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This Doctor was amazing! He spent 1 1/2 hrs with me & my Husband, talking & examining me. We went over everything since I first got sick in 2002. He was disappointed that I wasn't able to have my recent mri's with me & I had told him about the insurance co denying them & that's another battle right now. He did say I have the Fibro spots, but I with out a doubt do have something going on with my Central Nervous System. He said I am on way to many meds, & my Husband does agree with that & was happy to hear the doctor say that. Ideally he would like to send me to one of these Chronic Pain Treatments centers. There's one in Miami & one at John's Hopkins in Baltimore. You stay there for two weeks & it's a team approach to get you better. He said my insurance co would probably never pay for it. I just have too many docs stirring my soup right now or too many cooks in the kitchen as far as my meds go I had told him that I started telling my doctors this in December & we were going to start trying to wean me off some of them. He saw that first was Cymbalta & thought that I really should still be on that one. Lyrica: I told him it was no longer working & just making me fat - he didn't seem surprised by that at all! I told him that I go to my other Pain guy next Friday & he is going to send him a report or maybe even talk to him. I had said I was do for my Botox shots again & I was telling the doctor he could not put them in my neck this time, only the traps. Shoulder areas. This new guy said whatever you do don't get them in your neck, I'll call the doctor personally & tell him not to do it. Re: The Meds I take 9 different ones, and some of them are like 4 times a day. Then I have a couple others as needed. then you can also throw in the Botox & steroid shots. One major thing he would like me to do is - you got it QUIT SMOKING I already knew that would be at the top of the list & My husband loved that also, he quit about 20 yrs ago. He did tell the doc he wouldn't be able to live with me if I quit I really wished I could have had my Husband write this for me - it probably would have been much shorter. I also asked the doctor about the very painful rib cage & swollen stomach. More than likely I am literally full of Shit! sorry guys He would not be able to tell without a CT scan I think he said. He does recommend that I do water exercises at the YMCA, I said please in order to even do that what could you give me for pain that would help & I'm not allergic to? He did not want to give me any opiods? He say I am already way to doped up on stuff. He gave me a prescription for: LDN - Low Dose Naltrexone. I said I know all about it, allot of MS patients are on it & my neuro won't give it to me, he said it won't work that he has done trials on it. Naltrexone is given High doses is given to Heroin addicts to keep them off of it, but in low dose works on many auto immune diseases/disorders. I'm so excited to try it, the only place you can get it is at a compounding pharmacy. Well this place must be like an hour or so away. He said this guy is really good, use him. My husband faxed it this morning & they will mail it to me. And you know what I think it is dirt cheap. That's why the Pharm companies won't jump on it - they can't make a profit off of it! I go back to this guy in 2 months - I'll let you know what happens when I start the new medicine. So sorry for the Book guys. |
"MDJunction to me is somewhere i feel safe i feel i can be myself and not be judged. I love the fact that i get to see that im not alone in what i am going through and i also get the chance to help others on their journey through guidance and communication.
