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kindredspirit09 Posts: 246
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Does anyone else get severe muscle jerking? I am not talking about Restless Legs, or muscle cramps, or small twitching, or tremors. I am talking about body parts jerking really bad. I have is mostly on my left side. My shoulder, arm, wrists, legs and ankles so this. Its so bad I throw objects, hit myself in the face, etc. Has anyone else experienced this? ~~Angela~~
Adult Onset Still's Disease Sept 2006 - Present
Depression Birth - Present
Pneumonia (2x so far)Aug. 2009 & Dec. 2009
HS July 1999 - Present
Agorophobia 2004 - Present
Calustorphobia 1996 - Present
Ankylosing Spondylitis 2009-Present
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hatbox121 Posts: 10649
Group Leader
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I think you might want to call the dr. on that one. I have small twitches and if I have my arm in a certain position it really gets to going. But not hitting myself. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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kindredspirit09 Posts: 246
Member
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Already did. She wasnt concerned. Going to see her next Monday. If it continues I may be at the ER soon. ~~Angela~~
Adult Onset Still's Disease Sept 2006 - Present
Depression Birth - Present
Pneumonia (2x so far)Aug. 2009 & Dec. 2009
HS July 1999 - Present
Agorophobia 2004 - Present
Calustorphobia 1996 - Present
Ankylosing Spondylitis 2009-Present |
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Adewyn Posts: 5027
Group Leader
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yeah my friends has that... get it checked out my friend |
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kindredspirit09 Posts: 246
Member
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What does your friend have that makes it happen? ~~Angela~~
Adult Onset Still's Disease Sept 2006 - Present
Depression Birth - Present
Pneumonia (2x so far)Aug. 2009 & Dec. 2009
HS July 1999 - Present
Agorophobia 2004 - Present
Calustorphobia 1996 - Present
Ankylosing Spondylitis 2009-Present |
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hopefull1 Posts: 1965
VIP Member
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I have severe muscle twitches. Last time I was visiting my bf in Denver I had a really bad one. It was the middle of the night and my left rear end cheek twitched so hard I almost fell out of bed and it woke him up too. I also get it so my stomach muscle twitches hard enough to bend me in half. I am taking zanaflex now and that seems to help with the worst of it. Are you taking any muscle relaxers? Steffanie
Do you or someone you know have Von Willebrands Disease? Come join us at http://www.mdjunction.com/von-willebrand-disease
Please note that any advice given is not a substitute for getting a diagnosis from your doctor. |
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kindredspirit09 Posts: 246
Member
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No, my doc wont prescribe them to me. Even tho my rheumo diagnosed me with fibro, my GP thinks Im just looking for drugs. (Medical MJ is legal in this state, so if I wanna get high, I can always use medical MJ. I dont need prescription drugs to do it - and my doc knows this.) ~~Angela~~
Adult Onset Still's Disease Sept 2006 - Present
Depression Birth - Present
Pneumonia (2x so far)Aug. 2009 & Dec. 2009
HS July 1999 - Present
Agorophobia 2004 - Present
Calustorphobia 1996 - Present
Ankylosing Spondylitis 2009-Present |
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hatbox121 Posts: 10649
Group Leader
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Ask your rheumy for some. Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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kindredspirit09 Posts: 246
Member
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She wont prescribe me ANYTHING at all, she says thats my GPs job. ~~Angela~~
Adult Onset Still's Disease Sept 2006 - Present
Depression Birth - Present
Pneumonia (2x so far)Aug. 2009 & Dec. 2009
HS July 1999 - Present
Agorophobia 2004 - Present
Calustorphobia 1996 - Present
Ankylosing Spondylitis 2009-Present |
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hatbox121 Posts: 10649
Group Leader
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Um...no that's her job as a doctor! I'd find a new dr ASAP. My rheumy prescribes me meds along with all of my other doctors. I tell her what I'm already on and she decides if I need something else. You need to find two new doctors hun. Two who are willing to do their jobs. Post edited by: hatbox121, at: 06/08/2009 07:35 PM Amy~ “When you come to the end of your rope, tie a knot and hang on.” ~Franklin D. Roosevelt
Current dxes-Ehlers Danlos Syndrome, Mitral Valve Prolapse w/regurg, 2 other heart valves with regurg, POTS, DDD, scoliosis, various OA, polyneuropathy of unknown origin, SI joint dysfunction/fusion/collapse, chronic rotar cuff tendonitis, impingement syndrome of the shoulder, chronic bursitis in various locations, degeneration of the sternum, vertigo, GERD, FM, CFS, CPS, various bone marrow lesions, brain lesions of unknown cause, migraines, TMJ, vertically bulging discs, Raynaud's, anemia, tinnitus, high copper levels, borderline glaucoma, colon polyps, intermittent RLS, Vit D deficiency, depression, Eye accomodation disorder, Essential tremor, recurrent kidney stones, sacral spine disorder, inflammed tendons, and inflammation of spinal nerves(no specific dx).
I'm am not a dr. I am not a substitute for a dr. All advice I give is based on research and my personal experiences. |
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