Why wear a ribbon?

"My mother is dealing with chronic pain and has fibromyalgia" (worrieddaughter09)

MDJunction to me

"For me MDJunction means I am no longer home alone all day. It means having friends who not only understand me but care for me as well. I am grateful to MDJunction for creating a world where I fit in just perfectly." (Yvonne802)
We comply with the HONcode standard for trustworthy health information:
verify here.
Fibromyalgia Online Support Group
Fibromyalgia Support Group
A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together.
Join This Group
Group Home   Forums   Articles   Members (1756)   Diaries   Leaders   Guidelines
FMS Community FMS Support Forums General & Support burning feeling along with pain ????
burning feeling along with pain ????
Related discussions:
<< Start < Prev 1 2 3 Next > End >>
04/01/2008 07:24
lisavht
Gold Ribbon
Posts: 351
Member

Send a PM
Give a Hug
 Thanks everyone for your replies! I am still waiting for the nero to call me back. I do think I have fibro unfortunately. It makes way to much sense to me for all the symptoms that I have. What helps the pain in your shoulders? what helps the burning to go away? I take anexia for my migraines but it didn't help the shoulders or burning. (I took the pain pill because I had a migraine) (I was in hope it would help that as well)

Anyway my friends have said they have noticed me getting sicker more and more. Is this going to get even worse? I hope not! I think my nero was kind of thinking that that is what I have since the last time I went there she was thinking about trying me on Lyrica. I wish she would have told me though! I hate this guessing game.

? for everyone....How did your symptoms first start out and where are they now. Were they gradual?

Lisa
Reply  


04/01/2008 07:38
Mydragonfly
Purple Ribbon
Posts: 1087
Member

Send a PM
Give a Hug
 I think I have had fibro longer then I can remember. back in high school I started with back pain, legs burning, and I got lots of migraines. It just keep getting worse. It just seemed like every time I went to the doc, they told me something else was wrong with me. finally in 1997 they told me I had fibro. I had never heard of it and did not know what to do. I have been dealing ever since.

dragonfly

The Dragonfly brings the light and color of transformation into your life.
To learn more about Fibromyalgia
www.fmaware.org ***
www.webmd.com/fibromyalgia *** www.niams.nih.gov/hi/topics/fibromyalgia/fffibro.htm ***
www.painfoundation.org *** www.rheumatology.org/public/factsheets/fibromya_new.asp ***
Reply  


04/01/2008 10:45
takeitaway
Posts: 39
Member

Send a PM
Give a Hug
 Do you ever get this burning and weird creepy crawly feeling that goes up and down your spine? It kind of feels like bugs crawling up and down the spinal cord. Of course my doc looks at me like I am nuts when I tell him this one............
Reply  


04/01/2008 10:49
lisavht
Gold Ribbon
Posts: 351
Member

Send a PM
Give a Hug
 Nope no creepy crawly's here, but I do have a friend that has ms and she says she gets that. So it is not only you! I hate when dr's do that sort of stuff.
Reply  


04/01/2008 10:59
takeitaway
Posts: 39
Member

Send a PM
Give a Hug
 Does any doctor ever tell your friend what the heck causes this creepy crawling up and down her spine?
Reply  


04/01/2008 11:00
lisavht
Gold Ribbon
Posts: 351
Member

Send a PM
Give a Hug
 Ok the Nero office just called back and they are going to call in Nerontin. I know a lot of you all have tried this! So what am I in for.........Just wondering? Then I told the nurse that I was getting low on my fiorecet and she told me it is way too soon. I told her I have 5 pills left. I was told to take them as soon as I feel a migraine coming on. Which of course I can only use them on a pain level of 4 or less. Anything higher then I need to take my other med. Well what am I supposed to do. She said I should limit my self!!!!!!!! WHAT THE HECK!!!!!! Do I say ok today I need to have a really bad migraine and tommarrow I won't! hOPEFULLY THIS nERONTIN HELPS AND THEN i WON'T HAVE AS MANY MIGRAINES. Opps sorry I hit the caps button. Ohhh well! You all know what I mean. LOL I wish I would have put it to her like that. Why do I think of things after the fact. I hope I am not in for another disappointment with trying another medicine.
Reply  


04/01/2008 11:03
lisavht
Gold Ribbon
Posts: 351
Member

Send a PM
Give a Hug
 No but she does take a certain med that helps with it. I am not sure what it is?
Reply  


04/01/2008 11:17
takeitaway
Posts: 39
Member

Send a PM
Give a Hug
 well it is nice to know I am not alone but I don't have MS so that is kind of strange.........
Reply  


05/12/2008 09:11
Sandradee
Lavender Ribbon
Posts: 24
New Member

Send a PM
Give a Hug
 When I am sitting too long or especially while driving the back of my thighs feel like they are on fire. I didn't realize that this was part of the fibro and have never brought it up with my doctor.

I see a holistic doc in Cincinnati and he uses so many things but I have not found relief yet. Are we allowed to ask about who uses what docs in our areas? If so, does anybody have a good rheumie or whatever around the Cinncinati area. I live in Blanchester by Clarksville and Wilmington.

If we are not allowed to ask this please disregard and please don't kick me off, just let me know.

Thanks

Sandra Dee
Reply  


05/12/2008 09:21
Fletch2ya
Orange Ribbon
Posts: 1074
Senior Member

Send a PM
Give a Hug
 Hi...Sure we can talk about our doctors and our experiences...

It would be nice not to bad mouth any doctors but ....

If you want to know about a doctor ask...or who is seeing doctors in what area...

Craig
Reply  


<< Start < Prev 1 2 3 Next > End >>

Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved