Midnyte
Posts: 933
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First of all I would like to send you a huge virtual hug. I lived with pain for several years because of drs. just as you are describing. It got so bad, I began to wish they would get whatever I had so they would understand more. Finally, after being out of work for a month with a migraine and pain all over, I found a neurologist that told me I had fibro and put me on some pills called pamelor (spelling?). They helped a good deal but he would only prescribe them for one month, so it was back to the pain 24/7 and no one really believing me. I was told "fibro is a diagnosis that is given when they don't know what is wrong with you or don't want to say you're a hyprocrondriac (sp?)". I eventually moved to CO where a nice lady dr. began prescribing some pain meds for me and tried to get me into a pain control clinic which was backed up for several months. In the meantime, (getting back to the neurontin point), they suggested she try me on neurontin to help control the pain and some of the muscle spasms I was having. It made me sooooo much tireder, didn't really help with the pain or muscle spasms and as another said, made me feel sick and vomiting quite a bit. They told me to continue taking it for at least 3 months to get it regulated. I did, sadly and continuing with the sick feelings and extra tiredness, until I couldn't stand it anymore. I pray your drs. will find the right medicines for you and ease your pain. My pain control dr. gives me shots in my low back, shoulder and knee joints, 2 pain meds, a pain patch, and a muscle relaxant and I am still in pain, so I can only imagine how much pain you are in without anything but neurontin. My dr. says swimming will help a lot but I am deathly afraid of water deeper than just above my knees so I can only do partially as he instructs. Perhaps this is something you could try? I wish you the very best of luck! "A pearl is a beautiful thing that is produced by an injured life. It is the tear [that results] from the injury of the oyster. The treasure of our being in this world is also produced by an injured life. If we had not been wounded, if we had not been injured, then we will not produce the pearl."
Stephan Hoeller
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"As someone with Bipolar II, it is not easy finding people who understand. Here at MD Junction, EVERYONE understands. What an incredible feeling it is knowing that I don't have to deal with this disorder alone. MD Junction is the best resource I have found on the internet as support for just about any mental or physical condition." (Colleenj)
Two nice ppl I could have possibly met with in person to vent. *lol* I am lucky to have a pain control doctor who subscribes stronger meds than many seem to be taking on here. I take 2 strong pain killers, robaxin for muscle spasms, and lidaderm patches that I can use up to 3 at a time and they can be cut to fit the area of pain. I am still in lots of pain and cannot understand how any of you deal with only taking tramadol and milder meds. If I were back on those type meds, I would not be able to walk at all and not sure I could handle living. My pain control dr. told me in the beginning, if you need the medicine, you won't become addicted to it. We are trying to manage my conditions/ailments/diseases without increasing my meds more than once a year. I hope I don't seem to be trying to make my situation worse than anyone else. After awhile of living with pain, you learn to read between the lines and can imagine how much pain others are in and that is one reason I am sending out HUGE hugs, my best thoughts, and prayers to anyone dealing with illnesses/conditions/ailments. I include all three because I hear ppl use all three terms.