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Hi everybody --i am so amazed at the support and luv here. I come from a 12 step program - i am 17 yrs sober - and know how much support means. Sharing experience strength and hope. I hit my 2nd bottom with chronic pain about 4 years ago when I was nearly medivac'd from vacation wiht ice bags taped all over me. I still suffer a great deal but have come far from where i was. The things I had learned in recovery about admittign powerlessness, faith and acceptance --have been hard to apply to something so baffling, debilitating and confusing. But i am grateful for the foundation, support system and faith it taught me to handle that disease one day at a time. That is the only way i can hanlde this one. Also - i know fibro is much more progressive than Myofascial Pain. I know that 2 diseases are often linked and i see CMP mentioned here a lot. I was told that CMP has a chance of being reversed a bit and that has been the case /me. I hope that offers someone else hope. I have been told that i have CMP first and foremost. I am in pain daily and medicated for pain daily just to have quality of life and i am so grateful that it is avail to me. I guess I wanted to offer out there what has helped me so much (besides an incredibly loving husband and a lot of faith). I am not sure if this stuff below would help many because I know that many can't bear touch. But for anyone just gettign started or dealing with the idnciators for CMP these are the techniues that helped me find releife in varying degrees. I hope it will help someone else -- I know this is common: I went to 9 nueros and spinal etc, pros before i found the doc i am with. I found him by using over and over again the online resources - and all of the Pain organizations, desperate, and dialing for dollars. I found my guy at the Myopain Society website. i live in DC area. I drive 1.5 hrs biweekly but it is worth it. My practice www.painpoints.com and www.mypainspecialist.com (Annapolis and Bethesda (NIH) That was the first thing that helped me feel like i was not kneelign at an altar of pain that was startign to define me. Research -- research -- I read everything. What HAS helped: Dry Needling (i did this 2x a week at first year) Trigger Point injections (2x a month) Botox injections (both types - one worked one didn't) Facet blocks Japanese Taping technique Iron (Feronal) just for muscles, Vitamin B12, Folic Acid Theracanes!! -- I CANNOT SAY ENOUGH ABOUT THIS DEVICE! IF you have taut band and tight TRPs it is extraordinary! Cheap easy and very effective. Balls!! of many sizes (tennis, racquet ball) i use to lay on behind shoulders, balls of feet, buttox... little things that really don't relive pain too, too much but make me feel better: Moist heat packs - microwave with velcro strap around my knees. "Sleepy Time Tea w/Valerian' by Celstial Seasoning (double bag) Really hot bath with ecualyptus muscle soak. (i think it just awakens my senses) Lidocain patches Lidocain creme I have taken many of same meds everyone here has taken -- BUT BAR NONE - I get the most releif emotionally from my husband and my faith. I am 46 yr old, and i am currently in bad place -stuck in bad cycle that has lasted for months. I trust my docs and am trying ETOIMS. I hope it works. it is R&D still. It helps me to remember what actually did WORK! pls forgive my typing . ".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...." |
"MDJ has changed my life in soo many ways. I don't know where I'd be today without it! :)" (sweetheartsuzee)
