found one ER doc to believe me and run the right tests to find out how serious my condition was.

I am rambling, but it illustrates the callous, smug, arrogant thinking of many docs and nurses in the E.R., at least, those who have never been seriously ill themselves. This nurse who writes this blog takes the cake for cruel humor at other people's expense, however. No amount of scientific or medical "proof" that fibro is a "real" syndrome is going to change her mind. It would do no good to send her published medical studies from serious prestigious medical journals like The Journal of Rheumatology -- she would still have some excuse not to believe the conclusions of these studies and the hard evidence of the changes in our brains and the eleveated levels of Substance P in our spinal fluid. Her mind is closed to the truth. I pity any patient she comes in contact with...and I hope I never have to go to the E.R. again in my life! It is a horrible and often humiliating experience.

Sorry about the novel. My blood is BOILING because I know that so many medical personel feel this way about fibro! Like that doctor who wrote the New York Times article...

How did you find this woman's blog, by the way?

Post edited by: hipmama42, at: 04/07/2008 02:21

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04/07/2008 04:31
cadburry
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I had heard on here so many times about people with Fibro being treated as drug seekers so I was looking for a personal story of someone who was made to feel this way and this blog was one of the first things that came up.

It totally ticked me off. I know this is bad but I wish that this nurse gets Fibro some day!

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04/07/2008 05:08
hipmama42
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I was thinking exactly the same thing! She would have to eat her words in a hurry! I don't think this woman is strong enough to handle it...

On a more positive note, I found a good blog from a fibro sufferer and awareness advocate in England who publishes POSITIVE stuff about fibro and finds the latest research articles in the medical journals.

Here are a couple of those articles published in her blog...I'd send them to our nurse blogger "friend" but I'm sure she'd still find something to negate the validity of these articles, like the studies were too small or the researchers were paid by the drug companies to manipulate the results.

http://linzworld.wordpress.com/2008/03/29/glutamate-and- fibromyalgia/

http://linzworld.wordpress.com/2008/03/27/unmyelinated- nerve-fibres-in-fibro-patients-a-preliminary-study/

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04/07/2008 05:33
cadburry
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Thats some exciting info!

It's going to be wonderful when they come up with a way to prove to idiots like that nurse that Fibro is real.

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04/07/2008 06:25
sweetheartsuzee
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She needs a life....dontchya think???
~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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04/07/2008 07:17
cadburry
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For sure....
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04/07/2008 07:48
Mydragonfly
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People like this so called nurse are all over the place. I wish we could band them from contact with people.

That blog just upset me. I am having trouble putting my wourds together.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
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04/07/2008 09:33
psk
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Not to complain...but I also have lupus and I run into these people just as often. "You don't look sick..." I have just as many problems finding drs to believe my symptoms even though I do have blood tests to prove it. I have also had more problems getting the right meds b/c all the drs are afraid of interactions. They figure it's safer to give me nothing for pain.

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04/07/2008 14:21
hipmama42
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That would be horrible to have another "invisible" disease condition that causes pain in addition to the fibro, that doctors think is "invented" by patients. You have a right to complain! I've gotten that from many doctors over the years, that my asthma is caused by my "nerves" and anxiety problems and if I'd just learn to chill out and tell my mind to relax, I'd never have any problem with it! I guess I am a bit surprised that doctors respond to lupus like they do to fibro, because there are blood test markers to identify and confirm it. I am not surprised that they are afraid to treat though, docs are afraid of malpractice lawsuits

and it's easier to just pat you on your head and send you on your way or pass you along to another "specialist" who also does next to nothing.

Arrrrrgh!!! I'm sorry that you have the double whammy, fibro and lupus to deal with, it must be extremely stressful and frustrating trying to find good and compassionate docs who are not afraid to treat pain.

Have you seen that sight for lupus sufferers --

http://www.butyoudontlooksick.com/

and all of those with "invisible" chronic diseases? lots of good stuff here.

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