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03/19/2008 23:06
sweetbean
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My dr. wanted to try me on a new med, Kadian, which is a time released morphine sulphate. I told him several times, I had been on lower doses of it, and hade morphine through an IV before and it just doesn't work in my body. So, he convinces me to try it. So I go from taking 2 7.5-500mg vicoden and using a 50mg fentynal patch to this one 200mg pill. I take it....I'm in excrutiating pain!....It's not working....help! and now I'm withdrawing...I call my dr. Tell him , well the nurse, who is always the middle man, what's going on. I ask him to put me back on my old meds. He replys with ,no I'll up the Kadian 100mg. So I reply with , no...the Kadian does not work. So he reply's with, Kadian is a very strong medicine, and if it's not working then nothing will work, and I'm not prescribing anything. So now I'm p***ed! And very sick. You can't just stop meds you've been on for 2 years, what the hell is he thinking? So now I ask to talk to his superior. They put me in touch w/ this woman, I tell her that i'm sick, the new med is not working, and I want to go back on my lower dose meds, and the doc is refusing. The boss tells me, I'm making a very resonable request, I know my body, and if that med was working, I would be knocked out right now, or so messed up that she wouldn't be able to understand me. I even checked w/ my pharmasist. I use the same place, they know me, it's good. And they also confirmed that some meds don't work for some people. So, the boss gets him to write me my old scripts.....but....the dr. said he felt forced to do so and he will not see me anymore. Now I have no dr.!!! What do I do?????Is this legal? I did nothing wrong! I just didn't want to be sick, and I didn't want a strong med, I wanted my old meds back. What am I gonna do? I can't go w/out a dr.! Any advise? Please...
Sweetbean
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03/20/2008 02:06
auggie
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Hello - i have never replied here before - i am trying to upport frind w/BP -- but i suffer from Chronic Myofascail pain that is severe and i sufferred until i found the RIGHT dr. Hurts to type bad so forgive typos --Europeand Canada are so far ahead of US and i have shelled out well over $100K for non covered treatment such as TRP injections and now ETOIMS. I have done mass research on the doctors across the USA and who belongs to Myopain Society, etc... who is published in journals -- who is on the R&D side of NIH, Hopkins and my GUY trained with Dr. Janet Travell -- where do you live? I know where i was on my 9th doctor and dependng many of them have that fear factor plus for all you know he got chastised soemehere else in his career for not monitoring mesd right and he is taking it out on you. That happenedto me early on and get this -- i asked for friggin percoet in the eraly beginning when i knew nothing because Ultram was given to me and it was like a placebo.

I realize that most people cannot to do what I did $$$ but because my practice (even when it was more routine such as anasthesia pain mgt or regular TRP injecions) they just didn't bill to your insurance... they coudl also give you as a paitent hours of time and very personalized attention. these guys are at top of food chain.

so -- that being said -I AM SO SORRY U HAD OT GO THRU THAT. I remeber once i ahd a doc tell me to examine my marriage since the pain started one year after i got married. I WAS furios! but of course the more emotional the more they can deflect -- call you over emotional -- I woudl be angry too and scared too -- IT IS SCARY TO FEEL HIGH AND DRY but time to get busy -- you what? ahve 30 days to refill?

I know what u ar going thr - went thru it for 2 yrs -- I have little or NO reaction to most drugs and ahd doctors give me all kinds if crap until one specilaist #9, looked at me bawling my eyes out and immediatly put me on fentanyl patch. Then 3 weeks later she closed her doors -

1.) so if i understand you got a scrip for the immediate future which means you gotta hustle now to locate doc. It is often hard ot be seen in ext 30 days.

2.) at my practice they have a policy IF they think a patient isn't participating in their own recovery and only refilling or asking or early refills, lost meds etc.. they will write ONE more scrip (for wihtdrawal) and say bye-bye.

3.) others will say tuff - go to ER but sounds like you will not go into withdrawal now. Many docs do not like to manage pain w/short acting drugs but it sounds liek you are taking only TWO Vico a day ES? that is not a LOT and 50mg Fentanyl is 2nd to lowest on chart. Kinda surprised he upped it to 200mg of kadian - wow. It is high --

Sorry kadian didn't work - it is good drug but for yardstick -- i take 80mg to replace 50mg of Patch.

4.) Write succinct non-whiney letter to whoever boss is, recap your experience in one page or less (not whole history -- they have chart right). be respectful tell her you appreciate that she understands and you do too -- every doctor is diferent as is every patient. (hell i have NO reation to like 90% of narcotics and no reaction to any numbing agent - novocaine ets. NONE. while it is rare better docs know there are some paitenst that are tolerant NOT because ofoveruse just their chemical makeup). Some docs know this and listen others are burnt out and have heard it all. Plus they do not like to be second guessed when they are like that

PUT IT IN HER LAP, tell her you need a doc to manage your pain, confirm you stay in touch w.med team, participate activley in your own pain mgt - follow suggestions and you are NOW in a bad place. IF you write it without characterisation - like "he was mean, nasty" -- then firmly ask her what your options are within that pracitce and WHO she would recommend.

for all you know -- she doesn't like the guy either

she overrode him once -- an in the end he has the right to refuse seeing you and sounds like u don't want to see him anyway BUT she might make someone else in the practice take over OR give you referral.

I manage my pain w/short acting drugs daytime and kadian at night. OTHER docs call it "chasing the pain" and they will not let you do this. BECAUSE i am very thorouhg and keep charts, show up for all appts - etc. my doc lets me do this because it is all about what works for you BUT yes -- when i wanted to drop the kadian down and add extra dose of percocet he said NO for asme reason -- better to take stron time release when u need it than increase short drugs and take more.

She is right - you know your body -- sicne she saw that - called you reasonable - then get back to her ASAP (of course you are reasonable)and submit to her you need her assistance. Remember this -- focus on the HOW not the WHY. Ok - so... tone shoudl be - "thanks for "getting it" i appreciate help, recap fast - I have seen this doc etc. for so many yrs - do this and done that, here i am w/current situation, (sure say you are cocnerned, confused etc.)butDO NOT get emotional or bitchy about the guy NO MATTER how right you are. If you are going to use emotion or langauge and want to make a poitn -- don't focus so much on how crappy he was to do what he did - she got it when you called - Use strong or emotion to describe HOW YOU NEED a solution. Be professional but prgamatic and firm --- focus on solution, not his problem BUT yours.

Can you put this on biz letterhead? IF NOT put it in Memo or Facsimile format and FAX IT. OR if you have email send it read reciept.

EITHER WAY -- YOU GOTTA HAVE YOUR RECORDS OR NO-ONE WILL JUMP IN FAST --

Becasue my guys are like always quoted etc... and sit on a million chairs, lead research ETC -- I WILL ASK THEM TOMORROW WHO they rcommned in your state and then you will have to ask about insurance BUT even if the reference isn't good - if they give me a name THEN you can call ans aks them .....

I NEVER do this but if you reply here and offline give me email i will send u what names i get - i run biz so my name is on web and cant give u mine here - (search engines)

".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...."
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03/20/2008 02:19
auggie
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good lord - almost unreadale -- sooo sorry

nerve pain/daamge right hand - use voice activts software at work ---but pls know - i will happily ask --like i said these guys are nat'lly known - top in FM and CMP treatment and really kind..

i spent so much time in bed first year i was like rainman reseraching socities and docs -i was lost and had 30 days to replace #9 -- i found someone -- u will too --

".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...."
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03/20/2008 09:07
tammync
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sweetbean... if I had a nickle for every time I've been black-listed, ha, ha. Sorry to laugh because it is really serious matter, but sometimes you just have to, ya know? I know doctors find chronically ill patients the most challenging and difficult so I hope you aren't placing any of the blame for that scene on yourself. Despite their medical degree, you are still the EXPERT when it comes to knowing your own body and you sound intelligent enough to me to know when a drug is working or not. Sadly, what the doctor did is legal. They have the right to refuse service, just like any other business unless their refusal put you in jeopardy or "great peril" is how it is most often worded. I got so tired of this sort of thing that I finally took action once and called the complaint number on the Bill of Rights when a doctor violated my daughter's Patient Bill of Rights. Next thing I knew, I got a letter from the doctor saying "I" was no longer a patient at the practice (we both went to the same practice, different doctors) and the doctor in question wasn't even my doctor! So my advice would be to find another doctor and just give as many bad references as possible for the one who put you throuh this!
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03/20/2008 10:17
auggie
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also like previous poster -- may not be bad idea to mention or even cc (?) whatever "board" governs the area for patients advocacy, rights or cosnumer complaints. And ditto - on refernces -- These days the online tools allow patients to see and read so much more and they know this.

Another thing you might consider is the pharmaceutical sites often have advocay departments and referrals to practioners. We had to fight to get Blue Cross to pay for the Fentanyl Lollipops at a $1ooo a box when they were paying for the patch because it was a "cancer" apin drug and i don't have cancer. BUT the pharmas are incentivised to have the docs dispense so they had great help so that CP patiens coudl get access. Maybe call the maker of your patch and see. GOOD LUCK

".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...."
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03/20/2008 20:07
Matafleur
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This is sometimes what happens when you question your doctor even though you are probably right. More than a few doctors, hate having their errors pointed out to them.

Coming from a similar situation, yes, he can legally drop you as a patient and there is little you can do about it except reporting him to the medical board for stopping your meds cold when it is against procedure to do so (but you better be able to show proof he was out of line).

Regardless, the doc should have sent you a letter, in writing, dropping you as a patient.

Now, be prepared if you contact the medical board, for word to get around in the medical circle and having real trouble getting another doctor.

If he/she did not write a formal letter, then perhaps make an appointment to talk to the doctor in the office about what happened. I am on your side, but I want you to consider that it is possible the high level of pain you were experiencing was partially due to withdrawal symptoms. That kind of pain is not all together uncommon of a symptom for the meds you were on and taken off of so rapidly.

Best of luck to you!


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03/21/2008 16:50
auggie
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oh -- i would not want "word to get around" and cause you probs other docs-- in my area we had a sorta "consumer report" assoc for medical complaints of service. I can't think of name off top of head. I had one of my docs disappear w/my records for months cause he was too cheap to hire a service and gave only 10 day notice and an aol email address. I kept calling and begging because he was my gp and had all the early tests on file. Another doc told me to examine my marriage. I cc'd this organization about not providing me decnt service and "slightly innapropriate" suggestions. then i did hear back immediately and the SOB delivered my files in person to front desk.

I think if you were to insist on assitance for treatment and or referral so that your pain could be effectively managed and i guess, i was thinking that they woudl take you seriously. gosh i hope it goes well. such a pain in the ass

I hope you are feeling well and I hope by now they have helped you in some direction.

happy easter

".....Grant me the serenity to Accept the People I CANNOT change, the Courage to Change the ones I CAN, and the wisdom to know -- That's just ME!...."
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04/13/2008 21:03
sweetbean
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Please help me if you can, I live in Worcester county MA. I can't find a doc to "take" me, What is that all about? I need help, I am now sick, and in severe pain. Please email me.linabean387@hotmail.com. Thankyou.
Sweetbean
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04/13/2008 21:09
sweetbean
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I'm so sick....how can they do this, this is compromising my health, and making my conditions worse. Some people I've talked to around here say it's malpractice, to not wean you off meds, that it's dangerous and unethical. True or not? HELP!!!!!
Sweetbean
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04/15/2008 13:37
bearsjewel
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hi sweetbean and all, Sweetbean i dont mean this the way it will probably sound but thank God I am not the only one this has happened to. My doctor did this to me and then proceeded to fix it so i cant be seen by anyone in the ministry health network in WI. it was just not me but my husband and daughter also who also have chronic pain. the tried to stop my physc doc from seeing me but she said no thank God for that. the GP did this cause we complained called everryone we could think of and continuedto call them for referrals. they sent us to a pain clinic but all the doc there said was that the gp felt we could control our pain with aspirin so why should they give me or us anything. my husband and daughter found a dr who will give them their regular meds but none of their pain meds and i have not been able to find a doc who will except me as a patient. now after almost 3 months of suffering and seriously considering suicide i think i have found a doc but i couldnt make the appt yesterday because its in madison at the university clinics and its 21/2 hs away and i didnt have gas money. the appt has been schedualed again for the 15th of may and i hope i can save enough money after rent and other bills. if i get the money before i am going to try and go to the walkin clinic. most of the time i am more worried about hubby and daughter and i honestly dont care if i live or die so i will prob. get them to that doc before i try to go
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