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FMS Community FMS Support Forums General & Support Fibro or Myofascial Pain Syndrome?
Fibro or Myofascial Pain Syndrome?
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03/02/2008 05:16
lmcclure4477
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 I was wondering what the different between fibro and myofascial pain syndrome. Iwas diagnosed with a mild form of fibro, but now my doctor is not sure if I have fibro because I didn't have at least 11 of the tender points on the tes, only 8. My tender points are in different areas and the pain radiate down my arm and legs. He also said my CCAP (not sure if these are the right letters) count was high which would suggest rhemotiod arthritis, but I don't have pain in my hands or feet. Can anyone help explain to me what I have because they sure don't seem to know.
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03/02/2008 06:22
TeainTN
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 I have wondered about this myself. I have ask dr.s and physical therapist and I got different types of answers. The myofascial has to do with the muscles and the tissue around the muscles. Fibro involves the central nervous system and the whole body. I think most people with fibro have myo pain syndrome but I don't think it's the same thing.
There is a light at the end of the tunnel -- but it's a train about to run over you.
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03/02/2008 08:27
wildfire826

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 I think with myofacial pain the pain refers and with fibro it doesnt or visa versa I have both so I forgot which was which but thats the difference from what they told me at the fibro clinic. I only had 10 so they said I was borderline between Fibro and myofacial I get retested every eight weeks for the last year and nothings changed and they said if it was myofascial it should of improved so they are doing the once a week therapy for another year before they actually diagnose me with Fibro because at this point they said they don't know since it hasnt gotten better and it hasnt gotten worse. Thats why I am still going for all these other test hoping and praying its something else that is fixable. But my test are running out : (
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03/02/2008 08:52
sweetheartsuzee
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 I've never heard of a dx of 'Mild form of Fibro'.

Interesting to me though...

I wish you the best of luck!

Maybe you'll get lucky and only have one or the other...or better yet...

NEITHER!!!!

Good luck!

{{{{Hugz}}}}

~Suzee~
Only YOU can control your thoughts...
SO...
Change your thoughts and CHANGE YOUR LIFE!!!
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03/02/2008 10:39
Hallveig
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 My favorite bone-headed medical professional speech (at a fibromyalgia clinic, no less) was the nurse who told me that myofascial pain syndrome is fibromyalgia that only affects half of the body. Not! But seriously, Mom and I also have both fm and Myofascial Pain Syndrome. MPS is a stiffening of the membranes that surround our muscles. It causes referred pain. (ex: your hands hurt because of a muscle knot in your shoulder) Fibromyalgia affects our nervous system, sleep, mood, etc. and is diagnosed with the tender point test. I have no idea who decided we need 11 pairs to qualify for fm or why, but I think it's dumb. A lot of us have all the other fm symptoms, but because we don't have enough tender points on that particular day, we don't have fibromyalgia? (In my experience, the size and severity of my tender points depends on how I'm feeling.) But until they get that new blood test up and running, I guess tender points are the best test we have for fm.

I pray that your poor, befuddled, doctors will finally figure out what's wrong. I also pray that it's nothing serious, and that you will be healthy and happy. Have a terrific day!

Heather

xoxoxoxox Heather xoxoxoxox
Beloved Father God,
Help me befriend those who are lonely,
Help me comfort those who are hurting,
Help me do battle against the darkness,
And help me lead the way to You.
In Jesus' name, amen.
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03/02/2008 10:47
bshapiro
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 please read this for the differences between FMS & MPS

http://www.mdjunction.com/forums/fibromyalgia-discussions/ medicine-treatments/14375-best-definition-of-fms-cmp

Additionally; I urge all of you to read the information in the medicine & treatment forum of this group!

Many of your most commonly asked questions can be answered by reading information that I and other members have already posted & marked for retention via a sticky.

All that aside, for your initial deescription you health care provider is not very well informed on the current theories behind the cause & treatment of FMS/CMP/CFIDS. Knowing the hassles of finding a competent heath care provider I reluctantly advise you to run like hell & find another doctor.
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03/02/2008 12:28
singingangel
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 Fibro is whole body with tender points. Myofascial is localized pain with trigger points (referred pain).
I have dystonia, neuropathy, gerd, arthritis, and fibromyalgia, carpal tunnel and other ailments. I enjoy embroidery,music, and reading my Bible and Christian books. I love to bake. I try to be very supportive and positive.
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03/02/2008 17:28
lmcclure4477
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 Thanks for that article. After reading it, it sounds like I have both fibro and myofascial pain. The part where it said that muscles feel like hard knots is exactly what I feel in my legs and arms especially. Most of my pain feels as though it radiates from one spot which sounds consistent with the myofascial pain syndrome. But I feel the effects of fibro at times when I feel run down or if I sit for too long, my muscles tighten up and I can get numbness in my feet. I think my Rhemetologist was kinda confused because I have all of the symptoms of fibro, but did not have 11 tender points. More tests are being run, so we'll see. Thanks again for all of your answers!
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03/02/2008 22:17
teach123
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 The 11 points all started with a study of people with fibro. It was for the researcher to screen people to participate in the research study. It was never intented to be used as a diagnostic tool for doctors. But, I guess they didn't have a better way, soooo...
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03/02/2008 22:17
wildfire826

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 I have alot of knots that refer and the knots that dont, the knots that are almost numb and the knots that make me jump off the table and then I have the muscles that feel like cable cords running thru my back and then I have the muscles that sometimes make a cracking kind of popping sound when Im getting my therapy. So when the therapist hits a spot and says "Oh thats different or thats weird" you know your just screwed up LOL and how they came up with the spots for the test? I was like okay move two inches done and it would of hurt LOL I don't know. Im just really hoping I don't have Fibro and wish they would give me one answer or the other. Im tired.
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