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03/19/2008 16:29
ALCSS2008
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Is it better to have a little pain or let your life go by without you? I went My doctor today. I see him routinly for pain. He looked at me and could see the pain in my face and he asked me if I was using my percocet. I told him as little as possible. He was upset with me for with-holding relief from myself and I told him with all of the other meds, if I took them as ordered every 6 hours, I would miss my whole life and that I would rather have pain than sleep my life away. I take 500mg of Lyrica a day and 600mg of Carbatrol plus other meds, I cannot take all of that pain medicine or I might as well not be here. Does anyone else feel like they are making a choice b/t suffering in pain and being with their family?

Sandi

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03/19/2008 16:39
Chele
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I'm there with you. I am not on anything but Tylenol... I refuse to sleep my life away and IF I take meds it has to be in the evening. I am starting on Xyrem next week and I hope I will be able to function with that at bedtime.

Sometimes doctors do not realize that we have lives beyond our dx's... We have families that we HAVE to take care of... We wanna live... not sleep and stay doped up all day everyday....

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03/19/2008 17:27
jenjen77
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I think many people including Dr's have a negative connotation of people who have fibromyalgia because they think they are out seeking drugs for pain when they could be looking for alternative treatment. I've been newly diagnosed, and I've heard stories about people who are on so many drugs, it's amazing they can function or even stand for that matter. I don't want to be one of those people. I already take medications for severe depression (which I refuse to go without) and thyroiditis. The doc started me out on muscle relaxers for the fibro, but they didn't do a thing. He gave me the option of trying gabapentin and I decided to go for it. I don't like taking so many meds, but I would like some relief. I refuse to take narcotics. I won't let myself go down that road unless the pain is absolutely unbearable. It's a tough call, but I agree with the others who've said it's better to live with the pain (if possible) than to stay doped up on pain killers all day. Just started taking yoga lessons, and I think it's going to be very helpful. I wish we all could find some relief without having to take so many meds
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03/19/2008 19:00
soopergirl3737
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I agree. I take a ton of meds- some are natural things but most are RX. I take over 30 pills a day, two cremes, and two nasal sprays. For a long time I chose to just live with the pain, and still do a lot of the time, but I finally talked to my doctor about getting something to take the edge off. I've already tried two different things and now I'm starting a new one. It was a hard choice but I got to the point where I was in so much pain I couldn't focus or do anything and i was grumpy with everyone. Taking something to take the edge off will hopefully allow me to have more of a life and to be less grumpy.

I hope this helps. I definitely understand where you guys are coming from. I hate that I am only 19 and am already on all of this stuff. Yucky!

a day without laughter is a day wasted.
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