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FMS Community FMS Support Forums General & Support raising children with ADHD when you have Fibromyal
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03/05/2008 21:48
truebluetara
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I am not sure if htis is off topic but i think it is apart of it.. i was woundering if anyone else here had children with adhd and have been facing some of the challenges of parenting hyperactive children when you have fibromyalgia...It is such a challenge that soem days im not sure how i live through them hahah I was hoping if anyone else has been going through this they might want to share
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03/05/2008 22:44
hipmama42
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thanks for bringing up this topic, and welcome to the forum, truebluetara. My oldest son, 12, has ADHD and takes Adderall daily.

He has severe anger issues, a short temper, and constantly opposes and defies me and acts out physically with his younger brother. Younger brother complains that he gets away with it because "you are always in bed, mom, and don't come out of the bedroom to deal with him." Every issue that a single parent of an ADHD child is magnified when you have fibromyalgia/CFS, and so little energy to cope with it all. The stress of dealing with my son's anger,defiance, frustration with school, emotional outbursts, bullying, and short attention span (always losing things) will often trigger a flare for me, leading to me spending even more time down in bed.

I agree with you, I don't know how I've managed to just survive some days, they have been so rough. When my ex finally takes the boys for his weekends twice a month, I collapse into bed and sleep. and it takes me most of the weekend to recover my strength. Of course, my ADHD son doesn't have a good, regular sleep schedule

and often is up half the night. I am grateful to have these weekends to rest and recover. If I may ask, how old is your hyperactive child? Each age has its own unique issues and challenges.

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03/06/2008 06:09
teribelle13
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I don't know if this applies, but I saw a special on TV the other night about ADHD children (there were 2 on the special) and htey were cured by having their tonsils (sp) taken out.

The little boys were snoring at night and went through the sleep apnea testing at a sleep clinic and it was shown that they didn't sleep enough at night, which caused them to act out.

Looking back now at my oldest and his behavior and the fact that he did not breath well through his nose (diviated septom, possibly).

I wondered if that is what caused his ADHD (never diagnosed, this was years ago)

Other than that, I feel for ya so much, I couldn't imagine dealing with that AND Fibro.

My pet peeve with the medical profession, is they are treating symptoms (and not very well) when there has to be a core problem.

If I were you, I would find a cutting edge doctor who may be able to find a core problem.

ADHD, like Fibro are symptoms of something else that they just 'won't' get to the bottom of.....My opinion.

Good luck to you, be your own doctor and seek alternative options

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03/06/2008 11:03
truebluetara
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hey hip mama

well my oldest is 8 and he has it the worst becasue of the ODD aswell it really compounds the anger issues for him... and myyoungest is also diagnosed with it he is 6 years old and boy can i ever relate to the exhaustion ... when they are together they seem to ignite like a propane bottle all lit up hahaha they seem to feed off of oneanotehr and it can seem like the world is going to end at any minute... when i feel really bad i also get told that i let things slide... I am not a single parent but my husband is not their biliogical parent ... theri father walked out when my youndgest was a new born and he never botehred to look back wither.. my husband is awesoem with the kids but when you through their issues and mine into the mix he just gets soo fustrated sometimes... I cant imagine how on earth you are dealing with this all single handedly you are AMAZING!!! its really wounderful to know that im not alone in this struggle too.. not that i am happy that you are going through this but i really felt like i was the only one... I havent met any one else that has FMS and adhd kids.. so its really awesome to meet you... I hope we can get to know eachother better and have a few good laughs when we feel like throwing in the towel to hide heheheheh thansk so much for sharing with me and this topic

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03/07/2008 05:07
hipmama42
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Yes, it helps to have a good sense of humor. When I'm really feeling bad it's hard to find anything to laugh about, but I keep trying to stay positive. It does help alot to come on here and vent, also take care of myself and do things that I enjoy when they are away during the day at school or visiting their dad on the weekend. With ADHD kids it's especially important to take time for myself to recover mentally, and not push myself too hard. Of course, then I get accused of "letting things slide" lol, but I figure my health is more important than matching all of their socks and putting them away in their drawers. Housework is definitely an issue with me. My boys can trash out the place in minutes and then it takes hours for me to tidy up again...painful hours, and sometimes I am just not up to it.

I admire your honesty, and I'm so glad you have a supportive husband. It's hard on the whole family, but we take it a day at a time and do the best we can.

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03/07/2008 05:35
sweetbean
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I can so relate! My 12 year old daughter has a dual diagnosis, it started as ADHD, then things started to be added, like ODD, PTSD, Sensory Intergration Dysfunction...an on...then finally bipolar 1. It is horrific somedays, and so, so frustrating! And to have people understand that one, you would think there is enough research and info out there for people to get it, but most are still very ignorant. Like I've said before, and I truely believe it, if someone is not walking in our shoes, they have no clue, and no room to judge.I also have a 5 year old, and my 12 year old is also very inappropriate with her. Sometimes I just wanna crawl in a hole and hide but that's obviously not possible. I guess I've been looking at itas, even before knowing I have Fibro, that I'm a mother and have no other choice but to stay strong and stick everyday out to the best of my ability. Even though somedays it takes my very all, I have too.
Sweetbean
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