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aTinaL"To me, Mdjunction comes down to motivation. The support and information I have found here motivated me to take a very proactive stance regarding my illness. This led me to find medication and doctors that are giving me my life back.
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FMS ForumsGeneral & SupportPain is a habit for me!
07/16/2009 08:51 AM
aTinaL
aTinaLPosts: 11832
VIP Member
I'm an Advocate

I just wanted to tell you guys about something really strange that I have noticed. About myself.

Most of you know that I'm on a new drug that has virtually eliminated my pain. You know how high I'm flying on that, just to not be in pain! It's what we all dream of.

Here's the weird part. I notice that I still talk like I'm in pain. I got so used to it. For instance, I'll say, "I get this pain when I do that." Know what I mean?

I guess I need to start prefacing those statements with "Used to." It's very weird.

I wonder if part of it is that in the back of my mind, I'm worried that this is only temporary. That the drug will stop working like they always seem to.

I feel a little guilty, too. Because I know so many of you are still in so much pain. I'd give anything if you weren't.

Those of you that have tried getting my drug from your doctors and haven't been able to... that completely angers me and breaks my heart.

I mean, I'm sure that it probably doesn't work for everyone, nothing does, but you should absolutely have the chance to try it.

Having access to pain meds that could potentially stop or reduce your pain, well that should be a constitutional amendment!

Yet, thanks to people like Michale Jackson, Anna Nicole Smith, and all the others, it would probably never happen. Which is utterly ridiculous. That's a commentary on rich people. Regular people could NEVER afford to be that kind of an addict!

Sorry, I started out just wanting to tell you guys something weird that I had noticed and it turned into an editorial!

Anyway, I wish for each and everyone of you a deliriously pain free day Smile

Smooches! Tina

Tina

"Calm down! Let's cook some carrots!"
- Jim, Hell's Kitchen


"All aboard the suboxone train!"
- Tina


I'm not a doctor, but I play one on tv!
-Tina
Reply

07/16/2009 09:03 AM  Top
hopefull1
hopefull1
 
Posts: 1965
VIP Member

Tina, this may sound wierd but I think it's true for those of us that have been in pain for so many years. My grandmother says that she wouldn't know she was alive if she didn't have pain. It's almost like pain becomes a companion. Like a really mean sister. It's something that is always there, like you can count on it to show up everyday no matter what else happens. I'm sure this sounds bizarre but I think it will take you time to get used to going without it. I have an appointment next week with pain md to see if I can try your med. We'll see what he says.
Steffanie
Do you or someone you know have Von Willebrands Disease? Come join us at http://www.mdjunction.com/von-willebrand-disease

Please note that any advice given is not a substitute for getting a diagnosis from your doctor.

07/16/2009 09:17 AM  Top
emendoza23
emendoza23
 
Posts: 2221
Senior Member

Good Luck Steffanie. I sure hope you are able to try it. I can not wait to see my new PM doctor next month, I will have so much information and knowledge by then that hopefully that will help my visit with him.

Elizabeth

The best kind of friend is the kind you can sit on a porch and swing with, never say a word, and then walk away feeling like it was the best conversation you've ever had.

I am just like you and I am on MDJ for support and true friendship. Please, always consult with your doctor about medical advice and medication, never take one's opinion regarding your most precious asset which is your life.

~Elizabeth~ :)

07/16/2009 09:26 AM  Top
mammy
mammy
 
Posts: 7217
VIP Member

lol Steff on the mean sister, I have a few of those that I'm willing to share.

Tina, we are all so happy for you and don't you dare feel guilty. You suffered long enough and I pray that you continue to live pain free. Good luck to both of you Liz and Steff...that would be great news if you can get it and it works Smile

Connie

Connie

I am not a doctor and do not play one on these forums so please consult your physician for actual medical advice.

07/16/2009 10:38 AM  Top
michann
michann
 
Posts: 210
Member

definitely don't feel guilty, I am so happy for you
Michelle

Previous discussions I participated in:
need to vent
marriage
when to take meds

07/16/2009 01:19 PM  Top
mvgallegos
mvgallegos
 
Posts: 439
Member

Tina,

I forget what is the med called that helps you so much? I need to ask my nuero about it.

vivian


Previous discussions I participated in:
Vrrooom!
Pain Med(s) Question
social security

07/16/2009 01:30 PM  Top
hatbox121
hatbox121
 
Posts: 10501
Group Leader

Tina! You are so crazy! Why are you feeling guilty for not being in pain? Wouldn't you be really happy for me or any other person on here who wasn't in pain even if you still were? Silly thing!
Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt

Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).

I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences.

Previous discussions I participated in:
Pain
doctor visit...update
Hi everyone!

07/16/2009 02:16 PM  Top
0hCasty
0hCasty
 
Posts: 2917
VIP Member

Tina I can totally understand what you mean. The pain has been such a constant companion for so many years that you don't trust that it's really gone. I can so imagine that is how I would feel too.

I am so happy for you that you don't have this pain anymore and I certainly don't want you to feel guilty about not having it. You are the light at the end of a very long tunnel for us sweetness. Don't you forget that Wink

Love,
Casty


We are NOT insane, we are in PAIN!

Who are the Jones' and why do we care what they think?

07/16/2009 02:16 PM  Top
Adewyn
Adewyn
 
Posts: 4969
Group Leader

what are you taking Tina...Savella?

and never feel guilty for not being in pain...Good for you that it is working..Veyr happy for you


07/16/2009 09:21 PM  Top
DianaOz
DianaOz
 
Posts: 171
Member

Yeah Tina Ballerina! Be pain-free and feel great for it possum!!!

Ozzie

DO WHAT MAKES YOU HAPPY,
BE WITH WHO MAKES YOU SMILE,
LAUGH AS MUCH AS YOU BREATHE
& LOVE AS LONG AS YOU LIVE.
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